Thanku ,no I didn't it just started one day and continued to get worse.yea its driving me crazy.i want some good food.lol
they have not been able to figure out whats causing it,they just want to give me pills and they don't work at all thGrace said:
Dear hopefulforever... I mean foreverhopeful.... That's really something. One and a half years, thats has to seem crazy, that's a long time. And they can't find anything? You can't eat anything but soft stuff? Wow, my heart goes out to you. Did you ever have little mini episodes before that all happened?
thanks Annmarie,i just changed family dr and I have another apt with neuro.this week I will mention that.
Annemarie said:
Have they checked the nerves in your face? My father developed a tumor on one of the trigeminal nerves and it caused numbness etc... For over a year before they found it. Unfortunately when they removed it they nicked the nerve so one side of his face droops. He was not happy since he's an orthopedic surgeon and he went deaf in the ear on that side. The OR nurses all had to learn to speak to his good ear when he was performing a surgery. He's mostly retired now. Just sees long time patients. I'm sure that they've already tons brain scans etc... On you but it never hurts to check again. I just had another one done and they found a cyst on my pineal gland which is contributing to the constant headaches. You just never know. Good luck!
foreverhopeful said:
I wish mine would only last 2 or 3 hrs,ive hade mine for 1 and 1/2 yrs.and no meds help,im about to go out of my mind,ive lost so much weight cause I cant stand to eat anything that isn't soft,it stinks I have had more tests than I can count and seen more dr and no one can figure it out.
Grace said:
That is all very interesting.
Annemarie said:
This happens to me as well. The face and lip numbness lasts at least 2 or 3 hours, the numbness in my extremities can last from hours to days, and the numbness in my pelvis several hours. I do have several bulging discs that contribute to the numbness so in my case it's not all lupus. I hope this info helps.
Yes Grace, I have numbness that has spread from my right shoulder/arm to right sided, neck, ear, and face. It elevates with intensity with auto immune flair or if I am extremely upset. I feel like it is all interconnected some how...