Sounds like menopause.If it's not you should talk to ur Dr about it
Thanks for responding OC Gal. I pretty sure its not menapause since I had everything removed about 30 years and I'll be 63 in a couple weeks. I stopped taking hormones several years ago. Like I mentioned, I don't have hot flashes as I had those right after the hysterectomy until they got me on hormones and this is definitely not hot flashes. I really don't feel hot when I sweat, it just starts pouring out of the blue, especially if I'm standing for very long or get in a hurry with anything. I will bring it up to my doctors again. I talked to my regular doctor about it more but he just chalked it up to my age and being out of shape. :( Maybe my Rheumy will know a little more.
Reet you mentioned "gentle hugs" and it reminded me of one issue I have and I wondered if it applied to everyone else too. I used to love to get hugs but for the last few years I cringe at the thought of getting a hug a it hurts so bad! I have one friend that is a big hugger when you see her and it's none too gentle. LOL I feel like I was put through a vise every time I see her and wouldn't hurt her feelings in the least if I refused her hug and don't want to make her feel bad if she knew just how painful it was.
reet said:
Fan, I am so sorry this is happening to you so young. I had issues when I was young but not to the extent that you and others are enduring. And I do mean enduring. I rarely complain except here and when I do I wish I hadn't as I always say "there are so many worse then me!" My heart goes out to you and so many, many others here. Know that when I am having a low day I think of all my friends here and you are my inspiration to keep moving and to not get down on myself.
Gentle hugs to you and all fellow "Lupies". Reet
Angelwing, I am going to reply to both of your posts. I just returned from my PCP doc and he started going down my lists of meds and checking everything that could cause the sweating besides lupus. Meanwhile, I did not take the newest one last night and that was Keppra and voila I am not sweating at all today. I asked him why it started after months of being on it and he felt like it is probably a build up in my system. He also said it was one of those things that each persons body reacts different ways to different meds so there is no pat answer. Today is such a pleasant one already as I was dusting furniture today and not one bit of sweating. RELIEF!!!
Now to the hugging...I have learned with time that if I request to my friends of family to have only a gentle hug they are very happy I told them. I simply say something like: "I am sooo glad to see you but can you give me a very gentle hug? It is one of those very tender days for me." It generates some sorrow that my pain is bad but I just shrug it off and go on to have a wonderful visit. Hope this helps you. Reet
I too have suffered from that (pain with certain touches, hugs). It felt like a sharp knife cutting my skin and most people don't understand. I was diagnosed with fibromyalgia and once it was treated it went from every day to once every couple of months, much better that 24/7. Also, you should talk to your rhemy more than your primary care. The rhemy's know and understand your condition, side effects etc that your primary care can't know how to handle certain lupus situations. Ive had my rhemy for over 8 years now. I even moved to a different state but now travel to go and see her. I trust and have faith with her and she works very hard for me. If you don't have a rhemy that you feel is addressing your needs, you should find a different dr. Remember, they work for you, not the other way around. You should coomfortable with telling them everything. Write down your syptoms and discomforts and where on a piece of paper, that way you won't forget anything when you talk to your rhemy.
Hope this helps :-)
angelwing said:
Reet you mentioned "gentle hugs" and it reminded me of one issue I have and I wondered if it applied to everyone else too. I used to love to get hugs but for the last few years I cringe at the thought of getting a hug a it hurts so bad! I have one friend that is a big hugger when you see her and it's none too gentle. LOL I feel like I was put through a vise every time I see her and wouldn't hurt her feelings in the least if I refused her hug and don't want to make her feel bad if she knew just how painful it was.
reet said:Fan, I am so sorry this is happening to you so young. I had issues when I was young but not to the extent that you and others are enduring. And I do mean enduring. I rarely complain except here and when I do I wish I hadn't as I always say "there are so many worse then me!" My heart goes out to you and so many, many others here. Know that when I am having a low day I think of all my friends here and you are my inspiration to keep moving and to not get down on myself.
