Ok I get it. Sorry. Is it ok if I still think it may be CNS problems and not psychosis?
Just doesn't seem right to me. All neurologists are not created equal. All labs do not work.
If you see a psychiatrist, they are trained to find a psychological issue and will undoubtably find one. A surgeon will find a reason to offer surgery. A chiropractor will find a solution in a chiropractic procedure.
Just sayin...!!! Love and HUGS and HOPE to Fighter! (hello to double R, one i)
Dear Momof4son, I will stick to my instinct, and I will definitely keep hope alive. Thanks for the prayers. Many blessings and hugs
Momof4sons said:
Dear Fighter,
I'm truly sorry to hear what you're going through. I'll keep you in my prayers.
First of all, ALWAYS LISTEN TO YOUR GUT INSTINCT, it's you're 6th sense ( if you will ). I understand why you don't agree with you're Dr's. I too had experienced the slurred speech, numbess of my face, hands, and my feet. I was literally walking into walls at work. I work in a hospital. That was the last day I worked, sometime last yr. My PCP sent me to a Infectious Disease MD. They can look for speciality diseases. Also get a great Rhuematologist whom believes in you. Whom understands. Although my episode was different, it occurred. I'm not in need of a Psych Md either. I wish the Dr's out there would just say, I don't know what you have." Right. It would save us so much time.
Just keep on looking, researching, and most of all, never give up on yourself!
Momof4sons, Jean Jujubee, I do so agree with you and I will remain very caution, they will find something even if there is nothing. My main concern, is I just want to know if this is something that I am gonna have the rest of my life., so that I can start makeing the necessarry adjustments. I love you outlook on the situation. Manny blessings and hugs
jujubeee said:
Ok I get it. Sorry. Is it ok if I still think it may be CNS problems and not psychosis?
Just doesn't seem right to me. All neurologists are not created equal. All labs do not work.
If you see a psychiatrist, they are trained to find a psychological issue and will undoubtably find one. A surgeon will find a reason to offer surgery. A chiropractor will find a solution in a chiropractic procedure.
Just sayin...!!! Love and HUGS and HOPE to Fighter! (hello to double R, one i)
Hey Tez20, they did not take any fluid off my spine, as a matter of fact they did no test at all, we just talked about the incidents that I was having. I really think that they are just as confused as I am. My Rheumy tappered me down to 10 from 40 on my prednisone, it appears to have done some good, but nothing has stopped completely, but the seizures don't occur as often unless something upsets me, the walking is still wobbly, and the speech comes and goes, so there is some progress, so keep the prayers coming. Many blessings and hugs.
PS. Thanks for sticking in there with me through all of this, it was much easier to get through it all with my LWL family. LOVE TO ALL
Tez_20 said:
"Fighter as saw a Neurologist everybody...so pointless keep mentioning it"
Hello everyone,
Even i slipped up and mentioned at the end of my comment when i welcomed fighter back to see a neuro as i'd forgotten the tests she'd add, which her daughter Terrie stated in the threads she did updating we regular...SORRY Fighter brain fog having it more lately...so i do apologise for mentioning it.
"Ann"...(Did the best thing by bringing the links foward to remind us)THANK YOU ANN
Ann's update again...so please take notice.
Fighter Has Been Seen by A Neurologist and she has had at least one MRI
Here is Terrie's message about the MRI- it was posted on August 13, 2012 at 6:32pm
Hello Bran, I don't think that I have ever chatted with you before, but it is a pleasure. I am glad to know that someone else knows what I am experienceing. I will go see my rheumy on 9/11,( thats ery, the date 911) I will let you know what she says and look forward to chatting with you regulary and welcome to the family. Many blessings and hugs.
