Just wondering if headaches might be a new “symptom” for me??I’ve never had them before a couple weeks ago?
I used to get AWFUL headaches every day. This lasted about 3 years. After I began taking plaquenil and the plaquenil kicked in, my headaches stopped.
I have headaches, more like a constant one that never goes away. Its worse with this cold and sinus infection. Trisha
I have terrible headaches,migraine,especailly if i go in the sun,or if a building has flueresant lighting.
When i have a flare,my sinuses go into overdrive,and this can trigger a migraine headache.
I go into a quite room,have cold packs and try to rest,some times they knock me sick,and i have the waterfall lights streaming down,usually my right eye.
I hope you can find a solution to your headaches,but they are just the norm for me.
Best wishes,and hugs Kathy
Could be. I never had too many headaches until this all began and now it is a daily thing. They suck!!! I am sorry to hear you are having them ;(
Just as a precaution I would still mention them to doc. Hope you feel better!!!
Hello Laurie,
Headaches are an issue with Lupus and sometimes they become bad migraines besides with sinus trouble which "Trisha" as stated because i have them terrible at times...lying and resting may help you until you feel they may ease off...plus high and low blood pressure can cause bad headaches, as your blood pressure been tested besides and is it ok.
Love Terri xxx
Good morning Laurie
I also have headaches from time to time - in fact yesterday I had one that was annoying! I didn't think of it being a symptom but then again, could be. Guess we just never know from day to day. I find that listening to my body helps more than anything. I've quit trying to force myself to do something. I usually wake up at 4:45 and ride my bike for 30 minutes but this week just haven't been able to get out of bed at that time so I haven't set the alarm these past few days and sleeping till 6 makes a huge difference! Yesterday I even went outside and brought 4 wheelbarrows of wood to the front of the house! When I had the headache yesterday I quit working on the computer.
I get them more when I work, maybe it the lighting? Hmmm? Thank you for your replies! I think it’s definately a symptom!
As I'm reading this I have a bad Headache nowLOL! turn out I have Lupus .back in June 12th 2012 had surgery to remove my thyroid now I'm suffering from High blood pressure and headache It driving me in sane my bloodpressure is now 160/110 and I feel horrable. any suggestions
It is very possible that the headaches are related to your illness. There is literature on the "Lupus Headache" and it can be from a number of reasons, which some of the other posters mentioned- lighting and high blood pressure. Headaches can also be a result of a lack of sleep which can cause nervous system problems in the brain. Also because lupus is systemic, it can cause inflammation anywhere, including of the blood vessels and tissue in the head/brain, which can cause pain. Trying to avoid a flare if at all possible or stop one in its tracks cuts down on overall inflammation and should reduce the headaches.
Headaches were actually one of my main symptoms when I was first diagnosed years ago. It was so bad that when they hit it would feel like half of my face and head would be numb from the pain. Other times it would start at the base of my skull and radiate upwards and downwards. Stress and lack of sleep were major triggers for the headaches and I had to learn ways to minimize/stop them.
Hope this helps
~Kay
Hello Laurie,
How you feeling today?...if your getting them alot at work lighting may be the cause and sometimes if your having to move about abit to much like pressure.
Have a nice pleasant weekend Laurie and all my love Terri :) xxx
Laurie said:
I get them more when I work, maybe it the lighting? Hmmm? Thank you for your replies! I think it's definately a symptom!
If i go into say Marks and Spencers,or the Hospital,i start with pains in my head,dry eyes and mouth,and then a headache,i read some where that this lady was working with flourescent lighting in her work place and the employer changed the lighting.hope this helps,it is defonatly a issue for me.!!
Tez_20 said:
Hello Laurie,
How you feeling today?...if your getting them alot at work lighting may be the cause and sometimes if your having to move about abit to much like pressure.
Have a nice pleasant weekend Laurie and all my love Terri :) xxx
Laurie said:I get them more when I work, maybe it the lighting? Hmmm? Thank you for your replies! I think it's definately a symptom!
Hello Kathy,
flourescent lighting does affect we but how you say your eyes go dry besides your mouth that can be a sign of sjogren's syndrome...i'd get checked out for that if i was you.
