After reading the post telling all about Lupus and what to look for, there was one issue that I have that wasn't listed and I was curious if it may have something to do with my Lupus or if I should talk to my Rheumy about it and try to figure out what could be causing it. I was never one to perspire easily until the last few years and now I become drenched from doing the simplest of things, like washing dishes, drying and styling my hair, standing for a short period of time, etc. My heart feels like it's going super fast and the facet turns on. I can't remember the last time I made it to church with dry hair not to mention all of makeup still on. LOL
Hello angelwing,
If your at the menopauseal stage then this could be a contribution unless your doctor takes blood and gets it tested for you.
I've had sweating a while now and mainly around 6-7pm at night but the last 2wks it's getting constant and if i sit down it carms a fraction but i'm wiping myself with baby wipes to dry and keep cool and they do panic you as if something is going to happen as i've noticed it the more it's happening now.
The excessive sweating comes from the central nerveous system (CNS) where everything that happens to we regarding Lupus stems from there and it can upset our adrenal glands and then the sweating starts.
I know how your feeling and it's giving you anxiety attacks causing your heart to race.
Love & hugs Terri :)
I get the sweating too. Like Terri's, mine tends to happen between 5-6pm, every night, right during dinner. Everything gets so sweaty and slippery. I sprawl out and lay under the fan when it happens.
I get the sweating as well,everyday. I’ve never been one to perspire too much at all but these last 3 months have been totally different. I hate to try & do anything to my hair cause by the time I’m done it looks like I poured a pitcher of water on my head.
Yes! I am ALWAYS hot, no matter what and I sweat ALOT! It's embarrassing and I always thought I was the only Lupie with this symptom because I tell my doctors and they think I'm crazy! haha.
Thanks for your reply. I know it's nothing to do with menopause as I'm almost 63 and had the factory taken out 30 years ago. I know only too well how hot flashes feel but these are different. I don't really feel hot and they can happen anytime, but are usually triggered by activities involving standing. I can be there just washing the dishes or ironing a shirt and the faucet will turn on and it doesn't stop until I can sit down under a fan. It's so frustrating! I'm not sure which comes first, the rapid heartbeat or the sweating. I've had heart tests run and they all come back normal. I'm glad I'm not the only one that has this problem though. I wonder if it could be due to some of the medications I'm as I'm up to 10 prescriptions now. :(
Tez_20 said:
Hello angelwing,
If your at the menopauseal stage then this could be a contribution unless your doctor takes blood and gets it tested for you.
I've had sweating a while now and mainly around 6-7pm at night but the last 2wks it's getting constant and if i sit down it carms a fraction but i'm wiping myself with baby wipes to dry and keep cool and they do panic you as if something is going to happen as i've noticed it the more it's happening now.
The excessive sweating comes from the central nerveous system (CNS) where everything that happens to we regarding Lupus stems from there and it can upset our adrenal glands and then the sweating starts.
I know how your feeling and it's giving you anxiety attacks causing your heart to race.
Love & hugs Terri :)
Have you checked your thyroid levels? When you are hyper-thyroid this can happen. Some meds or a combination of meds can cause excessive perspiration. Lyrica does this to me. So does prednisone, when I am on it from time to time--plus I am at the intersection of being "pre-senior", taking lots of meds for lupus, and having a cluster of auto immune diseases. Yes, by all means ask your rheumatologist and your primary care doctor as well. I know exactly what you are talking about---I can't get my hair dry as I am sweating (versus mere perspiration) too much. I live in Texas and it's hard to stay cool no matter what in the "dog days" of summer. Hope you find an answer. Lupancatwoman
Thanks Lupancatwoman, I've had my thyroid levels checked a number of times and it's always on the low side of normal. I don't take prednisone or Lyrica but do take pain meds and two Lupus meds, those of which I started really after the sweating started so I don't think it's them. I will definitely mention it to my Rheumy and regular doctors when I see them next.
OMG I finally am seeing my PCP tomorrow for this very reason. The last 4-5months I have been miserable but the last 4 weeks is even worse. I can do nothing without sweating. I wake up drenched, I do dishes, I walk across the room, etc, etc. My hair drips. I have been getting worse too. I did have my thyroid checked plus a few other blood tests on Sat. so I will get the results tomorrow I am on a high dose of thyroid I was told a few weeks ago and I didn't even know that it was considered a high dose. I've been on it for years and always have had it checked so maybe something has changed again. I hope this is not my life from now on. And menopause was a breeze compared to this.
