Hi all...I haven't been posting for a bit, just reading and trying to learn about this whole lupus thing.
The other day, my hubby told me that about 3x a week for the past two or three weeks I've suddenly started tossing & turning in my sleep. This is VERY unusual behavior for me. I normally am a very still, quiet sleeper. The only thing I can think of is that the discomfort in my hips and legs have been disturbing me.
Also, a few days ago I had some major brain fog, I guess. Driving to work, there is a very short stretch of road that probably takes less than a minute to drive before turning onto another road. A few seconds after turning onto the short stretch of road, I suddenly didn't know where I was. I could not recognize any of my surroundings and thought maybe I'd missed my turn off. Scared the snot outta me! Once i got to my turn, I was fine. After I got to work...I put my SALAD in freezer. This is sooo not good for salad. LOL Ended up having to buy my lunch that day.
I can email my dr so that I don't have to make an appointment but not really sure if this is something to bother her with.
You absolutely need to see your doctor...asap. I don't know what medications you are on, but before I had my biopsy confirmation, I actually went to one doctor and had NO recollection whatsoever. Another time, I forgot to stop at a red-light which could have seriously hurt or killed someone. I have gotten much better, but it took months. I forgot words, had conversations with people that weren't there, others less serious but a big red flag, nonetheless. These were all just prior to a stroke. At the age of 43.
I am not trying to scare you, but at the same time want you to realize this could be a warning of something serious.
I am not a doctor and am not giving medical advice, but there is a real correlation between lupus and something called "lupus psychosis".
Please for your health and safety, talk to your doctor soon.
I had the same exact think happen to me but once I realized where I was I took the wrong turn, realized right away it was the wrong turn I "got it right". I was fine after that. I blamed my age (I'm 72). and I thought I might have had a small stroke but that was 4 or 5 months ago. I think I blame my age on a lot of things thats really Lupus related. Tell your DR. it's always best, if he think it's nothing then OK. The more i learn about L the less I seem toknow.
YES. This is not a bother to your doctor, a bother is having to see you in the ER because you didn't want to trouble the doctor with unusual symptoms or behaviors.
Hi thanks for all the great replies, everyone. I've been off my computer all week...actually told myself I'd have more energy, sleep better, etc if I stayed away from it. I so lied to me! LOL
Anyway, I did email my doc and the new symptoms concerned her enough that she contacted the Neurologist. So, next Thursday I'll be stopping in to the sleep lab to watch a video and pick up some sort of device that I'll bring home to monitor my sleeping. I guess that's what will happen. the lady on the phone didn't really explain it well.
Pretty sure the sleep lab thing-y will show that there is no sleep apnea. asked my husband if, when I'm keeping him up all night, I stop breathing at all or if I've done a sudden jerk to start breathing again. He says my breathing stays normal.
Maybe the next stop will be with a rheumatologist. Haven't seen one yet, but I'm sure my doc will be open to adding to the "team".
It really sounds like Lupus fog and I don't know what (if anything) they can do. I have gotten disoriented a lot too; I've left the burners on the stove on after I've finished cooking, I totally feel "not myself" most of the time. I forget things at work, at home. I just don't know what they can do.
Hi!, this is going to happen . Sorry to say , I think each one of us will/have had these moments! Just stay focused , it will come back to you of what you are doing it only last for a moment. The tossing and turning is your body is having to fight with lupus in your sleep to be confrontable!! Yeah sound crazie, but it is the truth! I go through is alot and sometimes I jump up out of my sleep cause the pain wake me up and I have to sit up for a couple of hours before I can go back to sleep, yeah and I do be tired the next day ! But really I have dealt with this issue for now 3years. And a lot of pain meds that don’t work , sorry to hear this and hope that the pain goes away soon…Beverly L.
Thanks JerseyGirl and Beverly. Not sure hubby will be glad to know it's "normal". He's spent the last 20 years next to someone who barely moves during sleep. Now I'm thrashing around all the time and he doesn't know what to do. Poor guy!
I will just be glad to get a diagnosis of SOMETHING. That way I'll know, at least, that I'm not just crazy.
Wanted to send a little up-date on the sleeping world. Still tossing & turning all night, some nights. Last night I had to wear a wrist watch looking thing with sensors on two fingers all night. Took it back to the sleep lab this morning and within the next two weeks I'll get a report of some sort. Very sure it won't be sleep apnea (really praying it won't be). Just hoping this will somehow help the doc's get closer to a diagnosis.
I know I need to think about applying for FMLA protection for my job. Monday I had to leave work after only a couple of hours there b/c I was in so much pain and so exhausted. If things like that keep happening, I'll lose my job! I absolutely can not afford that to happen.
Lupus is painful and will lead to many restless nights. Talk to your doctor about pain and inflammation management. AS for the brain fog, it’s why I stopped driving. I couldn’t trust that I would not endanger the lives of others when the fog can come on so quickly. It’s hard living a normal life when we are not living in normal bodies. I hope you find a solution that works for you.
Hey guys, have any of you found a way to cope with lupus brain/fog? Mine has gotten worse and I need a way to manage it. At least once a week I am completely out of my head.