Well I visited my Neuro Dr. this morning because I have been having deep painful muscle tremors down to my bones. They start in my legs, thighs, arms and my back. He has ordered a nerve mapping test next week to find out which nerves are being affected I only have notice this more while I am trying to sleep and the pain gets really bad and I start to jerk and kick in my sleep. I have it also during the day but not as noticeable because I am walking and moving around alot, I really gets strong when I lye down and get quite. Do anybody think that this might be Fibro if so what do your Dr. have you taking for it.
It sounds like you have nerve damage i also have it and the Tremors are also spasms...everything to do with Lupus and even fibro comes from the central nervous system (The brain).
You need to be tested by your neuro as there's many issues which can cause tremors and this does'nt have to be fibro as Lupus causes them and both diseases are indentical in symptoms the only difference is rheumo like positivity for Lupus through bloods more.
There's 40 discussion's on the site about tremors and i hope this one helps abit till you get to know what's causing them :)
I have the same thing. My Neuro started me on Neurontin last year. It has helped with the pain some (mostly at night) but I still have tremors. There are times when I do not notice them at all and then there are times when I can not hold a glass of water. Unfortunately, they have not told me what is causing it other than “nerve damage”.
Thank you for your input and also mentioning what you take...as tremors can come from a large amount of courses and i hope this helps Mrs.P
Terri :)
TJ said:
I have the same thing. My Neuro started me on Neurontin last year. It has helped with the pain some (mostly at night) but I still have tremors. There are times when I do not notice them at all and then there are times when I can not hold a glass of water. Unfortunately, they have not told me what is causing it other than "nerve damage".
Nice to see you put out the Dictionary on Lupus in general ....but at least you've covered such a large majority plus as you now there's such a wide field of symptoms which can cause tremors.
Yes, there are many things that can cause tremors, even vitamin and mineral deficiencies, thyroid problems, caffiene, sugar, panic attacks just to name a few. When I have jerking in my legs during sleep, increasing my magnesium intake usually takes care of it. Also, when I went off of hormone replacement (bio-identical hormones for menopause) I started to get the leg jerking again. Now I am back on the hormones, and the leg cramping and jerking is gone.
Sometimes, with the help of your doctor, you can find what is causing it. It may not be serious problem just a minor adjustment on something. I have fibromyalgia and muscle cramping is common. There is some problems on a cellular level that research has found in people with fibro and it can affect the muscles, and this ties in with the central nervous system. It's good to have everything checked out to be sure, not to just assume it is fibro. Safer that way.
I am currently going through the nerve mapping as I have almost the exact same symptoms. Upper mapping showing nothing yet, bottom being done tomorrow. It is SO frustrating to be trying to sleep and slap yourself awake. The front of the shins hurt, upper arms...while my neuro and rheumy are a married couple, I am hopeful for a diagnosis by end of next week. When I mentioned the jerking (not really what I would call tremors, BIG jerks) my rheumy did mention that she believed it was Fibro. I thought I was the only one that had this issue. I will let you know what I find out and please keep me up to date. I would love to hear what progress you are making.
Good luck and I do hope that you are able to get some sleep :).
DeAnne is correct and your never ignorant my friend to fare up on the field with what you suffer with but we al come across issues where our brains come to a stand still...so asking away is all the better like DeAnne said.
Julie this link tells you about the testing as i've had several EMG's as you know which proved nerve damage.
I wish you all the best mate with your 2nd nerve testing tomorrow and hopefully you'll soon find out the same...i hope you have no damaged nerves because for one i do know it makes raynauds symptoms worse...it's so annoying....plus that couple are good you see and so excellent at throwing the results back at you.
DeAnne like i mentioned we've had 40 different members bring up 40 discussions on this individually so it's one common nightmare for a good many.
My loving friend for tomorrow :) xxx
whathappensinvegas said:
Ms P.,
I am currently going through the nerve mapping as I have almost the exact same symptoms. Upper mapping showing nothing yet, bottom being done tomorrow. It is SO frustrating to be trying to sleep and slap yourself awake. The front of the shins hurt, upper arms...while my neuro and rheumy are a married couple, I am hopeful for a diagnosis by end of next week. When I mentioned the jerking (not really what I would call tremors, BIG jerks) my rheumy did mention that she believed it was Fibro. I thought I was the only one that had this issue. I will let you know what I find out and please keep me up to date. I would love to hear what progress you are making.
Good luck and I do hope that you are able to get some sleep :).
As always you provide the best info but more than anything just knowing that you and the other wonderful people here are in my corner makes these endless tests bearable. And of course you have the answers.
Lots of love my dear friend,
DeAnne
Tez_20 said:
Hello DeAnne,
I wish you all the best mate with your 2nd nerve testing tomorrow and hopefully you'll soon find out the same...i hope you have no damaged nerves because for one i do know it makes raynauds symptoms worse...it's so annoying....plus that couple are good you see and so excellent at throwing the results back at you.
DeAnne like i mentioned we've had 40 different members bring up 40 discussions on this individually so it's one common nightmare for a good many.
My loving friend for tomorrow :) xxx
whathappensinvegas said:
Ms P.,
I am currently going through the nerve mapping as I have almost the exact same symptoms. Upper mapping showing nothing yet, bottom being done tomorrow. It is SO frustrating to be trying to sleep and slap yourself awake. The front of the shins hurt, upper arms...while my neuro and rheumy are a married couple, I am hopeful for a diagnosis by end of next week. When I mentioned the jerking (not really what I would call tremors, BIG jerks) my rheumy did mention that she believed it was Fibro. I thought I was the only one that had this issue. I will let you know what I find out and please keep me up to date. I would love to hear what progress you are making.