Bran said:
ITS FUNNY YOU SAY YOU HAVE BEEN DIAGNOSE WITH PHYCHOSIS AND YOU DON'T AGREE. BACK IN 2004 OR 2005 CAN'T REMEMBER WHICH YEAR BUT ANYWAYS I HAD A BLOOD-CLOT IN MY BRAIN DUE TO ONE OF THE REASONS WAS HIGH DOSE OF PREDNISONE. AROUND THAT TIME I WAS DIAGNOSED WITH PHYCHOSIS AND I WAS IN DIS-BELIEF THEY TOLD ME I NEEDED TO SEE A PHSYCHIARTIST EVERY WEEK. I TOLD THEM I'M NOT CRAZY.THEY TOLD ME I NEED TO TAKE MEDS I SAID YOU TAKE THE MEDS YOU NEED THEM LOL.TRUTH BE TOLD I THINK ITS HAVE TO DO WITH LUPUS-FLARES AND SOMEWHAT LUPUS-FOGS,INFLAMMATION IN THE BRAIN. IT PLAYS A BIG ROLE.SO I AGREE WITH YOU A 100% IT CAN BE CEREBRITIS.I HAVE SPEECH PROLEMS, MEMORY LOSS ITS VERY DISTRUBING AT TIMES I JUST FEEL LIKE PULLING MY HAIR OUT.."STRESSFUL"WELL HOW ALL GETS WELL FOR THE BOTH OF US..TAKE CARE
Hey jujubee, my rheumy recommended that I see one. They also did a mri, ct, and eeg, but its funny that no one showed me the results and discussed them with me, and I am not stupid, I will see her again on the 11th of this month, and I am gonna raise some hell!!!/ Many blessings and hugs
jujubeee said:
Fighter, I totally agree with JC. Have you seen a neurologist for the seizures? You need a brain MRI. It will help dx if you have lupus cerebritis. I would think that would be the FIRST course of action, not the last. Did you have tests to see if you could have had a TIA or stroke?
I suggest you see a real physician (not a psychiatrist) and get an informed medical opinion derived from actual testing. A neuropyschiatric doctor can also dx lupus cerebritis, but you need MRI of your brain to see if there is anything going on. Who referred you to a pyschiatrist after having seizures? That's really bizarre.
Stay strong. Please see a neurologist. HUGS, Julie
We thought you'd been tested when Terrie stated you was having tests plus no fluid off your spine...well really what they've done is diagnosed you off the top of their heads which is totally wrong...you know that as much as me.
I think they now the prednisone as something to do with it and that's why you've been lowered and i still swear 95% it's a stroke because you can still have slight draw back what your having while recovering and prednisone causes "Ischaemic strokes" look at this link for Ischaemic stroke.
Fighter if you have had a stroke stress can make your relaspe again also, as this kept happening with me when i had my last stroke.
You know i love you dearly and just wished they'd do more extensive tests where your concerned.
Love you loads mate and my prayers for you getting better have always been with you, even through your times of being low and stressed.
Hugs & kisses Terri xxx
fighter said:
Hey Tez20, they did not take any fluid off my spine, as a matter of fact they did no test at all, we just talked about the incidents that I was having. I really think that they are just as confused as I am. My Rheumy tappered me down to 10 from 40 on my prednisone, it appears to have done some good, but nothing has stopped completely, but the seizures don't occur as often unless something upsets me, the walking is still wobbly, and the speech comes and goes, so there is some progress, so keep the prayers coming. Many blessings and hugs.
PS. Thanks for sticking in there with me through all of this, it was much easier to get through it all with my LWL family. LOVE TO ALL
Tez_20 said:
"Fighter as saw a Neurologist everybody...so pointless keep mentioning it"
Hello everyone,
Even i slipped up and mentioned at the end of my comment when i welcomed fighter back to see a neuro as i'd forgotten the tests she'd add, which her daughter Terrie stated in the threads she did updating we regular...SORRY Fighter brain fog having it more lately...so i do apologise for mentioning it.
"Ann"...(Did the best thing by bringing the links foward to remind us)THANK YOU ANN
Ann's update again...so please take notice.
Fighter Has Been Seen by A Neurologist and she has had at least one MRI
Here is Terrie's message about the MRI- it was posted on August 13, 2012 at 6:32pm
Fighter that's all you can do is take it slowly...been in your position as you know of strokes besides todds-paralasis which i still have to this day.
My sypmtoms are stronger, my body is rejecting meds, my muscle wastage is going at me like mad i've got a swelling in my upper abdomen which is hurting and to top the lot my hubby is bad and there's the worry of him as he's took on aboat load since i've got worse but pointless keep going on about it...i fight mentally each day and as long as i wake of a morning and i can still work it's a bonus.
Thinking of you dearly my friend. Terri xxx
fighter said:
Hello Too Sweet, I am taking it one day at a time, and praying with each step, enough about me how is your health? Many blessings and hugs
Tez_20 said:
Hello Fighter,
How you been feeling since you got intouch with me?....plus take one day slowly.
