I had a check up with my orthopedic today and he was able to read the results of my abdominal CT I had last Thursday .. Unfortunately I have a cyst on pancreas, close to the bile duct. My rheumatologist did some extra liver function testing a couple of weeks ago and Midacondrial M2 was one of them. It came back equivocal(soft positive) ,it's is used to diagnosis Primary Bile duct Cirrhosis(PBC). Expecting to hear from my gastro dr in the few days , I'm anxious to know what treatment/game play im in for .. I see my rhuemy the 31st but im definitely calling her assistant in the morning to tell her what's up. Fortunately all my specialist , tests and imaging appointments are at UM Sylvester so any dr can look at my test /scan results and doctors notes. The bad news never ends !in the past few months my drs finally figured out im suffering from homsistine disease(genetic, incurable and no medical treatment for ) and relapsing polycondritus on top of severe lupus:/having a potentially very serious and already painfull problem with my pancreas is completely out of left field:( it's definitely not the organ you wanna have anything growing on and my treatment options can be limited because I'm already so sick. None of my Dr's are comfortable with my having surgery at this point. I did have a port put in my chest 10/7/13 and thankfully I healed up great but I also had local anesthesia so less incident for my lungs and heart to react badly like they do with general(intubation). I've gotten worse since then though.... I guess I just have to try to stay calm and focus on maintaining a positive spirit... im sure I'll have a good cry about it all later but for now im chillen with my awesome daughter and shes the best comfort :)
Dawncelest, I am sorry to hear about this new trouble and hope that all will be well. I'm so glad you have your daughter for support. Sending you prayers and good wishes!
Dawncelest, lifting you up in prayer… Stay strong warrior! Gentle hugs to you.
Dawncelest, You sure have been hit with a lot of health issues that I am sure feel overwhelming. I am glad you have a support system in place with your daughter and that you are a member in this forum. It is so nice to be able to share the high and lows with people that can truly "get it." Prayers and gentle hugs!
Big hugs and prayers to you!!