I have those blisters and they're terrible i can't use no creams or steriods as my skin reacts like someones just burnt me with an iron, the plaquenil stopped working and my body would'nt except the dapsone....i could scream with the lot at times...i'm just praying when i see this new rheumo he can come up with some medication and hopefully my body will except the drug/s. xxx
Bethany Wright said:
I have had that rash on the palms of my hands... My Dermo prescribed a cream called PROTOPIC.... It really works... I even get little blisters that itch like crazy and I apply the cream and it really does stop the itch.. It is expensive, but I also had tried everything else (which was much more than the cream) I hope you find relief soon..
I have rashes all the time in other places, but my palms of my hands and soles of my feet don't get actual rashes, they get extremely red and hot, and the itching and burning feels deep inside of them, and nothing helps. Just bending my fingers when it happens hurts and is practically impossible. I have tried over the counter and prescription anti-histamines. I've tried creams and lotions, sprays, etc. i've trie soaking in ice water, but that was a horrible idea because my joint pain got so bad from the cold (The cold has always been a problem for my joint pain, and the winters here in Alaska sure don't help!!).
It's frustrating not having seen a Rheumy yet, just my primary care doc and neurologist. I'm on the waiting list for the 3 Rheumys in Anchorage, but until them my Primary and my Neurologist are at a loss as how to help me with this particular problem. I did tell my Neuro that when I took Prednisone when I had pneumonia, that it helped with the severe itching and burning on my palms and soles of my feet. But she an i are both reluctant to have her prescribe more Prednisone....I know a lot of Lupies take it daily, but it makes me gain weight (not sure if it's water weight?) and I mean a lot of weight and very quickly, and it also messes with my mood.....it makes me feel as though I am back in my teenage years and going through puberty or something!! It makes me happy one minute, sad and crying the next, or angry and "bitchy", it just really messes with my moods, and i have 2 teenagers at home and I hate when the prednisone does that to me, and I worry that I will take my moods out at them, just snapping at them or whatever. Because I'm not normally like that at all. Prednisone just turns me into a monster, lol.
I think I will ask for a referal to a Dermatologist while I am waiting to get in to see a Rheumy.
Thank you EVERYONE for so many responses and so quickly also. This site and everyone on it is amazing!!!!
I don't like prednisone either, I gain major weight the year I was on it. My Rheumy put me on Plaquenil instead and it has really helped me. I can't take anything that has sulfur in it (for out the hard way, due to the fact one of my doctors didn't read my chart) UGH... I wish you lost of luck and hope you find a good Dermatologist and Rheumy. But as I said earlier PROTOPIC really does take my itch away and that has a steroid in it...
HUGS,
Bethany
lupusmomof2 said:
Hi everyone! Thank you ALL for your responses!!!
Let me try to answer a few:
I have rashes all the time in other places, but my palms of my hands and soles of my feet don't get actual rashes, they get extremely red and hot, and the itching and burning feels deep inside of them, and nothing helps. Just bending my fingers when it happens hurts and is practically impossible. I have tried over the counter and prescription anti-histamines. I've tried creams and lotions, sprays, etc. i've trie soaking in ice water, but that was a horrible idea because my joint pain got so bad from the cold (The cold has always been a problem for my joint pain, and the winters here in Alaska sure don't help!!).
It's frustrating not having seen a Rheumy yet, just my primary care doc and neurologist. I'm on the waiting list for the 3 Rheumys in Anchorage, but until them my Primary and my Neurologist are at a loss as how to help me with this particular problem. I did tell my Neuro that when I took Prednisone when I had pneumonia, that it helped with the severe itching and burning on my palms and soles of my feet. But she an i are both reluctant to have her prescribe more Prednisone....I know a lot of Lupies take it daily, but it makes me gain weight (not sure if it's water weight?) and I mean a lot of weight and very quickly, and it also messes with my mood.....it makes me feel as though I am back in my teenage years and going through puberty or something!! It makes me happy one minute, sad and crying the next, or angry and "bitchy", it just really messes with my moods, and i have 2 teenagers at home and I hate when the prednisone does that to me, and I worry that I will take my moods out at them, just snapping at them or whatever. Because I'm not normally like that at all. Prednisone just turns me into a monster, lol.