Good luck and I do hope that you are able to get some sleep :).
Thank you everyone who answered my question regarding Tremors. My Neuro stated that he thinks that this is related to my Lupus and he did some palimenary test in his office and so far he said that he does'nt see any nerve damage. I am schduled next week for more test just to rule out other things. I will mention the meds Neurotin and Gabapentin for nerve pain. Some days I jerk and seize more than others when I do I will take an extra pain pill I am currently taking Oxycodone and it usually helps the tremors expecially at night when I'm trying to sleep..
@ jujubeee my Neuro said that he is gonna do a EMG test on me also, he said that the test is kinda painful and yes it is just like doing mapping of your nerve endings.
I will update my condition next week after we get my test results back from the EMG. I hope that my Lupus is not affecting my brain, thats the last thing that I need right now.
But soon we shall see you up and dancing :). Praying for you!
XOXO,
DeAnne
jujubeee said:
Here's what multiple nerve compressions look like, lol. My father asked me to put them all on at once and send him a pic a couple days ago. Some days its bad, some not as much. I have no idea how I ended up having bilateral carpal, tarpal, ulnar, radial on left and pereanel on left all at once, but I did. Has this happened to anyone else? Love and HUGS, Julie
I've never had to use these but my youngest sister who as Lupus had to use the nerves compressions on her hands and wrists when she was 20 but her's was abit different but she did have the one your wearing on your feet also.
Christ knows what i'll end up like with the buritis of the toes and ankles as that gets painful but i will admit i tought you'd taken up boxing lol
Bless you mate the things you do and you do suffer badly :) xxx
Oh bless you DeAnne but we all need one another because with so much going on even though we have loved ones turning to other's your close to plus who understand is a hell of alot more different and is a better comfort zone for we all.
I do hope it's good news though on your behalf as you deserve it with what you've been going through besides lately.
Love & kisses Terri xxx
whathappensinvegas said:
Terri,
As always you provide the best info but more than anything just knowing that you and the other wonderful people here are in my corner makes these endless tests bearable. And of course you have the answers.
Lots of love my dear friend,
DeAnne
Tez_20 said:
Hello DeAnne,
I wish you all the best mate with your 2nd nerve testing tomorrow and hopefully you'll soon find out the same...i hope you have no damaged nerves because for one i do know it makes raynauds symptoms worse...it's so annoying....plus that couple are good you see and so excellent at throwing the results back at you.
DeAnne like i mentioned we've had 40 different members bring up 40 discussions on this individually so it's one common nightmare for a good many.
My loving friend for tomorrow :) xxx
whathappensinvegas said:
Ms P.,
I am currently going through the nerve mapping as I have almost the exact same symptoms. Upper mapping showing nothing yet, bottom being done tomorrow. It is SO frustrating to be trying to sleep and slap yourself awake. The front of the shins hurt, upper arms...while my neuro and rheumy are a married couple, I am hopeful for a diagnosis by end of next week. When I mentioned the jerking (not really what I would call tremors, BIG jerks) my rheumy did mention that she believed it was Fibro. I thought I was the only one that had this issue. I will let you know what I find out and please keep me up to date. I would love to hear what progress you are making.
Good luck and I do hope that you are able to get some sleep :).
Thank you so much for updating we all and even though he's found nothing yet i do hope it stops the same for you, as Julie and myself can vouche for this Central nerve damage is unpleasant and causes some pain and hopefully your specialist can help you with meds to settle it for you.
We'll wait for you update and do takecare in the meantime :) xxx
Ms. P said:
Thank you everyone who answered my question regarding Tremors. My Neuro stated that he thinks that this is related to my Lupus and he did some palimenary test in his office and so far he said that he does'nt see any nerve damage. I am schduled next week for more test just to rule out other things. I will mention the meds Neurotin and Gabapentin for nerve pain. Some days I jerk and seize more than others when I do I will take an extra pain pill I am currently taking Oxycodone and it usually helps the tremors expecially at night when I'm trying to sleep..
@ jujubeee my Neuro said that he is gonna do a EMG test on me also, he said that the test is kinda painful and yes it is just like doing mapping of your nerve endings.
I will update my condition next week after we get my test results back from the EMG. I hope that my Lupus is not affecting my brain, thats the last thing that I need right now.
How he tells you the results is great mate but here some will and some other's make you wait for the results to go through to your specialist and then it's waiting on their appointment...so annoying besides a waiting game:)
jujubeee said:
Think positive! I'm sure your brain is ok. If you feel like it's ok, I'm with ya, then it's very likely fine! I've had EMG's years and years (PN for many years now in extremeties.) My last EMG a couple weeks ago knocked my socks off. OWIE!!! I knew he was good at EMG's and had the next day bunched up pulled muscles to prove it. If I didn't have tarpal in my right foot before the EMG he certainly gave it to me FROM the EMG, haha...
ps he can tell you the results while he's doing the EMG...they know immediately.
I'll have to get intouch with fighter and perhaps she'll take you on....oh mate you do make me laugh
jujubeee said:
LMAO Boxing! All I need to do now is have Lupus Fighter emblems sewn on the splints. :)
Tez_20 said:
Julie,
I've never had to use these but my youngest sister who as Lupus had to use the nerves compressions on her hands and wrists when she was 20 but her's was abit different but she did have the one your wearing on your feet also.
Christ knows what i'll end up like with the buritis of the toes and ankles as that gets painful but i will admit i tought you'd taken up boxing lol
Bless you mate the things you do and you do suffer badly :) xxx
....but at least you've covered such a large majority plus as you now there's such a wide field of symptoms which can cause tremors.
Terri :) xxx
lol
lol