For the last several nights now I'm having a lot of numbness and tingling in my arms, hands, upper back and especially my legs. It seems to get much worse at night, I have severe lupus and fibro to begin with, so I have a bad habit of ignoring things, the list of actual documented health problems those proven through tests and so on is quite long already, some of which have gotten better on their own once I quit all the meds I was on. I was just wondering if anyone else has had similar problems? I would love to read your thoughts on this, as I always find good info here.
In my case I had testing from my neurologist and was found to have nerve damage in my elbows. It may require surgery to release the pressure. I did have some relief once I added a memory foam mattress pad to my bed.
Mine is nerve death like what you get with diabeates . I have burning pain and numbness there is no cure and can only be treated with pain meds. No one told me that the numbness i feel on the skin could hurt so much under it. The fibro and spinal degeneration don’t help. Sorry I can’t give answers just give support
I used to have numbness and tingling in my arms, hands and feet. I mentioned it at one of my visits with my Rheumatologist and he had a Lupus Anticoagulant blood test done. My blood was clotting too quickly. Once he put me on a low dose aspirin at bedtime the numbness and tingling no longer bothers me except for the occasional restless leg syndrome which I also get in my shoulders and arms on rare occasion too. Definitely mention this to your rheumatologist at your next appointment.
Good luck!
Jen
I've had the APS diagnosis a long time, I've not been on anything for it for a very long time, It didn't occur to me it could be that causing me problems now, I'm going to try the low dose aspirin hopefully it will help thanks for the suggestion.
You're welcome! I hope that helps!
Hi Hopeful, I hope the low dose aspirin does help. I was recently tested for APS and the results were negative, however I experience what you are talking about all the time. Just recently saw my GP and he said that my nervous system is effected by the lupus. I have had peripheral neuropathy in my arms and legs for several years, but just recently with the lupus diagnosis it appears my autonomic nervous system has also been effected. Just thought I would mention this in case the aspirin doesn't help. Also you can have numbness and tingling with Raynauds syndrome. My GP started me on a low dose of Celebrex to see if it well help with lessening the inflammation of the nerves and therefore the pain. Good luck!
Yep found out last year that the lupus got the nervous system too, hell its got everything even my sense of humor sometimes thanks for the info.
Holding onto Hope said:
Hi Hopeful, I hope the low dose aspirin does help. I was recently tested for APS and the results were negative, however I experience what you are talking about all the time. Just recently saw my GP and he said that my nervous system is effected by the lupus. I have had peripheral neuropathy in my arms and legs for several years, but just recently with the lupus diagnosis it appears my autonomic nervous system has also been effected. Just thought I would mention this in case the aspirin doesn't help. Also you can have numbness and tingling with Raynauds syndrome. My GP started me on a low dose of Celebrex to see if it well help with lessening the inflammation of the nerves and therefore the pain. Good luck!
So funny that you brought this up today. I am having this exact problem right now with my right hip and thigh. I was hospitalized last week for severe asthma and developed pain in my left knee joint with numbness up and down to the knee on the thigh. The pain and numbness increase at night but I do experience the symptoms all day long.
I am using ice and ibuprophen right now. Pain is part of Lupus I know but this is a new symptom for me. I would recommend that you consult with a Neurologist and see what they say. I am going to do the same.
It is true that any symptom becomes magnified when the sun goes down. So be good to yourself and get it addressed.
My best to you.
I've not heard of lupies "sundowning" but I suppose it could happen. I live with this stuff all day, I just know for me its gotten much worse at night, or maybe I'm more tired at night and thats why its bothering me more? You raise an interesting point though anyone else notice symptoms getting worse with the sunset?
mimi the bag lady said:
So funny that you brought this up today. I am having this exact problem right now with my right hip and thigh. I was hospitalized last week for severe asthma and developed pain in my left knee joint with numbness up and down to the knee on the thigh. The pain and numbness increase at night but I do experience the symptoms all day long.
I am using ice and ibuprophen right now. Pain is part of Lupus I know but this is a new symptom for me. I would recommend that you consult with a Neurologist and see what they say. I am going to do the same.
It is true that any symptom becomes magnified when the sun goes down. So be good to yourself and get it addressed.
My best to you.
Yes I have that also. Mine happens mostly in my arms and hands from the elbows down. Every time I wake up during the night my arms and hands are numb. My legs and feet also do this but not as often. Still don’t know how to stop it though.
I forgot to mention, mine also happens all throughout the day. Lupus affects my nerves as much as my muscles.