Hi those of you that have the "FOG" does it come and go or is it constant. I seem to have days that are better than others. I was diagnosed last august and this fog just started 3 weeks.
Cindy
Freightliner
I was diagnosed a year ago. My lupus fog seems to be constant with some days worse than others. Looking back, I felt this way for a couple of years, but just thought it was due to my fatigue.
freightliner said:
Hi those of you that have the "FOG" does it come and go or is it constant. I seem to have days that are better than others. I was diagnosed last august and this fog just started 3 weeks.
Cindy
Freightliner
Great response!
I think for the first time since diagnosis, my husband really didn't understand what I was saying. I think that he believes that, because some of my physical sypmtoms are getting a bit better, that it means my mind is better as well.
That is so very frustrating for me.
Sorry if this doesn't make sense. Having a "foggy day". I am going to show him this post so that he can see that it's not me it's the disease.
Thanks again,
DeAnne
Mindy Wolff said:
I forget how to talk, what I was saying, or what I was doing. I'm 32, so it's not age. It's Lupie time! I know 3 languages, so when I can't speak in the second or third, I feel as if I'm a fraud. Then I remind myself that I'm already having trouble with the first, LMAO! It's a horrible feeling when others look at you as if you are crazy or you are stupid because you are reading something off wrong or start stumbling over words. I sware I am developing some kind of lupus related studder. It's bad enough that our cognative abilities are so affected. Spelling, speaking, thinking... all of it is gone with the wind. We are left to feel less than self, less than normal. But we did not do this to us. We have to remember that this is part of a disease, just like those lovely aches, pains, and hair loss. The best thing is sharing it with each other so we feel less insane and remember we are not alone. XOXOX
You are experiencing symptoms of Lupus. I have been like this for quite a few years now. Try to laugh at yourself. Helps to prevent crying. lol!
You are so right! I think we all need to laugh more. I really have been trying to have a positive attitude, but I made the mistake of asking him to stop to pick something up for me from the pharmacy. Natural stress relief tablets. He wanted to know what I was stressed about. I just about fell off of the couch.
Like I said, I think he's under the impression that this is somehow "controllable". It's gonna kick you in the teeth when it wants. Although there are things we can do to minimize some things, I know we have no control over what this does to our bodies.
That is so frustrating. I mean many chronic diseases are controllable i.e. asthma, diabetes, etc. Just total miscommunication I think.
Anyway, hugs to everyone. I sure do love this family.
DeAnne
Sorry to hear your hubby isn't understanding what this is all about. He may actually be checking into it more than you know. It blew me away when my husband began telling me things he had learned about it on the internet. Also, just copy and paste things into an email once in awhile that totally tells it like you feel it, so he gets more reality on what you are going thru. He will come to accept that you have real problems. He probably is having a hard time realizing that you will never be the same again, too. I really hope that some brilliant scientist somewhere finds a cure for it.
whathappensinvegas said:
You are so right! I think we all need to laugh more. I really have been trying to have a positive attitude, but I made the mistake of asking him to stop to pick something up for me from the pharmacy. Natural stress relief tablets. He wanted to know what I was stressed about. I just about fell off of the couch.
Like I said, I think he's under the impression that this is somehow "controllable". It's gonna kick you in the teeth when it wants. Although there are things we can do to minimize some things, I know we have no control over what this does to our bodies.
That is so frustrating. I mean many chronic diseases are controllable i.e. asthma, diabetes, etc. Just total miscommunication I think.
Anyway, hugs to everyone. I sure do love this family.
DeAnne
My hubby tries to not treat me any different than before I got really sick. He knows I don't like to draw attention to myself. But, if I do lupie foggy things, he is one of the first to make me giggle about it instead of worrying. If I say I'm stressed, he will ask me what about as well. But, I am touched that he asked and wants to discuss it with me instead of just staying quiet.
