Hello Nissy,
I hope your keeping fine healthwise and regarding your temper have you managed to sort anything out?
Please keep we updated if you can.
Love Terri xxx
How are you Nissy? Please take a minute and say Hi, let us know how you are doing!
Our well wishes for you continue!
Hugs,
SK
Susan,
I get concerned when i don't hear off member's who have been chatting regular plus left messages on my profile.
SK said:
How are you Nissy? Please take a minute and say Hi, let us know how you are doing!
Our well wishes for you continue!
Hugs,
SK
Hi Terri,
I am so sorry I have not been in a while. I have a drs appointment on the 7th, so I will let you guys know how that goes. My anger has been about the same, and I have noticed that my body has been a lot more achey than usual. I am afraid to tell my mom that I want to go into the dr's room alone, because she always thinks its something sex related..even though that has not been the case.
Tez_20 said:
Susan,
I get concerned when i don't hear off member's who have been chatting regular plus left messages on my profile.
SK said:How are you Nissy? Please take a minute and say Hi, let us know how you are doing!
Our well wishes for you continue!
Hugs,
SK
Hi Sk,
Sorry I have not been on in a few days. I am doing okay, like I said to Terri the anger is still there and I am feeling a bit achey. I've been trying to talk to my boyfriend about things, but we seem to be butting heads a bit, but then he realizes it and just agrees with me. I think you're right, with time all shall be better. I figured it must be just as hard for him as it is for me, because he does not know very much about what is going on.
SK said:
How are you feeling today, Nissy? Hope things are going better for you, that you can get over the anger, and be happy with yourself and your man!
I have gone outside and screamed, slammed things, gone into the husband's shop and pounded a hammer around, just to get some of the anger and frustration out of me! Don't hold it in, let it out, but not on your loved one, it will start to ease with time and knowledge.
Enjoy your life and your love,
SK
Hello Nissy,
Thank you at least for letting we know your ok because member's who are active like yourself and are not seen on line for several days member's start worrying.
We'll appreciate how it goes on the 7th Nissy.,,,Nissy about the anger i spoke with my neuro about that and she said it's the lupus making we like it, so it may be that besides it making we foggy but the aching does hit our bodies more times than others just rey and bare with it mate.
Just tell you mom there's always a sister or nurse that attends which there should be as we have it here in the uk.. because you mom keep speaking up is stopping you from putting yourself over properly how you want to.
All i can do Nissy is wish the the best of luck and wait for you update.
All my loves with you Terri xxxx
Nissy314 said:
Hi Terri,
I am so sorry I have not been in a while. I have a drs appointment on the 7th, so I will let you guys know how that goes. My anger has been about the same, and I have noticed that my body has been a lot more achey than usual. I am afraid to tell my mom that I want to go into the dr's room alone, because she always thinks its something sex related..even though that has not been the case.
Tez_20 said:Susan,
I get concerned when i don't hear off member's who have been chatting regular plus left messages on my profile.
SK said:How are you Nissy? Please take a minute and say Hi, let us know how you are doing!
Our well wishes for you continue!
Hugs,
SK
I have also heard that Prednisone can cause mood swings - my husband uses that on me all the time! the problem is - i only take 4 mg./day. I don't think its the Prednisone that's causing the anger. I asked my Rheumatologist just yesterday and he said it's such a small dose to cause that and then kind of smiled and said maybe my husband needs to try a little harder to try and umderstand what I'm going through. This has been really tough - in fact last year I even moved out for 5 weeks - ready to give up on 38 years of marriage! Sometimes I still feel that it's not worth the arguments we seem to have that we didn't before. I am on bupropion (generic for Welbutrin) abnd I think it helps - I used to move into the Guest bedroom for days and weeks and haven't had to do that in awhile. I just wish there was an answer....................
OC GAL said:
If you're on Prednisone that can cause mood swings. Lupus itself can cause anxiety, anger & mood swings. Talk to your Dr, they may be able to suggest an anti depressant. Lupus support groups are helpful because you realize others have the same issues as you do. I also at times have had a trigger temper when I was on 60 mg or > of Prednisone. Maybe your boyfriend could go with you to a Dr appt so he can educate himself about Lupus & the symptoms
Hi Jan,
It does'nt matter what amount your on if that drug carries a side affect of mood swings then you'll have them.
Also with Lupus it does mess we up emotionally regarding foggyness, alot pain in the head and i definitely know my moods got really bad...so i think your on a combination with the drug and emotional stress.
I really am sorry about your hubby's attitude so many members have had the same, my husband met me having seizures plus having paralization off my todds-paralasis and when i went to the Dermo's and came back i told him what was happening and he did'nt take it to serious, until my kidneys went bad and i ended up in the day unit and i took him to my appointments and since then he's read alot up and when i attend he lets me speak with the specialists then goes forward with his quetions.
Seperating yourself will stress you plus your hubby not taking your illness not serious enough but i will state this Lupus thrieves off depression and stress and will make your issues feel alot worse than they are.
Does your hubby go with you to appointments? plus after 38yrs of marraige he may be living in denial of your situation.
