Hi, where can I find that thread?
Thanks,
Wendy
whathappensinvegas said:
Please read the thread on Lupus Psychosis. CNS issues are very real and can be very serious. Do speak with either or both of your docs about this. Prednisone can help some. I thought I had it licked until my husband reminded me last night about a very recent indicent of which I have no recollection.
Apparently last Sunday I said something to the effect of "What a lovely weekend, having company over". Well, no company was here. Those are my types of CNS issues.
If your Rhuemy is any good they already know about this issue, however researching and taking info with you wouldn't be the most stupid thing you did.
Good luck,
DeAnne
Hi An A., yes ! I do the same , No matter how crazie it sounds to me , I have gotten to know both doctors very well over the years and they have been the same ones since this all started ,(mentally and physically) , I report all and anything to them as it happens and I love them for handling it quickly-we are very honest with each other (communication wise), thank god for them!! But yes report everything, that’s how they know what is going on with us ,Living with Lupus…Beverly L.
Ann A. said:
Dear Beverly L.
Your post reminded me that I found LWL by searching Google using the term “creepy crawlies.” I definitely felt as if bugs were crawling all over me or as if I was itching from the inside. I spoke to my rheumy about it and he thought that I might be experiencing “full body inflammation.” Then I spoke to my pain management physician he recognized it as “paresthesia” resulting from my spinal stenosis.
http://www.ninds.nih.gov/disorders/paresthesia/paresthesia.htm
Neither my rheumatologist nor my pain management physician considered my description of my symptoms - the creepy crawlies - as an indication that I was suffering from a mental disorder. Neither of them referred me to a mental health specialist. Both of them recognized these strange signals from my nervous system as having a physiological origin.
My pain management physician referred me to a neurosurgeon who confirmed his diagnosis and scheduled me for surgery: the L3-L4/L4-L5 laminectomy.
I am never afraid to report symptoms to my physicians, no matter how odd they may sound. There are some health related subjects about which I know a great deal. But I did not go to medical school, I did not complete what used to be called an internship, and I have not completed the residencies required to be board certified in one or more specialties. The MDs and ODs on the team that I have built to live with lupus have done so. They know a great deal more than I do. And when they do think that my symptoms are psychological in origin, it ain’t no big deal to me. I have a great relationship with the mental health specialists that I have hired to be on my team. And I am happy to say that I do not currently require any of the psychotropic medications that they use - even though that has not always been the case. And of course that is not completely true. God knows that there are some days that require Xanax.