Is there anyone else who has to deal with their palms of their hands and soles of their feet getting really red and burning and itching? It makes me crazy! I can't use hot water or it starts up, and once it does it lasts for hours. Other times it just happens, for no reason that I can see. I have tried so many creams, lotions, antihistamines, anti-itch pills, creams and sprays, etc. As I am still on a very long wait to get in to a rheumatologist, my primary doc is out of ideas. Can anyone help with this? It's harder to deal with this than it is to deal with the pain. At least I have meds for the pain. I'm trying not to get completely crazy, but it wakes me up, it keeps me from sleeping, and it just makes my life miserable. Sometimes I am lucky enough to go days, even a week or two without it, and then it starts up again. Help!!!!!!!!!!!!!
I know what you’re talking about. I had that a while back. I dealt with that for a long time because I didn’t know what it was. I told my rheumatologist on my next visit and it turned out to be an allergy to medicine I was on.
Sweety. Look at my profile. There are pics of the rash I had. If it looks anything like that, go to you dr. Office right away and don’t leave until u see a doctor. I made the mistake and went to the er and I was misdiagnosed several times and ended up have to be hospitalized. The hot water thing just got me… I sounds just like when mine started. Put up some picks of your rash if u can and don’t mind… Im no doctor, but pics do help… Plus it’s always good to have pics for your doctor. That way u can show him what the progression looks like
I have had rashes on my hands and feet for years--they looked like hives. Drs. told me that "no one gets hives on their hands and feet" and totally ignored me. I got relief from holding an ice pack between my hands. It stopped the itching. I have noticed since I'm on medicine I don't seem to get rashes anymore.
The symptoms your having are to do with DLE of the skin with Lupus, this can be caused through Allergies, and numerous other issues...i've had itchyness before but with a flare not just itching in general but DLE affects we all differentley and with what autoimmune is involved.
His link may help you but it's best to see a Dermo regarding this so tests may be run to find the underlining link.
Do you have a rash on the palms of your hands? If so, yes I do. I haven't gotten an answer about it either. My palms itch really deep inside, the rash is dry, scaly and no amount of scratching helps! lol. I too have tried everything. My feet burn and itch mostly at night. I've also tried lotions antibacterials etc without success. The only thing that let's me sleep are those friggin anxiety meds. Dr. said not to use them for sleep purposes though but sometimes I can't help it. I need to sleep! There is no rash visible on my feet though.
I keep trying to remember to ask the doctor to take a sample from my palm for testing but I always forget!
My palms on the sides of both hands have a red speckled pattern and they itch and are tingly. The dermo told me it is a from of vasculitis. It is caused from the inflamation and then my palms peeled. You cans see pictures that I posted on my page.
I have this on my palms and soles of the feet, I have tried everything too. The only thing that has worked to clear this up is prednisone, and once I get off it comes back within a day. It drives me crazy, that is why I know it is inflamation. I take 600 mg of Hydroxychloroquine a day and once a week 6 tablets of methotrexate 2.5 mgs. that doesn't help the hands and feet. It scares me to see the damage to my skin and makes me wonder what is going on inside. I am having trouble with the heat too,can't wait until winter.
Like Deenie said it's to do with vasculitis but mainly lesions and if your not on plaquenil i'd suggest asking about it, as it's a brilliant drug for skin issues with Lupus. xxx
Hi Marilyn Ann,
I was just reading your comment, your on such an high dose of plaquenil a day...400mg is surposed to the limit with that drug? xxx
Marilyn Ann said:
I have this on my palms and soles of the feet, I have tried everything too. The only thing that has worked to clear this up is prednisone, and once I get off it comes back within a day. It drives me crazy, that is why I know it is inflamation. I take 600 mg of Hydroxychloroquine a day and once a week 6 tablets of methotrexate 2.5 mgs. that doesn't help the hands and feet. It scares me to see the damage to my skin and makes me wonder what is going on inside. I am having trouble with the heat too,can't wait until winter.