Hi reet,
It's terrible this sweating is...it started with myself only twice daily, now it's happening alot more and it makes me quick tempered.
reet i'm on thyroxine for my gland and my doctor as my bloods checked every 6mths because sometimes it goes abit hypo and i mentioned about it needing altering and he said i can't because the amount your on matches your gland for working properly besides runnng through your blood stream.
Let we know how you get on. Terri :)
reet said:
OMG I finally am seeing my PCP tomorrow for this very reason. The last 4-5months I have been miserable but the last 4 weeks is even worse. I can do nothing without sweating. I wake up drenched, I do dishes, I walk across the room, etc, etc. My hair drips. I have been getting worse too. I did have my thyroid checked plus a few other blood tests on Sat. so I will get the results tomorrow I am on a high dose of thyroid I was told a few weeks ago and I didn't even know that it was considered a high dose. I've been on it for years and always have had it checked so maybe something has changed again. I hope this is not my life from now on. And menopause was a breeze compared to this.
Hello anglewing,
Meds don't help because as you know besides me so many carry side affects...my tegretol i take my god i've never seen so many.
This sweating does come with Lupus and i've looked it up several times and apparently it is to do with our adrenal glands being triggered...it's alright being triggered but not drenched.lol
I found this bit of info where Lupus is classed as a nuisance and these are the main symptoms it triggers :)
It is rare for two people suffering from lupus to exhibit exactly the same symptoms. For some people, lupus is no more than a nuisance condition, which flares up very infrequently. For others, however, it can run a more severe course with frequent relapses.
Listed below are the most common symptoms complained of by lupus patients:
- aches and pains in the joints.
- sensitivity to sunlight, which may result in a rash on any part of the body.
- pronounced rash over the cheeks and nose, even in cases where the patient has not been exposed to sunlight.
- increased risk of miscarriage.
- extreme bouts of fatigue and weakness.
- recurring flu-like symptoms
night sweats.
- pains in the chest and abdomen which are caused by inflammation of the tissues covering internal organs such as the heart, lungs and kidneys.
- Raynauds Phenomenon,which is named after the French doctor who first described it. It means excessive sensitivity to cold in the fingers and toes resulting in cold white digits.
- anaemia, which cause further fatigue and weakness.
- nerve tissue may also be affected.
angelwing said:
Thanks for your reply. I know it's nothing to do with menopause as I'm almost 63 and had the factory taken out 30 years ago. I know only too well how hot flashes feel but these are different. I don't really feel hot and they can happen anytime, but are usually triggered by activities involving standing. I can be there just washing the dishes or ironing a shirt and the faucet will turn on and it doesn't stop until I can sit down under a fan. It's so frustrating! I'm not sure which comes first, the rapid heartbeat or the sweating. I've had heart tests run and they all come back normal. I'm glad I'm not the only one that has this problem though. I wonder if it could be due to some of the medications I'm as I'm up to 10 prescriptions now. :(
Tez_20 said:Hello angelwing,
If your at the menopauseal stage then this could be a contribution unless your doctor takes blood and gets it tested for you.
I've had sweating a while now and mainly around 6-7pm at night but the last 2wks it's getting constant and if i sit down it carms a fraction but i'm wiping myself with baby wipes to dry and keep cool and they do panic you as if something is going to happen as i've noticed it the more it's happening now.
The excessive sweating comes from the central nerveous system (CNS) where everything that happens to we regarding Lupus stems from there and it can upset our adrenal glands and then the sweating starts.
I know how your feeling and it's giving you anxiety attacks causing your heart to race.
Love & hugs Terri :)
Hello Megan,
If your like me mate your sick and tied of it and only last year we throwed out a big fan and my god how i wished we still add it....5-45am i was up this morning with legs spasms and if it's not that wakening me it's sweating.
You made me laugh when you said sprawl out of bed...i get it mate we've become lifeless creatures.lol :)
Ballerina8876 said:
I get the sweating too. Like Terri's, mine tends to happen between 5-6pm, every night, right during dinner. Everything gets so sweaty and slippery. I sprawl out and lay under the fan when it happens.
I have it. I think mine was related to endocrine issues, thyroid or adrenal. Even when I stand up, my heart rate raises and I start sweating. Get your thyroid checked. When lupus hits my thyroid, it has sometimes gone hyPERthyroid (high thyroid) and sometimes hyPOthyroid (low thyroid). They have both caused the heart rate raise and the sweating. In a way, it is lupus, it can be attacking your thyroid.