Gentle hugs to you and all fellow "Lupies". Reet
Fan, I'm not sure if you are talking to me about a rheumy or not but just in case you are....lol.... I am answering. I do have a rheumy but she is awful. I have had many bad experiences with them except one that wasn't bad at diagnosing but terrible after that. I had positive blood tests for lupus which helped me a lot and she couldn't refute the tests. But...she told me she has a tendency to take lupus patients off the plaquenil because she hates too many medications so she told me I would have to fight her on it!!!!! Then when I wouldn't go on the Benlysta she didn't want to see me again. Well, if she would have researched the Benlysta like I did and talked with the company that makes it, like I did, then she wouldn't have put me on it either. I am definitely not a candidate and my medical history and prescription drugs are the obvious reasons. Also this town is not known for good rheumys and my PCP even told me that. So, until I have organ involvement he is going to treat me but when I have other issues I will be going to a specialist. I have a post about what this rheumy did on my first appointment. I have had several doctors and other health care professionals that all say that rheumys are an entire different "breed" and they do use that term. And quite often they are "difficult". Hmmm!
i have been sweating a lot also. I went today to get a blood test for Addison's Disease. It is to rule it out. My GP and Rheumy both do not think it is caused by the meds or lupus. I do think it is from lupus. I believe when I am more tired I sweat more. Any stress good or bad meaning if I am enjoying myself causes me to sweat.
Flower let us know about your test results. My sister was diagnosed with Addison's and now the doctor says she no longer has it! Not sure about that being the case but....
Hi Flower,
When your sweating as i've add it bad today the worst it's been so fare...my heart was going 10 to the dozen, light headed as if to pass out and ontop the added bonus of feeling sick.
In the past i've only add sweatng twice daily...now i can't move and it kicks off till i settle.
All the best where your blood test is concerned also.
Love Terri :)
Flower said:
i have been sweating a lot also. I went today to get a blood test for Addison's Disease. It is to rule it out. My GP and Rheumy both do not think it is caused by the meds or lupus. I do think it is from lupus. I believe when I am more tired I sweat more. Any stress good or bad meaning if I am enjoying myself causes me to sweat.
I have had a severe sweating issue for several years now. It isn't thyroid or meds. It is so embarrassing to be dripping wet with any physical exertion. In the middle of Winter when it is snowing and everyone is freezing I am wearing short sleeves and not cold at all. My internal thermostat is completely broken! Now in the middle of Summer I am constantly explaining away my sweating as I am literally dripping wet while working in an air conditioned store, but I am a cashier so again, physical exertion and must drink water constantly to stay hydrated
I am able to work less and less hours because of my decreasing stamina along with the sweating. I now also have labored breathing so my Reumi has scheduled a echocardiagram this week.
I have now been on Prednisone for 2 months now as I broke out in a body-wide rash. While I was on 40 mg, I did feel much better and had more energy. Currently weening off the Prednisone now down to 10 mg, I have more side affects, sleepiness, headache, eye pressure, rash, aching ankles, knees and wrists and it is affecting my coordination.
I am amazed, with every posting on this site, to realize how many symptoms we share and how many symptoms Lupus encompasses! It should be called "The Kitchen Sink Disease".
Well i've finally found out what the extra sweating is to what i was like...i was looking at meds linked with sjogrens and my rheumo put me on Pilocarpine 3 times daily and it mentioned sweating as a side affect but not how i'm having it and i crossed this article tonight and BINGO it's the med causing the extra sweating.
So if anyone is on this med with extending sweating here's you answer most likely :)
Pilocarpine (Salagen)
Pilocarpine has been used for the treatment of an eye condition called glaucoma for over 100 years. This medication stimulates the tear glands to produce more tears and the salivary glands to produce more saliva. Pilocarpine comes as a liquid solution (eye drops) or a gel that can be applied to the eyes, and as an oral tablet to increase saliva production.
Since pilocarpine increases the body’s production of fluids, it can cause excessive sweat production. This can be a bothersome side effect for some people.
Terri, didn't you tell me once that you are on Keppra too? I know you talked about it when I brought it up once. This was the drug I just stopped and has decreased the sweating quite a lot. I think a lot of the meds we take can cause this but due to our own body chemistry we all react differently, don't we. Now,can you go off that med and be okay? Gentle hugs, Rita
Hello Rita,
Yes i am taking keppra i was put on it when it first came out on the market here in the Uk and i take high level dosages of the med.
