The most basic lupus facts
Hi Astrid,
Yes, very little publicity, and doctors are just lost about researching or finding a cure, because it changes symptoms every day, and is different from patient to patient, so there's no way a "standard" can be set, and no way they can say "This one treatment will help all lupus patients" because we are all so different. So doctors are frustrated by us and often dread see us coming down their hall. Doctors ike to cure things, and its a blow to their giant Dr. ego when they can't. So many reasons why there is not enough interest. If Michael Jackson, Anna Nicole Smith, and other celebs with lupus would be open about it, there would have been better treatments by now. There's a black lady singer with it who does awareness work, I'll think of her name just as I leave the site, I'm sure. Recent concussion is not helping. Seal, the male black singer who was maried to Heidi Klum untllast month also has it and his cheeks are badly scarred from discoid (skin) lupus. As of last year there was created a new drug for lupus after 50 years of nothing new, but its so expensive and so dangerous, few will take it. So we're back to the meds from 50+ years ago.
If they can use stem cells to heal one disease, it will also work for 180 other diseases, so I'm hoping that research happens. Gosh I am so sorry you have life long effects from cortisone. I tell everyone that I would rather die of lupus than all the side effects you can get from cortisone, but that's just my choice. I just feel bad for those who must have it to stay alive. Yes Lady Gaga is paying for lupus research, because she says she has no syptoms now, but hopes they will find something ggood if and when she does get sick.