I am so tired of dealing with frequent sinus infections. 24 hours after I finished antibiotics for H influenza bacteria in the sinuses, the ENT cultured me again. This time, the culture came back positive for a staph infection. I am now on my third antibiotic in the past 6 weeks for sinus infections. I can't believe this!!!!
Did your doctor say your sinus infections were linked directly to your lupus?
I am not dx with lupus but with UCTD. My sed rate and c reative are often elevated and vitamin D low RDW off. For the first time, this past January my homogeneous ANA was elevated 1:320. The strange thing is that when the ANA was elevated, the c reactive and sed rate were normal. My compliments have always been elevated, not low.
I can identify with your pain. I am currently propped up in bed with ice packs, fluids, etc. I cannot begin to count the number of sinus infections I have a year. your problem with your sinuses sounds different from mine. Bottom
line is all docs agree it’s lupus related, but that’s what all docs say. I am so sorry you are feeling so miserable and wish I had words of encouragement. I would suggest you get a second and even third opinion. Treat yourself with kindness, particularly when you are having such a bad day.
I also have had tons of sinus infections, ear infections and bronchitis. When my sinuses are not infected, they are often inflamed which is causing some of my problems. I have been on the full dose of plaquinil for about three weeks. Hopefully that will help when I have been on it for awhile
ive been very sick past 6 months with ear infections that came out of the blue. Never dealt with allergies, sinus issues etc. So heres where im at . 2 months ago my ear started to bleed ( only left ear ), so the pain next then clogged as if liquid was constantly filling ear so it didn't go away so I went to a local out-patint clinic and they gave me 2 heavy duty antibiotics said its just a simple ear infection. ok 3 weeks later worst then before liquid was coming out of my ear and hearing was bad, so I went to my p.c.p. he gave me Clydamycin and said this should clear up. so after taking full course anti.this last week was worse thjen ever the liquid was literally pouring out 24-7 out onto my clothes so I told my p.c.p. to send me to an ear, nose throat specialist this was 3 days ago. OUTCOME my lupus being what it is couldn't fight the infection at all and it literally blew out my ear drum I lost total hearing in left ear with no possible return. my hearing will not come back due to infection severity wow imagine how I felt. well we know how important staying away from germs sickness around us its a struggle. I feel like THE BOY IN THE BUBBLE. wow that's for me why lupus is such a lonely place I feel trapped and don't know really what should or could I do. well just wanted to share my similar story with you roxy and all my lupus people out there . im online every day reading everyones comments- posts but have no strength daily to type but I do keep up with all my family of lupus people, im living in hot vegas and I stay in most days to keep out of sun that tires me and walkings a huge struggle due to deg, disk issues have a blessed day thanks for listening VEGAS GIRL
Sorry about your ear. Did the ENT have a game plan to prevent the same thing from happening to your other ear? See an audiologist. There may be ways to capitaliZe on bone conduction hearing
Roxy said:
Sorry about your ear. Did the ENT have a game plan to prevent the same thing from happening to your other ear? See an audiologist. There may be ways to capitaliZe on bone conduction hearing
yes he gave me ear drops and cleaned out all the liquid so far day 3, no liquid thank god, ok said if drops don't clear up come back one week and hell rx a stonger antibiotic so ill hope for best. Also wanted to tell you I asked about left ear if it could get same onfection? he said 1 in a million chance of other ear getting infected . I wanted to ask ?s about hows that preventable but since I was his last 5 30 pm appt. I think he was rushing . but I liked him he seemed to know what hes doing. so when I go back for follow up ill ask lots more ?s and keep all you guys, gals informed. ps he did know for a fact the placquinal doesn't and didn't help and the lupus was cause since I coulnt fight off the infection. ok feel good roxy im praying you get well asap..also im assuming our next visit will talk of next step who knows hearing aid possibly? so ill keep posting updates bye-bye for now.............
Did he say anything about seeing an audiologist
Roxy said:
Did he say anything about seeing an audiologist
no he rushed and all I heard was youll never regain your hearing and we pretty much left it at that. For next apt ill discss that thanks for replying vegas girl
When I look back at my labs, I noticed that about 16 months ago my labs showed elevated c- reactive protein and anti-dna(ss)igg. In January, my labs showed elevated homogenous ANA 1:320. I have had elevated sed rate and c reactive about 70% of the time. I suspect that the dx of UCTD may well be accurate.