I am so very sorry to hear that , my prayers go out to you and your family, Lord have mercy on her to get better, LIA.
Please keep us updated! I will keep your family in my prayers.
(((hugs)))
My kindest thoughts go out to you, Terrie, as well as to Fighter. I can well imagine the fear she is experiencing, the frustration and probable rage. CNS symptoms are, to me, the most terrifying aspect of this insidious disease, for the sufferer as well as their family. I offer my most fervent hopes that this episode will pass... that it is simply a flare and will fade.
I wish for you to retain your ability to smile, even to laugh, at the absurdity of this disease's progression. For myself, I picture a circle of pagan gods, millennia ago, holding a round robin on how to create the perfect disease. Sadly, whichever god was keeping the minutes failed to realize that one doesn't have to use EVERY idea tossed into the hat. As good an explanation as any for the sheer scope of our suffering.
Take care.
Bruce
prayers are with you and your mom please let us knew how she is doing....
I am saddened to hear about Fighter and I am keeping her in my prayers. I pray that she is able to join us again soon. Please let her now that we miss her and are awaiting her return.
My thoughts are with your family. know that there are people pulling for you all.
My prayers are with y’all ((((Hugs))))
Hello Terrie,
I know your life will be busy with your mom and helping her and at this present moment in time she needs that but when your able to get chance...could you possibly please update we on your mom (Fighter).
She's one wonderful friend to us all besides member and we'd really like to know how her health is and how she's progressing.
Thank you so much Terri xxx
You have our prayers
Lupus of Nevada, Inc.
Calvinia
Hi this is Terrie, Fighters daughter, they are running test on Fighter on August 29th to see if she possibly is suffering from dyskinesia. She has had a few depressions bouts, but all in all she is in good spirits. The new doctor took her off the anit-phychotic medication celexa. Keep her in your prayers, and I will keep you all up to date
Hello Terrie,
I know you've been busy with your mom but i have'nt half been waiting to hear how fighter is.
There's different forms of "dyskinesia"...have they said which one they're looking for?...so sorry to hear about her depression bouts but she's pulls back from them not to bad when we've spoken.
Please Hug your mom for me and tell her it's off Terri and all my love goes to her also and keeping we updated will be appreciated from us all...as your moms one lovely lady and true friend.
OK Tez she said you if no one else would answer I think they said the one that starts with a " T " we will know more next week when we go for her follow up with her rheumy. We go to the neuro on August 29th can't wait. Next week they want to draw some fluid off her spine. Thanks for all of the support, I am glad she had friends like you and LWL. God Bless
Prayers go out to your mom as I know this is hrad for you your mom is so very blessed to have you she needs your support near and we are her support system no matter the distance, God bless.from Lia.
Hello Terrie,
Cheers for getting back to me and yes when she goes on the 29th to let we know her results, your mom knows what i've been through....so tell her to keep fighting as i did'nt put the verse up for nothing.lol "She'll know what your on about".
They're drawing the fluid as she's got build up besides...i get that also and it feels like a spongie affect plus they'll also be testing it most likely.
Godbless to you both but keep pushing your mom and you'll be surprised how the actual body can fight back from symptoms happening.
All my love to you both Terri xxx
fighter said:
OK Tez she said you if no one else would answer I think they said the one that starts with a " T " we will know more next week when we go for her follow up with her rheumy. We go to the neuro on August 29th can't wait. Next week they want to draw some fluid off her spine. Thanks for all of the support, I am glad she had friends like you and LWL. God Bless
Thanks Lia, and I will keep everyone informed. God Bless all of you and your families