I have been experiencing flashes of white light in the outer corner of my right eye. This started in June of this year. Today I have black squiggly lines and white flash with severe pain in my middle back and low back. I have seen the eye doctor. Possible Reitna detachment… Does anyone experience any of these symptoms…
Hi Flower,
I have had a lot of eye symptoms, very similar to what you are experiencing. I would see round circles of jagged light with a black center, flashing specks of light, my vision would at times seem like I was looking through cheesecloth, my vision would jump up and down, and one time I loss my peripheral vision for 15 minutes. I also would experience bad pain behind my eye. Before I received a diagnoses I had seen an eye specialist and she felt it was neurological. Well she was right, I have lupus attacking the nervous system and brain. My eye symptoms have improved since I have been on the Cellcept. Make sure you follow up with the eye specialist and your rheumy, both drs. should evaluate this. Let us know what you find out.
Hi Reddog
I have a torn retina… My dr. Froze the area behind my eye… It has been 6 weeks now and all the black dots are gone. My peripheral vision in my right eye has been affected… I am wearing prescription glasses for distance now. I have an appointment to see a neurologist in a couple of months…
When lupus affects the nervous system and brain is that a disease or disorder of some type? I am finding driving to be a challenge… I don’t drive far but I see a difference in my perception of distance… Do you as well?
Hi Flower,
I'm sorry to hear you have a torn retina. I hope that it can be repaired. My Lupus has caused swelling in my brain, my symptoms are all neurological. A lot of my symptoms are similar to MS. Right now my doctor will not let me drive. My eyes are pretty good right now, now that I have been on treatment for almost a year. I do not have the issues like I used to. I do also see a neurologist for my disease too. Hopefully you will get some more help.
Hi Reddog
I was wondering if you have problems with memory? I have days where I can remember everything then days that it feels like I am thinking through a tunnel. It feels 3 dementional … When I am tired my distance is off my eyes or brain does not work so good… Then I get more flashing lights… Which is not my retina…does any of this sound familiar to you?
Hi Flower,
Yes when I am tired my symptoms are worse. My therapist explained it as my brain is already hurting and anything I do to make it hurt more ( tired, a lot of stimulus, stress ect.) will cause problems in my speech, walking, memory ect. When the physical therapist pushes me all of a sudden I have trouble walking or speaking, it is very obvious. It's taking me a long time to learn how it is effecting me though. For a long time I was denying anything really was seriously wrong and I would brush things off. Don't do that. Make sure you tell your doc everything, make a list and bring it to every new doctors appointment. I wish I would have got help sooner. Good luck and let me know how it goes or if you have more questions.
Reddog