My doctor thought due to my weight 200pounds that I needed 600 mg of plaquenil. I hope he knows what he is doing.
Tez_20 said:
Hi Marilyn Ann,
I was just reading your comment, your on such an high dose of plaquenil a day...400mg is surposed to the limit with that drug? xxx
Marilyn Ann said:I have this on my palms and soles of the feet, I have tried everything too. The only thing that has worked to clear this up is prednisone, and once I get off it comes back within a day. It drives me crazy, that is why I know it is inflamation. I take 600 mg of Hydroxychloroquine a day and once a week 6 tablets of methotrexate 2.5 mgs. that doesn't help the hands and feet. It scares me to see the damage to my skin and makes me wonder what is going on inside. I am having trouble with the heat too,can't wait until winter.
Hi Marilyn Ann,
I hope he does...weight issue is a load of rubbish...as soon as i saw your amount i new it was way to much.
According to what meds your on and dosages besides side affects of plaquenil which some people can get and i was one of them...they start you off at a low dose of 200mg daily well that's all i could take with my other meds.
The the next level is 200mg one day, then 300mg then next...doing it like that alternatively.
The highest dose with plaquenil daily is 400mg and that's for severe cases.
If it's your GP prescribing it, then you really should be either seeing a Dermo or a rheumo and if you are seeing either ask if that dose is correct because of your health.
Love Terri xxx
Hi Terri, It is my Rheumatology doctor who is percribing the plaquenil along with the chemo. I take a blood test every two months. I guess the inflamation is very high. I am calling him tomorrow, I just took a blood test last week. I will ask him about the dosage. Thank you, Marilyn
Marilyn Ann,
I definitely would if it's the Rheumo mate who's got you on it but i have just definitely checked as my dermo and rheumo who i was seeing always said that 400mg was the most being high but i've just read that some rheumo's do work by the patients weight for drug dosage and that's what your rheumo is doing.
All the best Terri xxx
I had it once while in the ER. They had just inserted a PICC line for me to receive antibiotics for 2 weeks. At first it was mild itching and it progressed to severe burning in both hands. They gave me benadryl at my request. And, many of you have it frequently--yikes. I know how hard this is to tolerate.
Never happened again and I've had several PICC lines and more IV antibiotics since.
Hi USAGURL,
It sounds like you had a rough time of it besides it going severe...this is one issue i've not had. xxx
USAGURL said:
I had it once while in the ER. They had just inserted a PICC line for me to receive antibiotics for 2 weeks. At first it was mild itching and it progressed to severe burning in both hands. They gave me benadryl at my request. And, many of you have it frequently--yikes. I know how hard this is to tolerate.
Never happened again and I've had several PICC lines and more IV antibiotics since.
When I had the PICC line is when my friggin rash started. At first I blamed the antibiotics for the rash but have since learned that once the antibiotics clear your system, the rash goes away. Mine didn't.
USAGURL said:
I had it once while in the ER. They had just inserted a PICC line for me to receive antibiotics for 2 weeks. At first it was mild itching and it progressed to severe burning in both hands. They gave me benadryl at my request. And, many of you have it frequently--yikes. I know how hard this is to tolerate.
Never happened again and I've had several PICC lines and more IV antibiotics since.
Hi!!!, I also exprience this . The pain is so bad at times i want to cut my feet and hands off , but i don't . I really don't know what cause this , but i want it to stop , can't walk or hold things in my hands, always dropping stuff (am tired of this ). There are some days that this don't happen and i do everything !!!!LOL I wish that there is a warning before this happens , but it's not- so i deal with it!! Hope that you feel better soon , just hang in there .....Beverly L.
In my case, antihistamine drugs wouldnt work at all. I was so swollen with my rashes. Only plaquenil and prednisone have effect on me.
I have had that rash on the palms of my hands... My Dermo prescribed a cream called PROTOPIC.... It really works... I even get little blisters that itch like crazy and I apply the cream and it really does stop the itch.. It is expensive, but I also had tried everything else (which was much more than the cream) I hope you find relief soon..
Hugs,
Bethany