Thanks Sheila because what your going through and feeling is happening the same with myself, my gland goes hypo at times but this sweating and suffering with low blood pressure and sugar it makes me feel like i'm going to pass out.
How you keeping in your health besides :)
Sheila W. said:
I have it. I think mine was related to endocrine issues, thyroid or adrenal. Even when I stand up, my heart rate raises and I start sweating. Get your thyroid checked. When lupus hits my thyroid, it has sometimes gone hyPERthyroid (high thyroid) and sometimes hyPOthyroid (low thyroid). They have both caused the heart rate raise and the sweating. In a way, it is lupus, it can be attacking your thyroid.
I’ve had the sweating for 10 years at least already. Anytime day or night it can hit. Part of Lupus for me as had surgery in 93 and am post-menopausal. My heart races with anxiety from it especially in public because it’s so embarrassing. Then it seems I sweat even more. I always carry a rag in my purse to dry off with and a clip to put up my drenched hair off of my neck.
Good luck sweetie.
Sheri
Thanks for asking, Terri/Tez, Struggling, but no worse than you. I've spent the last week or 2 semi-conscious most of the time due to low blood pressure or too high or too low blood sugar. My heart problems are the scariest part. Frustrating and scary, but still smiling. ;-)
Tez_20 said:
Thanks Sheila because what your going through and feeling is happening the same with myself, my gland goes hypo at times but this sweating and suffering with low blood pressure and sugar it makes me feel like i'm going to pass out.
How you keeping in your health besides :)
Hello Sheila,
Lovely to hear off you...we're a right pair mate and being semi-conscious is dangerous have you mentioned this to your specialist because having low blood pressure and your sugar anyhow can lead to a coma sheila, i've been there several times myself so that's why i'm concerned.
I do feel for you where your heart concerned...the weather here as knocked my lungs about and trying my hardest to get air, ste swears that i'll be on oxygen soon the way i am but i do give him such a look. lol
Sheila that's all we can do is keep smiling and fighting.
Hugs & kisses Terri :)
Sheila W. said:
Thanks for asking, Terri/Tez, Struggling, but no worse than you. I've spent the last week or 2 semi-conscious most of the time due to low blood pressure or too high or too low blood sugar. My heart problems are the scariest part. Frustrating and scary, but still smiling. ;-)
Tez_20 said:Thanks Sheila because what your going through and feeling is happening the same with myself, my gland goes hypo at times but this sweating and suffering with low blood pressure and sugar it makes me feel like i'm going to pass out.
How you keeping in your health besides :)
I TOO EXPERIENCE EXCESSIVE SWEATING. I LOOK AS IF I'M JUST GETTING OUT OF THE SHOWER WHILE DOING ANY CHORE- COOKING, WALKING, EVEN TALKING. I ALSO HAVE A WALKER NOW BECAUSE I GET EASILY FATIGUED. I'M 26, A WIFE AND MOTHER AND LUPUS HAS TAKEN OVER MY LIFE. I URGE YOU TO HAVE YOUR LUNGS AND YOUR BLOOD COUNT CHECKED. LUPUS HAD GIVEN ME ANOTHER DISEASE- MixedConnectiveTissueDisorder (MCTD) WHICH GAVE ME SCLERODERMA, WHICH THEN GAVE ME LUNG DISEASE AND NOW A NEED A DOUBLE LONG TRANSPLANT.
ALSO, ARE YOU ON PREDNISONE? IF SO THAT MAY BE THE REASON FOR YOUR SWEATING, IT HAPPENS TO MANY OF THE PEOPLE THAT ARE ON THE DRUG. I'VE BEEN ON IT FOR YEARS AND NEVER HAD ANY SIDE EEFECTS UNTIL NOW. INSOMNIA, SWEATING, MOOD CHANGES. YOU CA
Fan, I am so sorry this is happening to you so young. I had issues when I was young but not to the extent that you and others are enduring. And I do mean enduring. I rarely complain except here and when I do I wish I hadn't as I always say "there are so many worse then me!" My heart goes out to you and so many, many others here. Know that when I am having a low day I think of all my friends here and you are my inspiration to keep moving and to not get down on myself.
Gentle hugs to you and all fellow "Lupies". Reet
:-) THANK YOU!!