I was sitting here and all of a sudden I “froze” it was like when a computer freezes and at firt I thought that was what happened, but it wasn’t the computer it was me. I know I have mentioned weird neuro thing like not recognizing my car the other day and putting my pants on backwards and stuff. but this really freaked me out, as soon as I could move (a few secondes?) I called my son. I was disoriented and thought it was just after dinner time, but we had spoken an hour or so earlier… I don’t knp what is going on but i am going to call doc in am and then of course it fi gets worse I will cg go to er. my left armand hand are numb but that is niot new–they had me in hops a few weeks ago because I had a horrible headachea adb then chest and arm pain but idk, anyway, has this happened to any one?
Hey,
I have had a similar incident happen. I just become disorinentated and forget things and confused. Very strange. I have had several tests done, MRI, Spinal tap, some type of electrodes on my scalp. There were of course no results that would indicate what this was from. It has happened a few times. I have had vision problems the last time, seeing spots, and tingling but no headache so I just contributed it to a migraine. I have no idea what causes this but neither do the doctors.
This is Janice's daughter-in-law. Sorry for the double post from the previous page. I couldn't figure out how to say it in 140 characters.
Janice had a partial stroke last night and was taken to the hospital today. She is mostly ok now but is not able to use her left hand very well and is still a little too confused for the computer. She anticipates being back online in a few days...actually, she hopes to be back online tomorrow so she can stay in touch with everyone but we think she might need a few days.
SO SORRY MY FRIEND! Listen, u need to take it easy, stay in he hospital & let them help u & figure out y all of this neur...It needs to be figured out what is causing these occurences, that happening is not only very scary, but dangerous & I am worried about u...very much! What tests have they done & any news yet?? So whatever is new, pls. update, I am back form our 3 day power outage from Irene, thanks for ur prayers thru it all!! I missed u all so much being away...I will pray very much for u my friend, have faith, stay strong & please keep smiling & singing... sending poditive energy & thoughts to u!! Love ya! {{HUGS}} Suzie :0) xoxo
TELL HER SUZIE SAID TO TAKE IT EASY AND DO NOT RUSH BACK, SHE NEEDS TO CHILL FOR A COUPLE DAYS, WE ARE HERE, AND AREN’T GOING ANYWHERE! SUZIE :0)
janice said:
This is Janice's daughter-in-law. Sorry for the double post from the previous page. I couldn't figure out how to say it in 140 characters.
Janice had a partial stroke last night and was taken to the hospital today. She is mostly ok now but is not able to use her left hand very well and is still a little too confused for the computer. She anticipates being back online in a few days...actually, she hopes to be back online tomorrow so she can stay in touch with everyone but we think she might need a few days.
Janice, I was so sorry to hear of your stroke. I hope your recovery is quick and with no long lasting problems. My dad had a TIA and it wasn’t severe, but I notice little things that he may notice, also thank your daughter-in-law for the update, Good luck to you, you have always been there for us and we want to be there for you. I will add you to my prayer list.
Oh Janice! I pray for a quick recovery for you. Take care of you and take it easy right now. We will be here when you are ready.
Hugs,
Vicky
Janice, Prayers for a speedy and full recovery. Remember the body heals when resting…HEAL,
I am still having these things…t.i.a.s maybe? I get dizzy, my vision gets spotty and my face (left side ) and arm go numb.
And I feel sort of lost and confused and scared.
HI Jan! Lsten , what u are feeling should be told to your doctor ASAP, no joke! This is serious & needs to be figured out sooner rather than later, DO NOT MESS AROUND WITH THIS! PLEASE! What tests did they do to u anyways, and what was shown, wen u had the stroke a few days ago? {{HUGS}} & REST! Suzie :0)
they (in er) told me to get to a nuero, but my doc is dragging her heels bc she says she thinks it is all adrenal insuffiencey and wants me to see a psyh! she said she does not care what they said in er even though she did not even do a neuro exam on me, and even though I have been asking for a nueo for over six months…ever since i had my pants on backwards that day. she said adr insuf can drag my potassium low which can cause strokes and heart attacke=s and stuff but she did not tell me what to do for right now. i do not feel terrible, just have dizzy spells and vision issues, but itys not terrible. i called her and spoke to the office and tried to get answers and it was like pulling teeth. she said she sent ref to neuro yest and she refused to write ref for lupus doc because she said i already have one…even though she knows my rheumy doesn’t really “believe” in lupus!
