I am really thinking about starting a law suit against the makers of that drug... "prenisone" I been through so much because of it. What do yall think?
I know that prednisone has a lot of bad side effects, but it is the drug I need to keep on keepin on. I will never be able to stop taking it,...they say if I do, I die because my adrenal glands dont work.
what kind of problems have you had because of it?
here's a list of mine:
weight gain
high blood sugar
high cholesterol
idk about anything else
Hello Janice,
my problems are my teeth, the enamale in my teeth I been losing for some time now and its causing my teeth to crack at the drop of a hat, my joints which is my shoulders. The steriods ate at my cartledge in my shoulders. Thats why I need the replacement in both my shoulders. The weight gain.I dont even want to talk about that. I think I gain about 24 pds. And about the adrenal glands Im having that same problem. I dont think thats right the fact that we have to depend on that drug to live. I been on steriods for the past 10 years. Ive asked my rhemy multiple times to get me off the drug because of the side effects. Ive even had that hpv virus because of the steriods so I have to go to my gyn to get check every other month. Im just a little tired of it all.
Thanks Rachel
I dont think I have enough heart to do something like that, Im just alittle pissed right knw cause of the problems that Im having. If I do sue someone it would be that dr cause I been asking over and over again to get off of it. Those steriods saved my god daughter who is in and out of the hospital every year cause of her asthma.
Thanks Rachel. you made my day(((( big hugs))))
I would only take it for short periods of time because of the side effects. There are so many steroid sparing
agents today which allows u to lower steroid levels. It's only for organ threatening Lupus not mild Lupus symptoms & shouldn't be abused
Hello Tanya,
Starting a law suite takes up alot of time and energy and can totally drain you...been there and done it and never again that's my opinion...it's all according to how you feel your've suffered and if your up to it health wise besides mentally in general.
I would like to know what you’ve been through
Hello Monique,
What i went through is one long history but wrongly diagnosed to start with and was put into hold mental asylums where i was locked up, highly drugged on steriods besides 30 odd tablets daily and within 3yrs they brain damaged my head on the right side. besides other problems and the case was seizures which they did'nt recognize and i was finally sorted out cocnerning what the matter was with in in 1997 after loads of tests was run by a brain surgeon who could'nt help me because i'd gone to fare with issues that was'nt corrected from the start.
The case itself was mentally draining in total and this is what Tanya as to take into consideration from the start and how she feels she's been treated.
Monique Pressley said:
I would like to know what you've been through
Tez_20 said:
Hello Monique,
What i went through is one long history but wrongly diagnosed to start with and was put into hold mental asylums where i was locked up, highly drugged on steriods besides 30 odd tablets daily and within 3yrs they brain damaged my head on the right side. besides other problems and the case was seizures which they did'nt recognize plus Lupus from birth and i was finally sorted out concnerning what the matter was with in in 1997 after loads of tests was run by a brain surgeon who could'nt help me because i'd gone to fare with issues that was'nt corrected from the start.
The case itself was mentally draining in total and this is what Tanya as to take into consideration from the start and how she feels she's been treated.
Monique Pressley said:I would like to know what you've been through
I've been on steoids for 20 yrs in varying doses. I've tried all the immune suppressors without much effect. Everytime I wean down below 5 mg I flare up. My adrenals stopped working & I went into a crisis recently & required high doses to get my level to normal. This disease is chronic with no cure. MD's treat the symptoms with toxic medicine. Alternative care relies on homeopathic methods. None of these have worked for me.
Hi OC GAL,
It's a disease where the meds can only help to a ceratin degree and for furthur help moved onto something stronger...that's what's happening with myself at the moment.
I was only on plaquenil for a year and half and it's stopped helping.
OC GAL said:
I've been on steoids for 20 yrs in varying doses. I've tried all the immune suppressors without much effect. Everytime I wean down below 5 mg I flare up. My adrenals stopped working & I went into a crisis recently & required high doses to get my level to normal. This disease is chronic with no cure. MD's treat the symptoms with toxic medicine. Alternative care relies on homeopathic methods. None of these have worked for me.
Oc Gal
The same thing happened to me. so my Dr put me on humaira which is an injection, and believe it or not it helped out alot.
Monique did you read my last reply to Janice.. Girl its alot I been through and is still going through. And the one I hate the most is my teeth.
