I have had slight tremors in my arms and hands for several years, they are constantly getting worse. I often have to use both hands to hold a cup, sometimes I cannot use the computer because my hands can't stay on the keyboard. My fingers have also started going numb, The numbness starts on the very tip of my finger and then works it's way toward my hand. Does anyone else have these problems or any suggestions about what to do?
I do have stenosis in my neck. I had a visit with my rheumy today and he said that was a possibility but he also wanted me to see a neurologist to rule out Parkinson's. My Dad had Parkinson's. The dr said that even tho he didn't see the classic signs that he looked for he thought it best to know for sure. Thanks again Ann for your input.
Well besides ruling out Parkinson's and seeing what damage the stenosis as caused...Lupus can also cause nerve damage to the nerves...i've had several tests years ago and i have nerve damage but what goes against me now regarding my fingers is the raynauds...that's a total nightmare upon itself.
I really hope the neuro can help in some way or another. xxx
I wish you the best and pray you find an answer soon. I only get shaky like that when my blood sugar or the when my adrenal glands are not in good shape. please let us know what you find out.
Thanks Janice, I have Type II Diabetes and I do get shaky when my blood sugar drops but this is a different kind of shaky. Ann mentioned problems because of spinal stenosis, I have stenosis in my neck and Terri said that she has similar problems because of nerve damage caused by Lupus as did Tez. You guys are the greatest! It's such a big help to get input from everybody, I have a hard time getting my thoughts together to come up with questions for the doctors sometimes. I'll update after my neuro appt.
I just realized that Terri and Tez are the same person. I guess I'm going to need to slow down a little in my responses. It's just so nice to get so much support from people who are THERE too!
grandma,
I joined as Tez but my names actually Terry spelt with a (Y) but i use an (I) so member's know i'm a female as i've had confusion in the past over me being a male.lol
You'll get all the support you need from us..Ann/janice plus myself have had so many issues over the years besides other member's. xxx
grandma14 said:
I just realized that Terri and Tez are the same person. I guess I'm going to need to slow down a little in my responses. It's just so nice to get so much support from people who are THERE too!
Hi im fairly new on here,and i would like if possible some feed back please.
i get tremors,but they are deep inside me,they are not trouble some,but a bit scary,and i have numbness in my knuckles and both kness,ankles and big toes,some times i find it hard to walk,and to pick things up is like the sinews in my knuckles are really stretched,does any one have any clues?
So glad i joined this group its wonderfull and thanks guys!!x
Dear grandma,
So sorry you continue to go through this, not only for you own wellness, but because we would like to hear more from you!
As you know, I do not have a full diagnosis, but the suspicion remains, and I am constantly tested for SLE. I have had numbness in my fingers, hands, wrists, and it progresses further up my arms. I also have severe wrist pain that is yet to be fully explained.
I have had only one experience with tremors, and my GP and I pointed a finger at the med Savella, I discontinued this med, and have not had one since. That said, who can know for sure.
I am not sure if this numbness is the Psoriatic Arthritis, the spinal stenosis, or undiagnosed SLE.
I hope this response is of some help to you, I hope with the help of your Doctor and our group, that you are able to overcome this, and have an improved quality of life.
I send you my best, and a great big hug,
SK
OBTW, my second neurologist did the nerve and muscle torture tests, all that came up was mild carpal tunnel, his diagnosis of me was summed up in one word "STIFF", I have never been back, believe me, my GP and DC could have fallen on the floor when this came down! Surely the referrals have stopped!
Wonderful to have you, Kathy!
kathy said:
Hi im fairly new on here,and i would like if possible some feed back please.
i get tremors,but they are deep inside me,they are not trouble some,but a bit scary,and i have numbness in my knuckles and both kness,ankles and big toes,some times i find it hard to walk,and to pick things up is like the sinews in my knuckles are really stretched,does any one have any clues?
So glad i joined this group its wonderfull and thanks guys!!x
Hello Kathy,
Yours could also be your nerves but also arthitis can cause these issues....so i suggest seeing your rheumo about them because there's so many issues linking to these symptoms and i hope the link below can give you abit of insight to it.
Love Terri xxx
kathy said:
Hi im fairly new on here,and i would like if possible some feed back please.
i get tremors,but they are deep inside me,they are not trouble some,but a bit scary,and i have numbness in my knuckles and both kness,ankles and big toes,some times i find it hard to walk,and to pick things up is like the sinews in my knuckles are really stretched,does any one have any clues?
So glad i joined this group its wonderfull and thanks guys!!x
Thinking of you this evening, hope you are feeling better!
Wishing you WELL,
SK
Thanks Tez,and every one x,yes i have rang and made an app to see my rheumy,hot holding my breath,could be 6mnths wait,same old story a long waiting list grrrr.
warm fluffy hugs to you all,and take care xx
Tez_20 said:
Hello Kathy,
Yours could also be your nerves but also arthitis can cause these issues....so i suggest seeing your rheumo about them because there's so many issues linking to these symptoms and i hope the link below can give you abit of insight to it.
http://symptomchecker.webmd.com/multiple-symptoms?symptoms=numbness...