Love & hugs Terri xxx
Boy do I know the emotions! Sometimes I cry uncontrollably and then later wonder what was it all about! I do know he doesn't like it when I don't feel good - I've always been the one to take care of everyone - just like all of us women do! My Lupus really hasn't been too bad - it's nothing compared to what I'm seeing alot of you have gone through! How long have you had Lupus? Which one do you have? Mine is SLE and in the joints although early this year I had a skin flare.
Hubby doesn't go with me to appointments - I've asked him to so he can ask the doctor questions and maybe understand a little better. He says he's done research but not as much as I wish he would. He is a diabetic and I tell you - I've done so much research about it I probably know more than he does but that's just me.
Jan,
That's how the fuse makes you feel and then i'm apologising to my hubby left right and centre sometimes it feels like a joke, i've told him to have sorry stuck on my coffin when i drop dead.lol
Well myhusbands took alot on board now and i do rely on him and if he was'nt about i know i'd crack up because i just adore the man.
Jan i've had it 44yrs from birth mine was inherited and also my sister as it...i've got all these issues besides me wrongly being diagnosed at 18 causing brain damage.
This is off my profile besides the link on what happened being diagnosed wrong, i've had 6 operation and 3 biopsies in 5yrs since being diagnosed with Lupus properly.
The worst part i went through was being wrongly diagnosed to start with at 18yrs old with my seizures.
http://forum.lifewithlupus.org/forum/topics/the-true-story-behind-my-...
I was diagnosed with the following in 2008 and also inherited it off my parent/s.
Raynauds Phenomenon
Psoriasis
Scleroderma (Crest syndrome)
Sjogren's Syndrome
Antiphospholipid Syndrome (Hughes Syndrome)
Cervical spondylosis (Osteoarthritis)
DLE/SLE
Megaloblastic Anaemia
Epilepsy
Hypothyroidism
Manic Depressive/Bipolar
(Tested for Polymyositis)...have'nt had the results yet.
It's a shame he won't attend because listening to it from a specialist's mouth makes you realize more and by the expressions.
Hi Nissy
I have similar problems and I see a therapist to help with the emotional issues the physical symptoms cause. It helps to have someone that you can say absolutely anything to and know that it isnt going anywhere. Managing this disease takes a village. And the suggestion that your husband go to a consult with your primary doctor is a very good one. until my husband did that he didnt really understand how invasive and debilitating this disease can be. I hope it all works out for you and your spouse especially since you have 38 years in (which is hard enough )God bless. XXOO
Hi Julie,
That's what as to happen really getting your partner/hubby along to these appointments for them to understand more about what we're suffering and concerning councilling it can help so many and like you say, when you walk away you don't have the worry of it going any furthur.
Love Terri xxx
Hi Julie
It's not so much waking up feeling bad - in fact my days are really pretty good! It's the evenings and I really am beginning to think that it's NOT ME but my husband! I take 4mg of Prednisone/day which is practically nothing - I've been on 80mg during flares! Last night we had a fight about the food I cook for him - he is a diabetic and I have tried for years to cook for him, help him, beg him and yell at him to beat his diabetes because he could if he wanted to. He is heavier than he has ever been and blames me. I made a meal straight out of a diabetic cookbook (that contained a small amount of noodles) and he threw a fit but yet it's ok when we eat out and he eats whatever he wants. He was real good about exercising for a couple weeks then we went out of town for 3 days, he gained 3 pounds and just quit trying. That's just one issue - I could write a book about what we fight about. He always manages to make me feel that this is all my fault because I shouldn't get so angry about such stupid stuff and that I'm having an "episode". Seriously contemplating divorce (after 38 years). The good times just aren't as often as the bad. Sorry for the "dump" - I just don't know what to do anymore - by the way - we've done counseling.
Hello Jan,
Your last comment did make me laugh "by the way - we've done counseling"
Jan actually your excepting your Lupus better than your hubby is his diabetes...my mom had that bad where in the end they could'nt find the right amount of insulin to suite her daily.
If you don't mind me saying this, he's being quite childish just because he wants to eat how he wants to and if things don't go his way he's throwing it back at you.
In the end through my mom not eating as she should besides the insulin not being right besides her reading being through the roof daily...she went down with an heart attack, ended up in hospital on 5 machines linked to her organs shifting the filth out and trying to filter good stuff in and within 3 days she went into a coma and then that ws it after several more days.
Well it was'nt pleasant to see even though i did'nt get on with my mom but if your husband does'nt sort his food and attitude out, it's a large possiblity of this happening to him also.
I really do feel for you going through Lupus symptoms is enough without your hubby on besides.
Hugs Terri xxx
Hi Terri
You know - when I was "diagnosed" I went through all of the emotions - why me, blah blah blah. Then I decided I wasn't going to let this run my life. I've tried very hard to control the flares - I lost 95 pounds (I was at 270), I excersize daily (or try to) I've completely changed my eating habits plus I do acupuncture and massage. For the longest time I felt responsible for his diabetes - I was making all the wrong food choices - I had every single one of my doctors tell me it's not my fault - I can't force him to do, eat or whatever so I needed to stop wasting my time. That helped for awhile but when you love someone it's hard to watch them do that to themselves! I know he's going to die (sooner rather than later) and I don't want to have to watch it. We've had arguments about this - I've told him he can cure his diabetes - I can't cure my Lupus! Guess I just need to regroup and not let it get the best of me - especially since there's nothing I can do about it.
