So I had an appointment with my pain management doctor yesterday.I usually see the nurse practitioner but she flew the coop because their office is a little dysfunctional. So I saw the doctor who I haven’t seen in awhile. I used to see her only for my back issues but explained to her what is going on now with the connective tissue disease/lupus. She says "well thats’s good because at least there’s a cure. It’s not like you have cancer!"
Really???
what?? thats appalling!! dow dare anyone say anything like that to someone who has lupus!! she needs to seriously get her facts right... im actually really angry at this lack of understanding and respect for people with lupus AND cancer!! how dare she compare the two they are totally different!! this post shocked me...
Wow,she’s really uneducated! There is no cure for Lupus,she’s a physician she should know that. How disrespectful of her to make a comparison between both diseases they have nothing to do with one another & are two totally different issues. I would fly the coop right along with the NP. Just TRAGIC!!
Wow… Makes you wonder… Hum…I’m shaking my head now
Any doctor who uses the word "good" when referring to lupus is definitely suffering from "knowledge deficiency." I'm all for educating doctors, but sounds like your doctor would probably not even be receptive. I would politely disappear from that office, like the NP. You need your energy for other things.
Ally
Jend719, I'm sad this comment was ever made to you, and it shows a lack of knowledge and compassion. Ann A made a great point about having experienced one specialist being clueless about another's area of expertise. Could you ask your rheumatologist office for a referral to a pain management practice more familiar with what you are dealing with?
I'm with you. Really?????
I hear comments of this sort from many different people, always trying to compare lupus with cancer but from a Dr? And there's a cure?? Please let me know where I can go to get cured!?!? Unbelievable!!
IDIOT...UNREAL!!! I once had a "doctor" ask me "so, how did you get Lupus?".....I said "you tell me, you're the doctor!"....we have no idea how we "get" Lupus!!!!
We should report these JERKS!!!!
Lori
I tried replying but it didn’t show up…I don’t know if I’m doing this right. Anyway, I’m glad to see I’m not the only one who was completely dumbfounded by her stupidity. Honestly I didn’t even get angry. I sort of chuckled to myself and felt sorry for her ignorance…I mean she’s a doctor…and a pain management doctor…is she that stupid? Apparently so!
Ann- yes my doberman is my loyal best friend. He’s the only one who truly understands me and loves me unconditionally good days and bad. I would be lost without him! Good boy Zeus!
I spent time in a psych hospital recently and the medical doctor on staff accused me of drinking because my liver levels were so out of whack.....he refused to believe that I had SLE and was convinced that I was an addict or alcoholic. I haven't had an alcoholic drink in over 10 years and only take the meds that I'm prescribed since I was diagnosed.
I admitted myself for depression and went through hell in that place...nobody understood Lupus and they only wanted to treat my severe depression and bipolar issues with poison...they did poison me and my SLE suffered in the process.
My point is, so many in the medical field are uneducated about SLE and other forms of Lupus....we have to get the word out and refuse to be treated like crap.
Lori
Omg!
I am just speechless! This is disturbing!
Unfortunately the way docs are trained, one specialty learns nothing about another. The years they have before picking a specialty are so packed with general information, their heads are spinning. They might hear the word lupus and get vague details but that’s it. Unless they become rheumatologists, that’s it unless they do continuing Ed on their own.
What??? Are you serious about what she said to you? As of Tuesday , I say my doctor and he didn’t mention that there was a cure and I have been with this doctor since day one, and we have a very good understanding amoung us. I don’t think this doctor that you seen is doing what she should be doing! Maybe you need to change -there is not a cure for Lupus, and we can classify it as a form of cancer , do some research …Beverly L.
It's so amazing how some "doctors" just don't get it. I had the same problem when I was going from doctor to doctor trying to find out why I hurt so much of the time and why my muscles stayed so sore. This was right before I finally found a Rheumy that diagnosed my Fibromyalgia/Myophascial Pain Syndrome. I had asked one doctor I went to if it possibly could be Fibro since a friend suggested I ask and he told me that it was just a glorified diagnosis for strained muscles and that everyone had that from time to time. He suggested getting rest and applying compresses and it would get better. It was wonderful to finally find one that actually knew what he was talking about and also how to treat me! I was beginning to think I was just crazy before that and stayed depressed a lot. I even purchased a book all about Fibromyalgia and gave it to my family doctor since he knew nothing about it too. My doctor now actually did a special study on it so he's a lot more sympathetic to my pain issues but now he still doesn't believe I might have Lupus because of my age even though I've had most of the symptoms for years, including the positive ANA bloodwork.
I am always amazed at the lack of knowledge and understanding by my primary care docs. Typically, though, they admit their lack of expertise and refer me out to specialists. Wow!
I went to my family doctor the other day since I needed to get my pain meds refilled and I mentioned to him that I was having increasing pain in my lower leg when I walked. Sometimes it's hard to put any weight at all on it. His answer was that I have flat feet and asked me if I waddled when I walk. I told him that I agree I have gained weight over that past 10 years but no I didn't "waddle". He gave me some samples of Duexia? Not sure of the spelling. I has helped but only a tiny bit. I go back to my Rheumy in a few weeks so will let her know what all has been happening.
Jend719, your pain management doctor sounds like an idiot! Run far, far away and find another doc. She sounds like an ignorant, callous quack! Jeeze!!! If you’re not getting any relief or help from those people, leave them in the rearview mirror.