I noticed in one of the other discussions someone mentioned fevers and chills. I feel like I have had a fever now for years!!! It feels like at some point everyday I have a low grade fever however every 2-3 weeks it spikes to 101-103. Does anyone else have this problem or could there be something else going on??? At times does anyone else’s head and face suddenly become real warm to the touch??? Lupus effects so much you never know when to blame it or if something else is wrong. It’s very frustrating!!!
Thanks!!!
I am constantly having fevers and chills. I know this sounds strange but sometimes I feel like I am hot and cold at the same time. A very weird feeling. That happens the most to me. I can't explain it away. I hate when it happens. There is just no getting comfortable.
Sandie
When I first came down with lupus 2 years ago, I had a fever every afternoon of 99 to 100 deg.s when a flare occurred it would often be 101 - 102. I spent nearly 6 months in bed with a fever every afternoon until it would break during the night. I also had that butterfly rash on my face when I had the fever. I really thought I would die but I have gotten somewhat better in terms of the fevers until I have a full blown flare. The flares seem to be associated with being on my feet for more than 30 minutes. As you say, it is so frustrating. Every day Lupus seems to pop up with a new disaster. Unless you have the disease, no one will believe you... especially your doctor.
I've only had fevers when I have an infection. Some people do have low grade fever with Lupus flare ups. If you take Prednisone it can mask infection. You have to be careful if you feel ill even with a low grade fever you should see a Dr to make sure it's not an infection. Prednisone masks infection. My temp is usually 97 subnormal
Sandie, I get that too, feeling hot and cold at the same time, weirdest thing. I also will get hot in the face, and before diagnosis I was told it was my bloodpressure, or hot flashes.
I have a difficult time getting comfortable, and mostly during the night I wake up a dozen times shifting between hot and kicking my socks off, and then getting cold again. My sleep is miserable because of this.
Trisha
Queenie, I too had similar symptoms but mine are under control now with anti inflammatory. And I am so thankful. It is such a sick feeling to feel as if you are coming down with...or have the flu.
My hubby would always say I felt like I had a fever. If I didn't have the signs of a cold I just assumed it was the lupus. I ached a lot also. Usually time would tell and as you get to know your body, you're able to know what is going on. But be sure you discuss this with your doctor. I hope you will be feeling better soon. Take care of yourself and drink plenty of water. Faye
Hello all!
Sounds like we've all had these same "issues". I never have a good night sleep - the tossing and turning, hot and cold, face all of a sudden gets hot. My acupuncturist has recently put me on LPS Support and Chase Wind (both chinese herbs) and they seem to really be helping! The Chase Wind does pretty much just what the name is - he tells me that with Lupus, you have to warm, cool the body from the inside. The Chase Wind is best for Winter because it "chases" the cold from within and the LPS Support is best for Summer but he actually has me taking both every day. Really seems to make a difference! Also soaking your feet in an Epsom Salt bath help to warm the body especially during the winter when Lupus and cold don't play well together! If anyone is not able to get these herbs, let me know and I'd be more than happy to get them and send them to you. Yes, water is essential - but again, try to drink/eat warm liquids/foods in the winter and cooler during the summer.
I am constantly throwing sheets and blankets off because I’m hot. Then I’m totally dripping with sweat and freezing cold. It’s very rare that I have a full nights sleep because of this. I’m 37 and all my hormones are in check so I assume with my dr it’s the prednisone. R u taking it?
Hello Queenie,
Low grade fevers are an issue with Lupus and sometimes can go very high, if they stop high to much it's always best to see either your GP or specialist to make sure your ok as sometimes these can be a sign of a flare also.
I've suffered with fevers for a while and sometimes it feels like i'm having hot flushes, it's annoying but i've learnt to live with it but they don't help my temper one bit.
All my love Terri xxx
Thanks for all your input!!! Even though its a sucky way to live and I don’t wish it on anyone it’s a real comfort knowing that others are feeling the same things and that you are not just losing your mind. I am thinking of all of you and wish you all well!! Thanks again!!
I have the fevers often up to ten a day,but ive learnt thet when i have one or just brimming with one,i rest, and this seems to help!!
Its took me a while to get used to this dam illness,but im now getting to know what to do when one comes along,and it is uncomfy,especailly when you are left wet through and then you get the chills.so try it i hope it works for you too.
Gentle hugs and all the best. Kathy!
Hi Qeenie,
Your welcome from us all and you can guarantee 60% of what you suffer from the Lupus a large majority of we go through ourselves.
Hugs Terri xxx
Hi Kathy,
I do the same as yourself when mine hit me i just sit in the chair and wait for the to pass, it's hard but with determination you can fight through them.