Love Terri xxx
kathy said:Hi im fairly new on here,and i would like if possible some feed back please.
i get tremors,but they are deep inside me,they are not trouble some,but a bit scary,and i have numbness in my knuckles and both kness,ankles and big toes,some times i find it hard to walk,and to pick things up is like the sinews in my knuckles are really stretched,does any one have any clues?
So glad i joined this group its wonderfull and thanks guys!!x
I know Kathy, as good as my Rheum is, if you don't have a scheduled appointment it is tough to see him. So glad my GP is 5 minutes away, will always see me same day or next day, HOWEVER, he will not interfere with meds by Rheum. Will not care for me alone, insists that I also see Rheum. so I have to respect his knowledge and wisdom. These specialists are so busy they sometimes seem unobtainable! GEEZ, I meant to cheer you up! At least I totally understand your frustration!
My heart goes out to you! Hope someone drops out, surely you asked to be called for someone cancelling.
SK
Hi kathy,
Your welcme from us all and don't mention Rheumo appointments and waiting...it's totally sick how we have to wait.
How you feeling today kathy and lease keep we updated on how you are?
((Love & hugs)) Terri xxx
HI TEZ,WEL HAD TO GO TO DOCS AGAIN TODAY AND HE SENT ME STRAIGHT UP TO THE HOSPITAL,IVE BEEN GOING FOR A WHILE NOW I HAVE A REFLUX PROBLEM,WELL THEY PUT ME ON LANZAPRAZOLE,WHICH DID C ALM THINGS DOWN,BUT LIKE EVERY THING YOU TAKE YOUR BODY GETS USED TO THE MEDS,SO OF COURSE ITS BEEN COMING BACK SLOWLEY TO THE PIONT THAT I DONT GET ANY WARNING WHEN MY FOOD DECIDES TO COME BACK UP TO THE START,ITS TOTALLY EMBARASSING AND PAINFULL,SO WHEN I HAD THE ENDOSCOPY,THERES WERE MARKINGS OF WHAT HE PRESUMED WERE ACID MARKINGS,AND I HAVE TO WAIT NOW FOR THE RESULTS PROPERLY,A FRIEND SAID THAT ALOEVERA IS THE BEST THING,SO IN THE MORNING MY PARTNER IS GOING TO GET SOME FOR ME FROM THE HEALTH SHOP,AS ANY ONE ELSE HAD THESE REFLUX PROBLEMS,AND IF SO WHAT ALTERNATIVES ARE YOU TAKING?? THANKS AGAIN GUYS X
hI yES IT IS HARD, YOU SEE HERE IT ISNT EASY SEEING THE RHUEMY ,MY DOC YES I NORMALLY SEE ONE OF THEM SAME DAY,BUT ITS A LOTTERY FOR THE DOCS,YOU SEE A DIFFERENT ONE EVERY TIME SO YOU CANNOTT GET A GOOD RELANSHIP WITH YOUR OWN DOC,IF YOU ARE WILLING TO WAIT A COUPLE OF WEEKS TO SEE HIM,THATS NO GOOD,AND OUR PRACTISE HAVE TO M ANY PATIENTS,YOU HAVE TO CHASE UP YOU PRECRIPTS EVERY MONTH ITS CRAZY,AND I CANNOTT GET ANOTHER DOC PRACTISE TO TAKE ME ON,AS THEY ARE ALL FULL,THE JOYS OF THE NHS,SO HERE ITS JUST GET ON WITH IT,BUT THERE COMES TIMES WHEN YOU HAVNT THE STRENGH TO DO THAT!!THANKYOU,FOR LISTENING,FEEL A BIT VUNERABLE TODAY,X
SK said:
I know Kathy, as good as my Rheum is, if you don't have a scheduled appointment it is tough to see him. So glad my GP is 5 minutes away, will always see me same day or next day, HOWEVER, he will not interfere with meds by Rheum. Will not care for me alone, insists that I also see Rheum. so I have to respect his knowledge and wisdom. These specialists are so busy they sometimes seem unobtainable! GEEZ, I meant to cheer you up! At least I totally understand your frustration!
My heart goes out to you! Hope someone drops out, surely you asked to be called for someone cancelling.
SK
wITH A GOOD NIGHTS SLEEP I THINK I MIGHT,HOPE YOU HAVE A LOVELY EVENING
BEST WISHES TO YOU TOO,KATHY X
SK said:
Thinking of you this evening, hope you are feeling better!
Wishing you WELL,
SK
Hello Kathy,
There's nothing worse than refluxes and i get them with the sjogrens syndrome as that causes it but i just put up with it and sometimes it makes me feel on the edge of throwing up but i can't afford to do this because i had anorexia for years and it was'nt until i met my hubby that i finally stopped with his help it was a nightmare.
Doctor's had me on Zantac for years but they was great and helped ease it and some days i'd be ok with it, then one GP i was under stopped them and through the sjogrens getting stronger i've got it all back.
So i deeply know what your going through.
All my love to you Terri xxx