Hey guys, I am back and glad to be back, I missed all of you. I have been diagnosed with something they call phychosis, and I don't agree with the diagnosis. They say that this phychosis was brought on by stress, but I am confused if it was brought on by stress, then why didn't I experience a lupus flare. I have never known that stress can affect your speech , give you seizures and your ability to walk. They want me to see phsychiartrist, but I am wondering how can he help? I am still having speech problems and walking problems, so they decreased my prednisone, because they said being on high doses of prednisone can also cause seizures. Personally, I don't think they know what is really causing me to be the way that I am. I researched "Cerebritis" and it had all tthe symptoms that I am experiencing except the speech problems. Can anyone shed some light on my situation, or recommend another resource to help me figure things out?
Dear fighter!
So glad that you are back, and continue to 'fight' your way back! I haven't been around for a while either, been mostly moderating Fibromyalgia, but am so very glad to hear that you are 'on the way'!
I am out of my depths with this topic, but let me give you at least one good link to look over. I am http://medical-dictionary.thefreedictionary.com/psychosisfond of this medical dictionary as it gives you everyone's medical definiton of a condition or disease, it sounds like it is a genetic chromosome illness. Now, look at the one below...
http://www.the-rheumatologist.org/details/article/867939/When_Steroids_Cause_Psychosis.html
There is a scary thought as found as the Doctors seem to be of steroids!
fighter, you know I am surely not a Doctor, they have education and wisdom that bypasses mine by a long shot.
I hope that you continue to improve and can thrive again!
Big hugs to you,
SK
Yeah JC I saw a neutologist yesterday, and she agreeded that I need to see a physchiarist, but I go to my rheumy next month and I will mention axatia to her as one of the possibilities we can explore. Thanks for your response. Many blessings and hugs
John "JC" Colyer said:
Have you seen a neurologist, sounds a lot like Ataxia, which I have, a Brain MRI could be needed
I missed you my awsome Ann. I am going to the physicharitist, and I will keep an open mind and give them a chance to do their job instead of passing judgement. It's good to be back, I missed my family very much. Many blessings and hugs.
Ann A. said:
Dear Fighter (Angel),
I am so glad that you are back. Remember that psychiatrists are medical doctors (MDs) just like the other one's that you have been seeing. They have given you a diagnosis that falls with the area of specialization of someone who has gone to medical school, completed some form of internship, and then a residency program in psychiatric medicine. Physicians who choose this specialty are often also board certified in other areas..
Only a physician who is board certified in psychiatric medicine can or rule out the extent to which your symptoms are/were caused by factors that are within that area of specialization. Give the physician to whom you have been referred a chance to help you, even if you cannot see how that it is possible.
My favorite physician who specialized the the practice of psychiatric medicine was also board certified in internal medicine. He is the one who first suspected the cause of many of my Hashimoto's symptoms and referred me to the correct specialist. He is the only physician who gives people 50 minutes per office visit. He gets paid to really listen. So please don't get hung up on what the specialty is called. Give him or her a chance to show you what they know and what can do. It is something that the others do not.
Follow every avenue you can. Glad to have you back.
Hello Fighter, (How i've missed this i don't know)
Glad to have you back mate and do thank your Terrie for keeping we updated regular as it was smashing of her to do so...we have missed you and i was totally shocked when she anounced it.
Fighter stress can cause seizures, loss of speech and your ability not to walk....what do you think i've been having for years mate abit different circumstances as you know but stress is the well known killer of issues.
Yes you see a psychiatrist mate as i've been under one for years, it's for the stress they want you to go for and you'll be surprised what flies out your mouth once chatting with them.
Prednisone they are correct on it does cause seizures and they can't afford not to be careful with what's happened to you and the way you still are....so stop being STUBBORN lol
Fighter you've got alot of issues which have happened there like what JC as Ataxia, also a chronic stroke and you don't always have to be affected in the brain for those...it's also like Todds paralasis which comes from a seizure...you need to see a neurologist like JC said for proper tests to be done.
I used to have the phychosis with my temporal-lobe epilepsy that's why i was diagnosed wrong through it, illucinating, hearing voices etc and if you've mentally had none of that well i'd say you have'nt got it.
You do need to see a good specialist in Neuro because we can all respond as you well know coming up with condition after condition and it could be anyone of them.
It's lovely to see you back though mate.
Terri xxxBless you SK, and its gonna take more than this to keep me down. My name says it all. I will continue to work with the doctors and allow them to use their education to help me, and I will call on the Lord as often as I need to. Many blessings and hugs.
SK said:
Dear fighter!
So glad that you are back, and to 'fight' your way back! I haven't been around for a while either, been mostly moderating , but am so very glad to hear that you are 'on the way'!
I am out of my depths with this topic, but let me give you at least one good link to look over. I am http://medical-dictionary.thefreedictionary.com/psychosisfond of this medical dictionary as it gives you everyone's medical definiton of a condition or disease, it sounds like it is a genetic chromosome illness. Now, look at the one below...
http://www.the-rheumatologist.org/details/article/867939/When_Stero...