Terri :)
kathy said:
I have the fevers often up to ten a day,but ive learnt thet when i have one or just brimming with one,i rest, and this seems to help!!
Its took me a while to get used to this dam illness,but im now getting to know what to do when one comes along,and it is uncomfy,especailly when you are left wet through and then you get the chills.so try it i hope it works for you too.
Gentle hugs and all the best. Kathy!
No ,i was a couple of years ago,but they wont be in my system now,the fevers then follows fatigue,and then every thing else.Thanks for your reply,sorry its late,not been well for a while now.Warm hugs sent your way x
Jasmine393 said:
I am constantly throwing sheets and blankets off because I'm hot. Then I'm totally dripping with sweat and freezing cold. It's very rare that I have a full nights sleep because of this. I'm 37 and all my hormones are in check so I assume with my dr it's the prednisone. R u taking it?
Hello Queenie,
How you feeling now in yourself...please update we when you can?
Love Terri :) xxx
Hi Terri,
Thanks for checking in ;). Sorry I was offline for a while, big storm took out my Internet for over a week!!
I am like everyone else here, one day at a time with some being better than others. Anxiously waiting December appt with new rheumy so hopefully I will get some relief soon. Old rheumy wasn’t really much help!! How are you doing???
Thanks again for thinking of me!! You guys are great 
XOXO
Hello Queenie,
Lovely to hear off you...don't apologize for being off line and that storms been so cruel to a good many people.
I know how you feel with each day that comes there's hardly ever any change it's like living in hell some days and the fatigue gets to me.
Well i hope your new appointment goes well, as mine did and i see him again on the 30th but like you my old one was crap, loved diagnosing but did'nt want to treat me and i think it's bad.
Thanks for the lovely complement mate about we all...that caring does we all some good.
At the moment i'm the same my legs just never improve with pain, my flu's nearly gone but it caused a right red patch on my neck that went rough, well that was either my DLE or psoriasis one of the two and at the moment i think my organs are ready to kick off again, my urines can dark off my kidneys and lastnight i could'nt eat icecream enough. lol
You takecare mate and your welcome anytime.
Hugs Terri :) xxxx
I feel ya!!! Mine was the exact same way… Didn’t want to treat symptoms!!! Ughhhh!!! So frustrating.
Sorry to hear about your flu and everything else however ice cream not such a bad thing?!?!
You get some rest and take care of yourself!!!
Hi Queenie,
It gets me mad when they don't want to treat you and it was all through my organs...i told him straight i'd do a written letter adding my signature to be treated so anything which happened fell on me and he still refused.
It's weird how my body works with me being thin and the raynauds affecting bad...some days my body crys for hot food and other days cold food...but i swear it's all down to my organs nd how th sjogren's is serving me out.
You rest also mate and do takecare ((Hugs Terri)) xxx
Queenie said:
I feel ya!!! Mine was the exact same way.... Didn't want to treat symptoms!!! Ughhhh!!! So frustrating.
Sorry to hear about your flu and everything else however ice cream not such a bad thing?!?! ;)
You get some rest and take care of yourself!!!
Hi,well i went to see my pain doctor,and he said that because i have been treated with every thing he has[L4 L5 have damage from my spine op}so i told him and showed him the identations on my face and legs,and the lighting and sun making my eyes,nose mouth,mshooting pains in head,and most of the others,he said that next week {and he will put in his notes,that what i have told him}when i see the rhuemy,that hope fully i should have answers,and when i see the phsychiatric,doc nx week also,my depression has got worse with every thimg progressing,to also make notes for the rhuemy.
He also said that in his opinion,i have central nervous system deacease,oh great,and he is refering me to the neurology dept.
Please forgive me for all this in depth stuff,i dont know if im coming or going,came home with a flare,and feel really ill,its took me so long to type this.
Hope everyone is having a better day than im having.sob sob .
Hugs to eberyone xx
Tez_20 said:
Hi Queenie,
It gets me mad when they don't want to treat you and it was all through my organs...i told him straight i'd do a written letter adding my signature to be treated so anything which happened fell on me and he still refused.
It's weird how my body works with me being thin and the raynauds affecting bad...some days my body crys for hot food and other days cold food...but i swear it's all down to my organs nd how th sjogren's is serving me out.
You rest also mate and do takecare ((Hugs Terri)) xxx
Queenie said:I feel ya!!! Mine was the exact same way.... Didn't want to treat symptoms!!! Ughhhh!!! So frustrating.
Sorry to hear about your flu and everything else however ice cream not such a bad thing?!?! ;)
You get some rest and take care of yourself!!!