http://www.vitamindcouncil.org/health-conditions/systemic-lupus-erythematosus/
Just a shortwhile ago I wrote a response to someone saying that in order to keep up with the debates about vitamin D I followed the advocacy organization The Vitamin D Council. Logged into my email and there was a link to their recent summary of the research on vitamin D and lupus. It is not one sided advocacy. It is worth the read.
Thanks for these Ann. Will be sharing in other lupus support groups.
Bless you, Sheila
if you go on medscapes they have some just concerning if Vit D helps with lupus, plaquenil get in way of absorption and other articles from actual sources and reprinted on Medscape.
I also recall that NIH(national institute of health ) as a great article regarding Vit D.
here is link after doing a search on it...has many articles
medscape also has high number of articles on Vit D here is that search link
http://search.medscape.com/news-search?newSearchHeader=1&queryText=vitamin+D
if you jump to the bottom there are some about Vit D and MS....but the most interesting is the one about if we when seniors should supplement with it...will it even help?
A lot of the sources about Vit D does seem to come from NIH...so can start with them or move on...i also know recently saw article about Vit D and lupus ...but not seeing it. I did not hardly sleep so could just be missing it.
I keep up on the research for vit d also. I take a prescription for it once a week and was out for 3 months i could tell a big difference in my health. If i can not afford it again i will definatly talk with the doctor about what i can use over the counter
Luci, (Purplebutterfly)
My vitamin D 5000 IU is $12 for 360 pills. For me, that's a year's worth. Cheapest and most beneficial medicine I buy. At that price, even if you had to take 3 or 4, it's still cheap.Here's where I get it. http://bit.ly/1duH1p6. I'm sorry you went without for 3 months when you could have gotten this one. I'm happy that it helps you. It really helps me too.
Siskiyousis, if you take vitamin C, it increases the absorption of vitamin D and all supplements.
siskiyousis said:
if you go on medscapes they have some just concerning if Vit D helps with lupus, plaquenil get in way of absorption ...
Ann,
Do you take your vitamin D supplement same time as calcium?
Ally
And to think how many years people have gone without knowing how important Vitamin D is. More so, the fact that the older recommended levels were far below what was really needed.
Ann A. said:
“Our data show that the 25(OH)D levels in the CLE patients are significantly lower than in the controls, and that having CLE increases the odds of inadequate serum 25(OH)D levels, even after adjusting for sun exposure and sunscreen use. However, the most important finding of this study is that vitamin D supplementation may have improved disease activity scores in our patients with vitamin D insufficiency.”
http://www.ncbi.nlm.nih.gov/pubmed/24503020
I definitely see the word "may." But sometimes a may is good enough for me to try something.
Thanks Ann. That makes sense. Since I've increased my vitamin D supplement dose, and just added a little bit of supplemental calcium citrate powder, my levels of calcium are now in normal range. You are right. My calcium levels bottomed out when my vitamin D levels went down. Hmm.
Ann A. said:
Ally,
Nope. Since we are designed to synthesize vitamin D from exposure to UVB, there is no reason to take it with food or to take it at the same time as something else. They only put the vitamin D in the calcium because without enough vitamin D the calcium is a waste of time. But I see no reason to take them together. In fact, I get my calcium from almond milk and collard greens - no calcium supplements.
I wonder if I even need to take any of the calcium citrate. I eat lots of leafy green, like kale and almonds. I'm going to address that with my doctor tomorrow. Thanks.
Ann A. said:
The active form of vitamin D 1,25(OH) is a hormone. It works with the hormone made by the parathyroid gland (PTH) to keep blood calcium levels within a normal range. The range is very small. If there is too much calcium in your blood your internal organs start to become solid - calcify. If there is too little calcium in your blood you will have life threatening seizures. Remember calcium is not used just in bone. It is the mineral that plays a very important role in your nervous system - transmitting electrical signals. When your blood calcium level falls too low vitamin D, in conjunction with PTH starts to pull the calcium that you need to stay alive out of your bones. The result of pulling calcium out of your bones to keep your nervous system working is damage to your skeletal system, osteopenia and osteoporosis. Severe vitamin D deficiency can also cause osteomalacia, what rickets is called in adults, where the bone matrix never hardens in the first place. Very painful.
Ann.....I saw my doctor today, the one who is treating my genetic snp's, and she absolutely does not want me to take supplemental calcium. She said keeping the vitamin D level up and getting the calcium from the food I eat is the way to go. Love it. Thanks,
Ally
Allergic said:
I wonder if I even need to take any of the calcium citrate. I eat lots of leafy green, like kale and almonds. I'm going to address that with my doctor tomorrow. Thanks.
Ann A. said:The active form of vitamin D 1,25(OH) is a hormone. It works with the hormone made by the parathyroid gland (PTH) to keep blood calcium levels within a normal range. The range is very small. If there is too much calcium in your blood your internal organs start to become solid - calcify. If there is too little calcium in your blood you will have life threatening seizures. Remember calcium is not used just in bone. It is the mineral that plays a very important role in your nervous system - transmitting electrical signals. When your blood calcium level falls too low vitamin D, in conjunction with PTH starts to pull the calcium that you need to stay alive out of your bones. The result of pulling calcium out of your bones to keep your nervous system working is damage to your skeletal system, osteopenia and osteoporosis. Severe vitamin D deficiency can also cause osteomalacia, what rickets is called in adults, where the bone matrix never hardens in the first place. Very painful.
I didn't know that. I eat lots of leafy greens and carrots too. I will be keeping track of my D level.
How do you fix your greens?
Ann A. said:
Good for you Ally,
I refuse to take a multiple because, for example, I get sooooo much vitamin A from my green leafies, and I know that vitamin A is antagonistic to vitamin D.
Thanks. So the collards get boiled in broth. I usual sautee the kale, but I wasn't sure if the collards would cook up the same way. Sauce sounds good. :')
Ann A. said:
Ally how I prepare greens is determined by the greens. I love collard greens. I love mustard and turnip greens cooked together. They get the long cook with some of my bone broth. Kale doesn't take nearly as long. And spinach. Well here is my favorite spinach.
A little olive oil, lots of crushed red pepper, and fresh chopped garlic in a skillet - Heat and stir until the garlic becomes translucent. Drop in the spinach. Stir. Eat.
When I was a kid my mom thought that I would not eat spinach unless she made Hollandaise. When she found out that I would eat it any time and place prepared anyway, she was tad ticked. But boy did I love my mom's Hollandaise.
Thanks!
Ann A. said:
Citrus Collards with Raisins Redux
http://www.epicurious.com/recipes/food/views/Citrus-Collards-with-R...