There is a scary thought as found as the Doctors seem to be of steroids!
fighter, you know I am surely not a Doctor, they have education and wisdom that bypasses mine by a long shot.
I hope that you continue to improve and can thrive again!
Big hugs to you,
SK
I would reject the term psychosis. I think I would look more to the term "delirium." When patients have a severe but reversible illness, it can affect their mentation and appears as a mental problem or a whole set of bizarre issues like seizure, movement issues, etc. Often times patient is septic/infection gone wild or toxic/adverse reaction to meds. I agree I don't think they know. You may have become ill due to meds--toxicity which no one wants to own to due to possibility of lawsuit. Some people are definitely more sensitive to meds than others. Violent mood swings can occur with steroid use and dose changes. This could be interpreted as a mental disorder. I have nothing personally against mental issues as I have depression and anxiety and history of seizure, but it is dangerous to throw these terms around when people can be damaged by a guess. If it's a brick call it a brick. If they don't know they should cop to it. Hang in there. I completely agree with JC--a neurologist is in order whenever you have these type of symptoms--have they ruled out a TIA? Some although damaging are not detectable on CT. But affect speech and movement. Are you on aspirin or other clot prevention? Knowledge and friends are powerful. You have to be your own advocate these days even with a good healthcare team. Stress can create seizure, and seizure is linked to lupus as well. We all need to keep a handle on it. Sometimes if you know the nature of the seizure it can help you figure out what is goin on. I have had both petit mal seizure losing consciousness and jerking on table and jerking and loss of control of body while awake which is termed simple. In any event neuro should do CT, EEG, and talk to you. I wish you well. Prayers for wellness go to you! Karla
Welcome back...No doubt you can see there are a lot of dear caring people who are here for you.
I think I came about the time you "left" but I am happy to have you here again. Praying for wisdom for you to seek the proper doctor who truly can give you the help you need. And try not to lean to your own understanding. Sometimes we must trust others who have more expertise and see the "whole picture." And I am praying for wisdom for the doctor...the right diagnosis without a lot of wasted time....and the right treatment. You are dealing with many issues....but I love your cheerful spirt and your openness to listen. Keep your chin up and keep us posted. Faye
Hi Faye,
You did join the site as Figher took ill with the above symptoms but once you get to know her she's one smashing lady.
Love Terri xxx
Well hello Faye, nice to meet you, and welcome to the family (LWL) I like already because of your positive energy. I love people with positive energy. I look forward to chatting with you and I hope that I can be of help to you and offer some advice as needed. But awsome Ann and Too Sweet (Tez) are beautiful people to connect with as well as the others in our family. Again welcome aboard and thank you for the prayers. Many blessings and hugs
Faye said:
Welcome back...No doubt you can see there are a lot of dear caring people who are here for you.
I think I came about the time you "left" but I am happy to have you here again. Praying for wisdom for you to seek the proper doctor who truly can give you the help you need. And try not to lean to your own understanding. Sometimes we must trust others who have more expertise and see the "whole picture." And I am praying for wisdom for the doctor...the right diagnosis without a lot of wasted time....and the right treatment. You are dealing with many issues....but I love your cheerful spirt and your openness to listen. Keep your chin up and keep us posted. Faye
Thanks Sonis, it good to be back with the family. And I will keep everybody updated on my findings about my condition.
Many blessings and hugs
Karla, I definitely understand, and trust me I ask questions, even though doctors are educated, they are also human and make mistakes, and my handicapped daughter is proof of that she was brain damaged an birth due to medical mistakes. So rest assured, I am on top of things, and many questions to ask. I will stay in touch, I like your perspective about the whole situation. Many blessings and hugs
I would reject the term psychosis. I think I would look more to the term "delirium." When patients have a severe but reversible illness, it can affect their mentation and appears as a mental problem or a whole set of bizarre issues like seizure, movement issues, etc. Often times patient is septic/infection gone wild or toxic/adverse reaction to meds. I agree I don't think they know. You may have become ill due to meds--toxicity which no one wants to own to due to possibility of lawsuit. Some people are definitely more sensitive to meds than others. Violent mood swings can occur with steroid use and dose changes. This could be interpreted as a mental disorder. I have nothing personally against mental issues as I have depression and anxiety and history of seizure, but it is dangerous to throw these terms around when people can be damaged by a guess. If it's a brick call it a brick. If they don't know they should cop to it. Hang in there. I completely agree with JC--a neurologist is in order whenever you have these type of symptoms--have they ruled out a TIA? Some although damaging are not detectable on CT. But affect speech and movement. Are you on aspirin or other clot prevention? Knowledge and friends are powerful. You have to be your own advocate these days even with a good healthcare team. Stress can create seizure, and seizure is linked to lupus as well. We all need to keep a handle on it. Sometimes if you know the nature of the seizure it can help you figure out what is goin on. I have had both petit mal seizure losing consciousness and jerking on table and jerking and loss of control of body while awake which is termed simple. In any event neuro should do CT, EEG, and talk to you. I wish you well. Prayers for wellness go to you! Karla