Monique Pressley said:
I would like to know what you've been through
Hi Tanya,
I thought Humara & Orencia was for RA. My Rheumatologist is trying to get Rituxan approved. I feel like I'm going to blow up, been on 40 Mg of Prednisone for a week. Gained 20 Lbs. after a mo long flare up. Cellcept 1,000 Mg/day didn't work with 5 mg of Prednisone. I need stronger biologic.
tanya said:
Oc Gal
The same thing happened to me. so my Dr put me on humaira which is an injection, and believe it or not it helped out alot.
Hi Everyone,
I have been on prednisone "steriods" for 23 years, I guess most would consider high does. I have pulse therapy every 7-8 weeks which consists of 1,000mg (1gram) IV solumedrol (liquid pred) each day for 3 days. I just today had a major break through where I had to go from my normal 10mg/day to 70mg/day this am before I could tolerate the pain or walk. Another 15 minutes we were on our way to the ER for 1000mg IV....couldnt take it anymore. They are ready for me now...sad.
I hate what the drug has done to my body...ugh! But I know for sure I wouldnt be alive to day to write this if I didnt have my steriods. Just like the other drugs that are no longer as affective, the steriods are losing their affectiveness. THIS scares me to death. What am I going to do then? I have to stop the plaq. I cannot afford glasses every 3 months. Not much has worked, so I dont know. I have Fibro real bad now too so I need something for that. I have hypothyroid, Raynauds, Sjogrens, pluerisy, psorasis and my newest Gastroparesis!!! Very common that Lupus patients get it..! I cannot keep anything solid down and havent since November 2011. If I dont stop getting dehydrated and malnutritioned I will be forced to get a feeding tube. (any questions on GP-message or blog I am becoming expert!!)
So, as much as I dislike prednisone.....it will keep me (and alot) of us alive. Also, as far as anyones Adrenal gland shutting down after prolonged steriod use- after about 5-7 years. After this many years of your gland sitting stagnet, you are in severe danger of never having use of your Adrenal gland again. You should also add this to your emergency bracelet!!! Hugs to all of us invisible illness sufferers! Deb
Hello Tanya,
I hope your feeling ok, as you've not been on in a few days but glad to hear your Dr put you on a med that's helping you.
Keep going strong Hugs Terri xxx
tanya said:
Oc Gal
The same thing happened to me. so my Dr put me on humaira which is an injection, and believe it or not it helped out alot.
yes not only do I have lupus I have Ra
OC GAL said:
Hi Tanya,
I thought Humara & Orencia was for RA. My Rheumatologist is trying to get Rituxan approved. I feel like I'm going to blow up, been on 40 Mg of Prednisone for a week. Gained 20 Lbs. after a mo long flare up. Cellcept 1,000 Mg/day didn't work with 5 mg of Prednisone. I need stronger biologic.
tanya said:Oc Gal
The same thing happened to me. so my Dr put me on humaira which is an injection, and believe it or not it helped out alot.
I just got back from a well needed vacation. no husband and kids.. felt very good.
Tez_20 said:
Hello Tanya,
I hope your feeling ok, as you've not been on in a few days but glad to hear your Dr put you on a med that's helping you.
Keep going strong Hugs Terri xxx
tanya said:Oc Gal
The same thing happened to me. so my Dr put me on humaira which is an injection, and believe it or not it helped out alot.
Guess soooo many of us have been through the steroid maze! I feel so bad for so many becuz of these steroids and their side effects. I am kinda with Janice on the Prednisone. If I don't take it I'm risking my life and my Rheumy says maybe someday we can think about getting off it, but definitely not now as the Lupus has attacked my lungs. The side effects? GRRRRRR...The Prednisone has caused me to have Osteoporosis, which in turn has caused me to have a broken back.....disks T-12 thru L-4 are fractured all due to this. I have numerous other back problems but not resulting fr the Prednisone, just added stressors that's all....lol My Rheumy is looking for a drug with the least side effects and something that will be covered fully by Insurance for the Osteoporosis. I was supposed to go today to see him, but didn't have transportation to go get my blood-work and he nds this. I also have Addison's (the adrenal gland prob). I also have Diabetes and RA....not side-effects, but just more limitations we have to contend with..... I'll tell what is getting my goat right now is lack of transportation to my appts! To think 5 yrs ago I had total and complete freedom and was working, and now I am totally dependent on others to go anywhere.....grrrrr
Okay, I am so sorry....this wasn't about me. But, on the subject, I couldn't sue them.....they have actually saved my life.....it's the unfortunate side-effects ;( So sorry you're going through whatever you're going through with these meds.....