How are you doing? You've been such a wonderful friend already and I haven't even asked how you are.
Hello Jan,
At least your determination regarding Lupus as helped you forward dealing with it but the flares can be quite a nightmare at times but the exercise is good and especially swimming.
Jan i know your concerned from when you spoke to me and it's just a shame your hubby won't recognize your thinking of his best interests it runs on both sides in a relationship or marriage...don't worry your not on your own, ste loves me very dearly always concerned about my health and he's got health issues he's totally ignoring and i keep telling him to go to the doctor's but i mays well be talking to a blank wall, so i do worry about myself and him but don't say to much.
I think with your hubby he wants the foods he's used to and is just harming himself more besides sticking pressure on you and if he did help himself diabetes 11 is curable, i have diabetes 1 which is'nt.
All this pressure won't help you and with your hubby wanting his health style won't help him as you know...so sit back and let him do what he feels right...it breaks many of we when we lose someone and i know for sure i'd crack up if i lost ste but you know the saying.
"You can't force anyone into doing what they don't want to...as it causes rebellion"
Thanks for asking how i am, i saw the eye specialist last night about my dry eyes with the sjogrens..the tear ducts have ceased completely and my eyes are'nt lubricating at all, so i'm on to lots of eye drops and one gel and every hour keep adding on...abit of a nightmare but it's for my own good and i go back in 6mths and if i'm no better it's to see next where i go from there.
I also see my new rheumo on friday and i hope he's better than the other one.
All my love Jan...Terri xxx
Oops - think I just deleted my own post..............I hope the drops give you some relief - we'll all have positive thoughts for you! Seems like the rheumatologists just guess! My acupuncturist keeps telling me to go to Northern NM Arthritis Center so am in the process of getting my records together.
Best to you Terri!
Tez_20 said:
Hello Jan,
At least your determination regarding Lupus as helped you forward dealing with it but the flares can be quite a nightmare at times but the exercise is good and especially swimming.
Jan i know your concerned from when you spoke to me and it's just a shame your hubby won't recognize your thinking of his best interests it runs on both sides in a relationship or marriage...don't worry your not on your own, ste loves me very dearly always concerned about my health and he's got health issues he's totally ignoring and i keep telling him to go to the doctor's but i mays well be talking to a blank wall, so i do worry about myself and him but don't say to much.
I think with your hubby he wants the foods he's used to and is just harming himself more besides sticking pressure on you and if he did help himself diabetes 11 is curable, i have diabetes 1 which is'nt.
All this pressure won't help you and with your hubby wanting his health style won't help him as you know...so sit back and let him do what he feels right...it breaks many of we when we lose someone and i know for sure i'd crack up if i lost ste but you know the saying.
"You can't force anyone into doing what they don't want to...as it causes rebellion"
Thanks for asking how i am, i saw the eye specialist last night about my dry eyes with the sjogrens..the tear ducts have ceased completely and my eyes are'nt lubricating at all, so i'm on to lots of eye drops and one gel and every hour keep adding on...abit of a nightmare but it's for my own good and i go back in 6mths and if i'm no better it's to see next where i go from there.
I also see my new rheumo on friday and i hope he's better than the other one.
All my love Jan...Terri xxx
Oh Jan,
What you doing mate.lol
The drops i usually use are helping and the gel but the extra drops besides are mrder..makes my eyes sore for a while i'm administering these 3 different ones every hour, it's a wonder i know where i am besides remembering my meds.
Well this new rheumo will take furthur tests but i hope on the day he'll sort some meds out for me as long as no steriods are involved as i totally refuse on them.
My first rheumo did'nt guess he took loads of bllods besides other's the blood nurses did'nt know about and my temp for the raynauds, oh he loved diagnosing but did'nt want to treat me with meds because of my organs, i had to ask for the plaquenil which a friend mentioned to me.
Well never mind the best of Luck for me...it goes your way also mate.
Love Terri xxx
I wish I could get off the steriods and thats why my acupuncture doc wants me to go to this arthritis center because they're more into natural medications. I do take plaquenil as well. You're right - they don't really "guess" - i've had lots of bloodwork as well - sometimes i wonder if they left me any - lol! I always hear that Lupus is such a mystery disease still.
Jan,
I am sorry for my previous spelling mistakes it's because of wearing gloves while typing for my raynauds...i've done some editing.
Well it's worth giving it ago and you won't know unless you try...steriods help but it's what they can do to your body besides bad affects with some.
Jan Lupus as to many autoimmune diseases connected with it but it like this what people get naturally and your covering some issues and symptoms...Lupus tops it, causes the same and more to go with it and on top of that when bloods are done it fluctuates with the bloods and if someone had positive bloods it can cause a showing of negative....that's why i feel for so many member's constantley on the test all the time and it only takes having an awkward rheumo before diagnosis is done...your going for ever and a day. xxx