Hi everyone,
So I have had anemia with this lupus and my sojgrens syndrome…I see a kidney doc and finally someone helped with this anemia crap 
kidney doc did iron levels and they were close to none and even my backup iron supply in my bone marrow was pretty depleted…so she gave me 5 wks of iron infusions once a week and I felt alot better, had less fatigue, no dizziness, and all around just more energy…last infusion was in April. She rechecked labs recently and my iron is “in range” but only by one number (so on low normal side) but my iron storage is still super low she said it should be at least 50 and mine is 15…I’m having the extreme dizziness and horrible fatigue all over again since stopping last infusion…so if my iron saturation is still very depleted will that give me these annoying symptoms again? By the way my insurance (state insurance ) won’t pay for anymore iron infusions from kidney doctor because I’m not in the right stage of kidney disease…just wondered if anyone have had these iron issues too?
I just started getting several month bouts of iron deficiency anemia a year 1/2 ago so i sympathize with the symptoms. My hematologist started me on low dose oral iron and my levels slowly improve with that as well as iron rich diet (cabage/kale/spinach ) so haven’t needed iron infusions yet. Are you seeing a hematologist too? ? I had a protein c deficiency that causes clotting before the anemia so i already had a hemo dr. Good luck 
Hi dawncelest
Thank u so much for replying so fast …I do have a Hemo doctor, saw him first a couple yrs ago because of blood numbers white cells red cells all cells, really , haha , being all up and down and also because of anemia…anyway I started taking oral iron and it messed so much with my stomach problems ( IBS constipation, and nausea) so he told me not to take it…then fast for word couple yrs later and FINALLY someone listened (kidney doc) and put me on 5wks of iron infusions …omg it was a miracle cure for alot of my annoying symptoms that stop me from alot of my life… well I made appt with Hemo it’s on the 20th, I’m just hoping he will see my problem. Has your Hemo said anything to u about your iron stores?
I have a lot of digestive issues too more upper stomach /pancreas. Iron definitely can be tough on nausea. My hematologist had me take vitimin c with it and it was way more easily digested. Yeah my stores are ok after a few months . My red cells deplete randomly. I'm starting IVIG infusions every week at home ,all my drs are hopeing it will really help overall including the random animia. I feel like my red cells were lowest on cyclosporine but i was also sick enough to be hospitalized then so who knows . .. my hemo issues were the most stable during my 6 month round of cytoxin but i was still having flares in organs and my relapsing polycondritus was still processing. Unfortunately it sounds like your animia is severe /frequent enough that you'll struggling with it forever. Fortunately you know that you have it, the symptoms and when you should see your specialist.