I think I will ask for a referal to a Dermatologist while I am waiting to get in to see a Rheumy.
Thank you EVERYONE for so many responses and so quickly also. This site and everyone on it is amazing!!!!
My husbands hands and feet and arms are always itchy. He begs me to scratch them. But they are not always red. He has kindof pale/red blotchy skin all the time though.
Lupusmomof2 - your post here is the reason that I joined this wonderful site. I was aimlessly googling as I've not been able to find anyone who is suffering exactly the same as me, and now I have :)
I have been diagnosed with Discoid, but I know there's a lot more going on - my liver seems to have been affected in some way from the results of the bloods that I've had done, but still no one can explain why my palms and soles of feet are constantly either bright red or a deep purple. The heat I radiate can melt ice even on the coldest days! The prickling and itching is constant, and whilst I get some relief from anti histamines, it's quite short lived and I take 2 of the one a day over the counter ones when it's really bad.
There was a suggestion that this could be due to the liver damage that I appear to have (Primary Biliary Cirrosis) but they mostly shrug and say "It's the Lupus"
I am sensitive to extremes in temperatures, do you have this as well?
Sending you happy thoughts x
lupusmomof2 said:
Hi everyone! Thank you ALL for your responses!!!
Let me try to answer a few:
I have rashes all the time in other places, but my palms of my hands and soles of my feet don't get actual rashes, they get extremely red and hot, and the itching and burning feels deep inside of them, and nothing helps. Just bending my fingers when it happens hurts and is practically impossible. I have tried over the counter and prescription anti-histamines. I've tried creams and lotions, sprays, etc. i've trie soaking in ice water, but that was a horrible idea because my joint pain got so bad from the cold (The cold has always been a problem for my joint pain, and the winters here in Alaska sure don't help!!).
It's frustrating not having seen a Rheumy yet, just my primary care doc and neurologist. I'm on the waiting list for the 3 Rheumys in Anchorage, but until them my Primary and my Neurologist are at a loss as how to help me with this particular problem. I did tell my Neuro that when I took Prednisone when I had pneumonia, that it helped with the severe itching and burning on my palms and soles of my feet. But she an i are both reluctant to have her prescribe more Prednisone....I know a lot of Lupies take it daily, but it makes me gain weight (not sure if it's water weight?) and I mean a lot of weight and very quickly, and it also messes with my mood.....it makes me feel as though I am back in my teenage years and going through puberty or something!! It makes me happy one minute, sad and crying the next, or angry and "bitchy", it just really messes with my moods, and i have 2 teenagers at home and I hate when the prednisone does that to me, and I worry that I will take my moods out at them, just snapping at them or whatever. Because I'm not normally like that at all. Prednisone just turns me into a monster, lol.
I think I will ask for a referal to a Dermatologist while I am waiting to get in to see a Rheumy.
Thank you EVERYONE for so many responses and so quickly also. This site and everyone on it is amazing!!!!
Sorry to hear you've still got this but you having both Lupus and fibro combined it's abit hard sometimes but i've done some hunting mate and it may be coming from your fibro.
It's to do with your central nervous system and is called "Paresthesia" and i hope this links helps you.
I have had a rash on my palms and soles of my feet. It started before I found out that I had SLE Lupus. Predisone has been the only thing that has helped. Mine started with little water blisters and then dry round patches of skin, the skin drys and flakes. I have recently noticed that my left leg has started to go numb along with my hands and feet. My Rhemy thinks that I have inflamation in my hands and feet. My blood work keeps coming back with high inflamation even though I am high doses of hydroxychloquine and methotrexate. I went to a Dermatologist not much nelp. Perhaps I need to see a neurologist??? Tez_20 said:
Hello lupusmomof2,
Sorry to hear you've still got this but you having both Lupus and fibro combined it's abit hard sometimes but i've done some hunting mate and it may be coming from your fibro.
It's to do with your central nervous system and is called "Paresthesia" and i hope this links helps you.