Don't you worry your heart Tez_20, just be patient because God is not finished with you yet. He has spared your life many times for a reason, and being apart of the family at LWL is just the tip of the iceberg. Remember God dosen't give us more than we can bear, and I am a witness to that many times over. Just believe in him and his miracles because the both of them are real. Keep the faith and GOd will do the rest, I promise. Many blessings and hugs.
Tez_20 said:
Hello fighter,
We thought you'd been tested when Terrie stated you was having tests plus no fluid off your spine...well really what they've done is diagnosed you off the top of their heads which is totally wrong...you know that as much as me.
I think they now the prednisone as something to do with it and that's why you've been lowered and i still swear 95% it's a stroke because you can still have slight draw back what your having while recovering and prednisone causes "Ischaemic strokes" look at this link for Ischaemic stroke.
Fighter if you have had a stroke stress can make your relaspe again also, as this kept happening with me when i had my last stroke.
You know i love you dearly and just wished they'd do more extensive tests where your concerned.
Love you loads mate and my prayers for you getting better have always been with you, even through your times of being low and stressed.
Hugs & kisses Terri xxx
fighter said:
Hey Tez20, they did not take any fluid off my spine, as a matter of fact they did no test at all, we just talked about the incidents that I was having. I really think that they are just as confused as I am. My Rheumy tappered me down to 10 from 40 on my prednisone, it appears to have done some good, but nothing has stopped completely, but the seizures don't occur as often unless something upsets me, the walking is still wobbly, and the speech comes and goes, so there is some progress, so keep the prayers coming. Many blessings and hugs.
PS. Thanks for sticking in there with me through all of this, it was much easier to get through it all with my LWL family. LOVE TO ALL
Tez_20 said:
"Fighter as saw a Neurologist everybody...so pointless keep mentioning it"
Hello everyone,
Even i slipped up and mentioned at the end of my comment when i welcomed fighter back to see a neuro as i'd forgotten the tests she'd add, which her daughter Terrie stated in the threads she did updating we regular...SORRY Fighter brain fog having it more lately...so i do apologise for mentioning it.
"Ann"...(Did the best thing by bringing the links foward to remind us)THANK YOU ANN
Ann's update again...so please take notice.
Fighter Has Been Seen by A Neurologist and she has had at least one MRI
Here is Terrie's message about the MRI- it was posted on August 13, 2012 at 6:32pm
I know i'm not finished with yet as there's always something extra waiting around the corner...mind you your right my life as been spared that many times it's unbelieveable so i just carried on in the end.
Well all i can wish for is abit of help lately and i often pray fighter when i feel desperate...as nobdoy as to go to church to still pray and hope.
Tez_20 maybe you misunderstood me. They did test while I was in the hospital, but none since then, I just want them to show me the test that was done and discuss them with me and explain why they think that I need to see a psychiartist.
fighter said:
Hello Too Sweet, I am taking it one day at a time, and with each step, enough about me how is your health? Many blessings and hugs
Tez_20 said:
Hello Fighter,
How you been feeling since you got intouch with me?....plus take one day slowly.
I know Tez_20, just pray everyday, not just when times are bad, but when they are good too. The devil is always lurking in the shadows waiting for you to let your guards down so he can come at you, so keep your guards up. Many blessings and hugs
Tez_20 said:
Hello fighter,
I know i'm not finished with yet as there's always something extra waiting around the corner...mind you your right my life as been spared that many times it's unbelieveable so i just carried on in the end.
Well all i can wish for is abit of help lately and i often pray fighter when i feel desperate...as nobdoy as to go to church to still pray and hope.
You really should have had furthur tests though that's my opinion but usually psychiatrits are used for many reasons and they may want you to see one because they don't just deal with mental illness and depression, they deal with seizures and this could be the good reason behing it to see what light his reports throws on you...once he's chatted with you. xxx
fighter said:
Tez_20 maybe you misunderstood me. They did test while I was in the hospital, but none since then, I just want them to show me the test that was done and discuss them with me and explain why they think that I need to see a psychiartist.
fighter said:
Hello Too Sweet, I am taking it one day at a time, and with each step, enough about me how is your health? Many blessings and hugs
Tez_20 said:
Hello Fighter,
How you been feeling since you got intouch with me?....plus take one day slowly.
Thank you SK for the wish. I am progressing as good as can be expected. I go to the rheumy on 9/11/ I will give everyone an update when I have talked to her. Many blessings and hugs.