RJQ said:
Sorry to hear your hubby isn't understanding what this is all about. He may actually be checking into it more than you know. It blew me away when my husband began telling me things he had learned about it on the internet. Also, just copy and paste things into an email once in awhile that totally tells it like you feel it, so he gets more reality on what you are going thru. He will come to accept that you have real problems. He probably is having a hard time realizing that you will never be the same again, too. I really hope that some brilliant scientist somewhere finds a cure for it.
whathappensinvegas said:You are so right! I think we all need to laugh more. I really have been trying to have a positive attitude, but I made the mistake of asking him to stop to pick something up for me from the pharmacy. Natural stress relief tablets. He wanted to know what I was stressed about. I just about fell off of the couch.
Like I said, I think he's under the impression that this is somehow "controllable". It's gonna kick you in the teeth when it wants. Although there are things we can do to minimize some things, I know we have no control over what this does to our bodies.
That is so frustrating. I mean many chronic diseases are controllable i.e. asthma, diabetes, etc. Just total miscommunication I think.
Anyway, hugs to everyone. I sure do love this family.
DeAnne
I laugh at myself all the time when I'm in the "fog". Sure, it freaks me out for a brief second, but then I remember it's the lupus. Sometimes the fog has been my warning sign that a flare was going to start within the next few weeks. It gets better when I'm between flares, but I still have moments, just not as many as when I'm in the midst of a flare.
Sounds like a very good husband. That is good luck for you. Good to know. I know what you mean about not wanting attention. Me either! Hope you are having a great (as much as possible) day.
artchick said:
My hubby tries to not treat me any different than before I got really sick. He knows I don't like to draw attention to myself. But, if I do lupie foggy things, he is one of the first to make me giggle about it instead of worrying. If I say I'm stressed, he will ask me what about as well. But, I am touched that he asked and wants to discuss it with me instead of just staying quiet.
RJQ said:Sorry to hear your hubby isn't understanding what this is all about. He may actually be checking into it more than you know. It blew me away when my husband began telling me things he had learned about it on the internet. Also, just copy and paste things into an email once in awhile that totally tells it like you feel it, so he gets more reality on what you are going thru. He will come to accept that you have real problems. He probably is having a hard time realizing that you will never be the same again, too. I really hope that some brilliant scientist somewhere finds a cure for it.
whathappensinvegas said:You are so right! I think we all need to laugh more. I really have been trying to have a positive attitude, but I made the mistake of asking him to stop to pick something up for me from the pharmacy. Natural stress relief tablets. He wanted to know what I was stressed about. I just about fell off of the couch.
Like I said, I think he's under the impression that this is somehow "controllable". It's gonna kick you in the teeth when it wants. Although there are things we can do to minimize some things, I know we have no control over what this does to our bodies.
That is so frustrating. I mean many chronic diseases are controllable i.e. asthma, diabetes, etc. Just total miscommunication I think.
Anyway, hugs to everyone. I sure do love this family.
DeAnne
Well my husband has been much better tonight. I really watched what I was saying so that it wasn't all about the disease...because I am not all about the disease. I have many more sides to me. I do hope that it was mostly work (he just landed a HUGE client) and I know he is very busy.
That said, I think we have reached a place where I can say I am "foggy" today and he is starting to understand.
XOXO to all of you...you guys are my rock!
DeAnne
Sounds great, DeAnne! Keep it up. I know it is hard to work outside of the Lupus box, but if possible, we all need to do it. Our relationships require that we are not always focused on the Lupus. Besides, let's NOT give the Lupus that much control of our lives!
Whoo hoo!
My "husband" came home tonight. I mean that he was back to his old self, so I guess I need to remember that just because I have a disease the world does NOT revolve around me.
Thanks to everyone for your support and encouragement. You are the best family anyone could ask for!
All my love,
DeAnne
Wow, this is very good news! Yes, I agree, the world doesn't revolve around any of us. I have had to adjust my thinking with this sort of thing too. Sometimes I just get so interiorized in my own head that I forget that, too.
whathappensinvegas said:
Whoo hoo!
My "husband" came home tonight. I mean that he was back to his old self, so I guess I need to remember that just because I have a disease the world does NOT revolve around me.
Thanks to everyone for your support and encouragement. You are the best family anyone could ask for!
All my love,
DeAnne