I was actually sweating about twice daily before the Pilocarpine and now if i move christ i do sweat but it's inside not out but my face and head loses sweat.
I can't afford to come off the keppra because my seizures was bad and they slowed down but for some reason they're kicking off again and the terrible smells....good job i see the nurse for the neuro this month.
Hugs to you also Rita and thanks for mentioning it :)
I have to get busy but I have to ask this question about the sweating and I hope I didn't already ask it and forgot!! I do that too much! Is anyone else finding that the sunscreen you put on makes you sweat excessively? This was a big contributor to my sweating besides the Keppra. I haven't used it a couple of days and stayed out of the sun, even in the house, and I am much, much better.
My embarrassing sweating started before I being diagnosed with Lupus, before meds, before sun screen. Along with quite a few others, sweating was one of my first symptoms.
I also sweat excessively and get overheated from doing practically "nothing". I was recently diagnosed with fibro and put on Lyrica. Ever since taking it, I haven't noticed the excess sweat. Just my two cents.
Hi Rita,
Where the sunscreen is concerned i had to stop using it ages ago not through sweating but still burning bad even that's not strong enough...my life is lived like an urmit summer and winter but i've been looking for you Rita and in a large majority of sunscreens "Oxybenzone" is the main chemical, here's info about it and it messes with your hormones :)
OXYBENZONE
Oxybenzone is one of the most dangerous chemical sun filters. Oxybenzone is a derivative of benzophenone, a highly toxic and hazardous substance. Oxybenzone is relatively easy to obtain and cheap, so it is one of the most commonly used chemical UV filters in conventional cosmetics.
Due to its harmfulness, in the EU cosmetic products containing more than 0.5% oxybenzone must be labelled with an appropriate warning. Despite its hazards to human health, oxybenzone is still commonly used in many cosmetics, especially sunscreens, day face creams, anti-wrinkle creams, protective lipsticks, hair care and styling products, as well as deodorants 1.
Oxybenzone causes a number of harmful side effects in the human body, and in higher concentrations may even lead to poisoning. It accumulates in the skin 2, and causes a strong photochemical reaction 3, which can cause eczema, and also increases the number of free radicals 4, which can damage the genetic structure of cells 5 6. OOxybenzone may also damage the skin’s natural protective barrier thus facilitating the penetration of harmful substances 7.
Oxybenzone is also a hormone disruptor which means it can change the functioning of the hormonal system in the human body. Contact with oxybenzone when pregnant often leads to underdevelopment of the foetus 8. It is also associated with decreased fertility in men 9 10 and higher incidence of testicular cancer.
reet said:
I have to get busy but I have to ask this question about the sweating and I hope I didn't already ask it and forgot!! I do that too much! Is anyone else finding that the sunscreen you put on makes you sweat excessively? This was a big contributor to my sweating besides the Keppra. I haven't used it a couple of days and stayed out of the sun, even in the house, and I am much, much better.
Oh great!! One more dangerous product that our governments are supposed to regulate except if they send big contributions to government people! I know I am not using it anymore because I can't function with that much moisture dripping over everything while I work. Thanks once again Terri, for great info. Gentle hugs, my friend.
Rita,
I used mine twice after my dermo told me what factor to get which was 50, i applied it twice and i'm not joking i was heating up more like i was on fire proper burning and i felt no protection at all, so now if i need to go out instead of being in the home all the time, ste brought me a large gazebo with sides to it and it holds the heat ok when it's not to but when it does get hot then i am indoors.
I would'nt touch it mate and i mentioned this to ste my hubby and this was his comment...stick fat or oil out side it's going to heat up and that's all that's doing as it's moisture which will react the same.
Your welcome Rita and hugs to you my friend also :) xxx
This is a homemade recipe for sunscreen. I have not tried it yet but thought it was interesting.
http://www.onegoodthingbyjillee.com/2013/07/how-to-make-your-own-homemade-sunscreen-2.html