Dear Fighter,
Sorry if I over analyzed your situation. Can you tell I'm a patient advocate? Sorry--nurse and a scrapper myself. I am sorry to hear about your child. Yes, we make mistakes all the time. I'm shocked at how often delivery of children is still an issue. And I know most people have no idea the gift that special needs children are to us. I know I had to have the experience of that special person in my life to see it. I'm embarrassed to say it took me awhile. She's since passed but I will never forget the lessons she taught me in love. I don't link my Facebook stuff to this stuff--this is too personal and that's public, but I do have the site "stop discrimination against special needs" on it. If you facebook, you might check it out. You keep fighting. The brain is fascinating- it can make new connections sometimes to compensate for losses. So, don't give up on your goals. I've seen people years after stroke recover use of a limb--it's not common, but it happens. My first therapist was not a traditionally trained man, but he helped me more than alot of counsellors I have had. I still remember some things he taught me 16 years ago and they help. Sometimes it sucks havin to try them out to see who can help. You keep in touch. Karla
Oh no Karla, there is nothing to be sorry for sweet heart. I am glad that you requested me as a friend, I really like that. I used to be a medical assistant myself, and have a great love for medicine, especially since my daughter was born the way that she was, and I myself am a very big advocate for special needs people. I also try to inform the people about the law and how they dont do their part to help make things better for them, but anyway I better stop while I am ahead cause I can go on and on about special needs children and adults. Talk with you soon. Many blessings and hugs
ITS FUNNY YOU SAY YOU HAVE BEEN DIAGNOSE WITH PHYCHOSIS AND YOU DON'T AGREE. BACK IN 2004 OR 2005 CAN'T REMEMBER WHICH YEAR BUT ANYWAYS I HAD A BLOOD-CLOT IN MY BRAIN DUE TO ONE OF THE REASONS WAS HIGH DOSE OF PREDNISONE. AROUND THAT TIME I WAS DIAGNOSED WITH PHYCHOSIS AND I WAS IN DIS-BELIEF THEY TOLD ME I NEEDED TO SEE A PHSYCHIARTIST EVERY WEEK. I TOLD THEM I'M NOT CRAZY.THEY TOLD ME I NEED TO TAKE MEDS I SAID YOU TAKE THE MEDS YOU NEED THEM LOL.TRUTH BE TOLD I THINK ITS HAVE TO DO WITH LUPUS-FLARES AND SOMEWHAT LUPUS-FOGS,INFLAMMATION IN THE BRAIN. IT PLAYS A BIG ROLE.SO I AGREE WITH YOU A 100% IT CAN BE CEREBRITIS.I HAVE SPEECH PROLEMS, MEMORY LOSS ITS VERY DISTRUBING AT TIMES I JUST FEEL LIKE PULLING MY HAIR OUT.."STRESSFUL"WELL HOW ALL GETS WELL FOR THE BOTH OF US..TAKE CARE
Hello Fighter,
How you been feeling since you got intouch with me?....plus take one day slowly.
Thinking of you my friend.
Hugs Terri xxx
No experience cant offer any ideas. I do want to send you a hug & wish you all the very best with figuring out what is what. Good luck to you. Kaz
Hello Fighter, I'm glad that you are back. I'll pray for you that you get better.
Trisha
Ado julie,
"Yes carry on about your CNS problems & don't apologise mate"
Julie i brought it forward as fighter as already had neuro tests and even i cocked up on saying to go and see one, as i'd forgotten what Terrie had stated on her updates.
I know what you mean about not all neuro's being the same but tests can't lie either especially an MRI.
Julie i'm still keeping to what i think as happened to fighter she's had a chronic stroke like i had my two...i'm sitting down and all of a sudden i go paralized, my GP did'nt mess about he diagnosed me on the spot as a chronic stroke and you don't have to have your brain affected either for one to happen.
They should be taking the issue furthur afield and notifying higher specialist's the ones who have treated fighter, as that's how it works here.
Smashing to here of you Julie.
Hugs & kisses Terri xxxx
Dear Fighter,
I'm truly sorry to hear what you're going through. I'll keep you in my prayers.
First of all, ALWAYS LISTEN TO YOUR GUT INSTINCT, it's you're 6th sense ( if you will ). I understand why you don't agree with you're Dr's. I too had experienced the slurred speech, numbess of my face, hands, and my feet. I was literally walking into walls at work. I work in a hospital. That was the last day I worked, sometime last yr. My PCP sent me to a Infectious Disease MD. They can look for speciality diseases. Also get a great Rhuematologist whom believes in you. Whom understands. Although my episode was different, it occurred. I'm not in need of a Psych Md either. I wish the Dr's out there would just say, I don't know what you have." Right. It would save us so much time.
Just keep on looking, researching, and most of all, never give up on yourself!
Listen to your gut instinct!
Momof4sons, Jean