Love Terri xxx
Hi Tez,yes i will,i recieved my long awaited app to see the rhuemy on the 16th of November,i must write all this down,i need to be assirtive on the day,hope theres no fog,im taking my partner to,and i am going to sit there until they explain to me what the hells going on,ive had enough now!!.I will keep you informed.
Love Kathy
Hello Kathy.
It is wise to take your partner because my husband speaks up besides myself and how yours is the 16th i see mine on the 30th.lol
I've read things you've put and i'd say especially sjogren's and you do need to know as it's as bad as Lupus it's another A1 Disease and if your rheumo says yes...ask if you have primary or secondary, be persistant mate to know what's going on.
Kathy did you join the sjogrens site which is seperate to LWL as i can't remember because you'd know by the discussions if you have similar symptoms.
Love Terri :) xxx
Hey Laurie!
For me, when I get headaches, It was due to lack of proper rest. I needed to get enough sleep or else the headaches would come.
However, that was before I flared up and was diagnosed with lupus. When I began to experience symptoms like arthritis pains, I noticed that all of my headaches were associated with the fevers I would get and they felt like someone was taking a sledge hammer and smashing it against my head. Light was the main annoyance, since I had to constantly tell the nurse in the ER to turn off the lights for me. But even if they gave me medication for it, it wouldn't go away until the next day.
And then after medication, I would get, I guess migraines, that would get triggered by bright lights and either my left or right eye would end up hurting really bad from it and eventually spread throughout my head.
All in all, I hope you're doing well!
-Julie
Hello Kathy,
How are you keeping and hows your headaches now?...have they eased up at all abit for you.
Terri :) xxx
Hi Tez,im not to bad,in a flare at the mo,fever,every thing hurting etc,i go to the hos week after next ive 4 app,for this and that,the hot feeling i keep getting in my feet legs and hands wrist is getting worse,so need answers to these problems.
How are you?keeping warm i hope,its freezing here,but if you are anything like me,the heat is on then off its a njghtmare lol.
Take care yeh!! :} kathy xxx
Tez_20 said:<3
Hello Kathy,
How are you keeping and hows your headaches now?...have they eased up at all abit for you.
Terri :) xxx
Hi Tez,i did try to reply to this advice last week but it wouldnt accept my mess,thank you i will be asking alot of questions week after next,i most defonatly have some thing going on,and ive every thing written down,thanks again you are a great help,and do apprecaite and listen to every thing you say. warm hugs Kathy xxx
Tez_20 said:
Hello Kathy.
It is wise to take your partner because my husband speaks up besides myself and how yours is the 16th i see mine on the 30th.lol
I've read things you've put and i'd say especially sjogren's and you do need to know as it's as bad as Lupus it's another A1 Disease and if your rheumo says yes...ask if you have primary or secondary, be persistant mate to know what's going on.
Kathy did you join the sjogrens site which is seperate to LWL as i can't remember because you'd know by the discussions if you have similar symptoms.
Love Terri :) xxx
Hello Kathy,
I hope your appointment goes well and fire the questions mate as i do because some try to get you out the office as quick as you walked in and sorry to hear about your flare and those can be painful at times.
Regarding your legs joints as well as muscles can cause the heat and your wrists...it's like me i have muscle atrophy (muscle wastage) and the pain right through them is terrible and if i stand abit my left calf from where i had DVT bad and through that leg starts swelling and oing rock hard...there's no clots but i'm like you still can't understand the severe pain and that's what it is, then my toes and ankles cracking...well the rheumo as took x-rays so hopefull i'll know on the 30th of this month.
Keep writing anything down that hits you out the blue and concerning myself...trying to get over a bad cold...my legs what i stated, the lots a nightmare and like you the heating is all on but still can't get warm, i've got thermal tops on besides a fur jacket pure madness.
soon kathy....love & hugs Terri xxx
kathy said:
Hi Tez,im not to bad,in a flare at the mo,fever,every thing hurting etc,i go to the hos week after next ive 4 app,for this and that,the hot feeling i keep getting in my feet legs and hands wrist is getting worse,so need answers to these problems.
How are you?keeping warm i hope,its freezing here,but if you are anything like me,the heat is on then off its a njghtmare lol.
Take care yeh!! :} kathy xxx
Tez_20 said:<3Hello Kathy,
How are you keeping and hows your headaches now?...have they eased up at all abit for you.
Terri :) xxx