saving this too http://www.patienttalk.info/AHA-Patient_Bill_of_Rights.htm
I agree Janice… Go to the ER and let them figure out what is going on… Don’t self diagnose…
hey thanks corrina,
i thought it was pretty straight forward when I left the er. They said i had had a partial stroke and to get to a neuro (we don't have one in our town)---while it was not good news at least it was definite. Then I had to follow up with a heart guy who said it was a tia--i asked what the difference was and he said a t i a didn't leave changes and a stroke left permanent damamge. he said this walking away impatient and disgruntled that I had asked. Then I had to follow up with gp and she said it was the underlying adrenal inefficiency...mind you None of them are treating it they are just calling it different names and passing the buck. Gp wants me to see the psch she set up because she can't get over the fact that I take 200 mg of Zoloft--says it is too high...blah blah blah---that has been her song and dance for a long time, but I want to shout at her and say, "Ok fine, but what about my brain? What about the "episode" with many names? what do i do?
so I called back today bc i was too groggy and befuddled yesterday and asked, "if it is adrenal insuf, then what is the plan for treating it, bc what we are doing now is not working." she left a message with the nurse who said, "well that is what the prednisone is for. (rheumy is in charge of that) oye vey.
so i am back to doing nothing until a window of opportunity opens. it really helps to know that I am not standing by the window, waiting and waiting and biting my nails all by myself.
Corrina G said:
Hey,
I have had a similar incident happen. I just become disorinentated and forget things and confused. Very strange. I have had several tests done, MRI, Spinal tap, some type of electrodes on my scalp. There were of course no results that would indicate what this was from. It has happened a few times. I have had vision problems the last time, seeing spots, and tingling but no headache so I just contributed it to a migraine. I have no idea what causes this but neither do the doctors.
didn't go to er bc the symptoms were so mild---felt like a pinched nerve and the nerve that was pinched was the "last one" ---so fed up with docs. there must be a way for us to build a bridge between "us and them"
meanwhile, i took my aspirin and potassium...checked bp which was a little high but not off the charts
i love you all---thank you for caring about me:)
Life is very interesting and cyclical, when I was younger my grandmother used to take a cocktail of medicines every morning and at night. I remember one of the medicines, I was allowed to try, was potassium, in tablet form it would fizz and let out a citrus smell and tastes like Orange soda. I found out from my great Aunt she had lupus too.
Unfortunately she passed away from lung involvement, she snored heavily and sometimes would stop breathing in the middle of the night, I used to wake up instantly and call her name or shake the bed and she would continue snoring. The doctor whom came to the house the night she died, said it was an asthma attack, but my mother never ordered an autopsy (too selfish and uncaring) so I'll never know. My great aunt (grandmother's sister) told me, that my grandmother had lupus and I should get tested. Glad I had her to talk to and did.
thank you for sharing that—the truth (about Lupus and autoimmunity) will show up better the more we shake and sift and re-visit all our shared experience.
Unfortunatley, we realize that Lupus or any Autoimmune Disease is in our family tree’s, sometimes not right in the are we look, but deep down, it is most definatley there! An on the note of the Venus Williams new info. about her having Sjorgens Disease, and suffering for 7 yrs. b4 being diagnosed, well, she also mentioned yest. in an interview, that Serena, her also amazingly talented sister & tennis player had blood clot problems w/ her lungs…Don’t know if it is just me, or does that too sound like Autoimmune issues could be playing a strong role for both girls…I know I have Antiphospholipid/Anticardiolipin Antibdies which causes increased risk of blood clots, so again, it prob. is in their family too…Sometimes it is in front of ur eyes, and other x’s u have to search deep! My Grandpa (my Mom’s Dad) said his Mom had “arthritis” sooo bad sooo many yrs. ago, she just popped Soooo much Aspirin, that is all they had, in order for her to walk…Hmmm, that sounds lke she had something too? Right? We know it is on My Mom’s side naturally, cause my Grandpa’s sisters daughter, my Mom’s 1st cousin (who eerily looked just like my Mom 2), died from Lupus at 47, after my Mom, but at the same age my Mom died…NOW that is SCARY! Don’t even like 2 think bout it, I will be different, I REFUSE to let that happen 2 me, the “47” curse, but we know soo much more nowadays then they did…So after my Looong Story, LOL, YES… without a DOUBT, It is genetics that has alot to do with what we go thru! Keep Smiling & Stay Strong All of U! Suzie :0)
Thanks Suzie, I agree with you, I too will not let this disease take me down, now that I know, I am sharing information with family members and we are having open discussions of genetics.
Its a shame it took me getting ill to have this open dialouge.