How many of us have hearing loss? I was diagnosed a few years ago. The mid tone sounds are the worst which is of course the speaking voice level. I’m getting rechecked on Friday because it seems to be getting worse. It’s getting embarrassing and quite frustrating at times. I can hear but can’t quite make out what you’re saying sometimes. Like someone who needs glasses to make things clearer. I was told its prob related to my AI disease because the structure of the ear is completely normal. Just wondering if anyone else suffers the same frustration?
Yep but mine was due to a chronic mastoiditis as a child. Can't understand what you are saying and I have to keep the volume up on the TV etc Unfortunately in mycase a hearing aid will not help So I say a lot of 'sorry but could you repeat that??
I was just diagnosed with hearing loss in my right ear a few months ago. I can’t hear consonants. Its not bad enough yet for a hearing aid but very annoying. I have to turn my head to hear people speak.
I have hearing loss and constant tinnitus in my left ear, however it is because of an acoustic neuroma. My right ear now has age related hearing loss. I have to look at people's mouths when they speak and then it takes me a minute to figure out what they said. I did have a hearing aid for awhile but it was more irritating than helpful. I could have the operation with a Baha implant put in my head, but I am not ready for that!
It is very upsetting not to be able to hear, now I understand how my mother and grandmother felt.
Yes! I have suffered from hearing loss for a little over a year now. I just woke up one morning with my right ear feeling as though was full of pressure, blocked and severe ringing, tinnitus. There also is a sensitivity on the outside of the ear, feeling like loss of feeling to pins and needles, which can travel to the right side of neck and face at times. I started out with my primary care. I was treated for an inner ear infection and when this course did not clear things up, off to the ENT specialist and audiologist whom diagnosed the right ear with censorial hearing loss. MRI was done to rule out Aucoustic Neuroma and here I am a year later with all of the same symptoms. I truly believe it is all interconnected with Auto Immune issues, but my reumatologist insists it has to do with side effects to Chemotherapy I received for Lung Cancer in 2008. I am in complete remission, Thank God! My Lung Cancer was also right sided, upper lobe and presented with severe Raynauds and elevated Auto Immunity! I suspect this vicious cycle has been with me for some time now...
I believe I do. I am waiting for my primary to schedule a hearing test for me. I have had tinnitus for years thanks to a doctor experimenting on me by having me take high dose aspirin at 10 to see if it helped my joint pain. It didn’t and I was left with tinnitus in both ears. Lately it has been getting louder and my right ear doesn’t have the same pressure as the left. I keep feeling like it needs to pop. I have a hard time understanding what people say but I have always had trouble processing auditory information. I had to take very thorough notes to get through college. It just seems that it’s getting more difficult to understand people, my kids in particular. The ENT said that there wasn’t any fluid in my ear to account for the crackling I hear every once in a while. It’s very frustrating. My right ear also itches like crazy. Tea tree oil on a Q-tip has helped that quite a bit. I’m only 44 which is a little young to have age related hearing loss. Guess I’d better get that test done.
Hello Annmarie, I have experienced crackling in my right ear as well and the ENT also said I had no fluid in the ear. This is all very interesting. I am 46 years old, and thoroughly embarrass my teenage daughters when I am talking louder than everyone else and with the same difficulty in hearing everyone else. I like to have the tv on for background noise, that helps with the tinnitus, but my volume level is double what the rest of my family needs to hear, so I have the tv BLASTING just to hear to understand. There has to be some auto immune connection with this hearing loss as well...
Annemarie said:
I believe I do. I am waiting for my primary to schedule a hearing test for me. I have had tinnitus for years thanks to a doctor experimenting on me by having me take high dose aspirin at 10 to see if it helped my joint pain. It didn't and I was left with tinnitus in both ears. Lately it has been getting louder and my right ear doesn't have the same pressure as the left. I keep feeling like it needs to pop. I have a hard time understanding what people say but I have always had trouble processing auditory information. I had to take very thorough notes to get through college. It just seems that it's getting more difficult to understand people, my kids in particular. The ENT said that there wasn't any fluid in my ear to account for the crackling I hear every once in a while. It's very frustrating. My right ear also itches like crazy. Tea tree oil on a Q-tip has helped that quite a bit. I'm only 44 which is a little young to have age related hearing loss. Guess I'd better get that test done.
wow....i never thought of this as lupus related. The ear specialist had told me, long before I was diagnosed....that i had only half hearing in my left ear due to extensive scarring.....which comes from so many ear infections....which comes from.....ahah! lupus.
wow.
You're right it is frustrating! I have to turn the tv way up like my grandmother, im only 38!
Mine started in my early 30’s. I had one of those free checks for old people as a joke because my family kept saying I’m deaf. Low and behold… So I got a thorough audio gram a few years ago and I was dx’d with bilateral sensorineural hearing loss.