Does anyone have red wrinkled fingers and burning throughout their body?

General
1

I'm pretty sure I have EM (Erythromeglia), I understand the red, burning hands, but my fingertips are totally wrinkled it's like their is no fat pads in them. Just wondering if this is a Lupus thing, a EM thing. Any input would be appreciated. Thanks

2

Hello lambchop,

I don't have Erythromeglia but it's an autoimmune disease similar to raynauds where you need to keep warm and i'm sure this is in the Raynauds group on the manin page but this link may help you besides but i do have the wrinkling at times in my fingers from Raynauds...they're not very much different.

http://mrdoctor.org/erythromelalgia/

Hugs Terri xxx

3

Hi lambchop,

I think I have the Raynauds like Terri, she's talked with me about it. I have the wrinkly fingers, and I notice this after my fingers get blue, and white then the whole hand will get red then dried out and wrinkly. I've also noticed that's its progressing quickly. Trisha

4

Thanks so much. I keep showing my doctor and he just looks at me and shrugs. My hands don’t don’t blue just red and motled. With EM heat sets it off. My rhemy wants me to go to a hematologist. I know he will take a ton of blood and look at me and shrug lol. I’ll let you know what happens. I’m on long island new York and we are still trying to recover from the hurricane then the snow and now the gas shortage. Haven’t been able to get to any if my doctors

5

Hello lambchop,

I know situation's out your end are hard as we're updated daily by our news and it's such a bad situation for everything besides patients having to wait to see specialists or appointments cancelled but instead of an hematologist...as to be sent to a Dermo, as this is a Dermo's line of work...bloods will be took but they're great on diagnosing without bloods, as my Dermo's is great reagrding that aspect.

All the best mate besides getting by in these bad situations. :) xxx

6

Hello Trisha,

How you've mentioned cuts to me on your hands...i have mine break like this besides the spots on my toes...well that's chilblains with raynauds besides.




Trisha said:

Hi lambchop,

I think I have the Raynauds like Terri, she's talked with me about it. I have the wrinkly fingers, and I notice this after my fingers get blue, and white then the whole hand will get red then dried out and wrinkly. I've also noticed that's its progressing quickly. Trisha

7



Tez_20 said:

Hello lambchop,

I know situation's out your end are hard as we're updated daily by our news and it's such a bad situation for everything besides patients having to wait to see specialists or appointments cancelled but instead of an hematologist...as to be sent to a Dermo, as this is a Dermo's line of work...bloods will be took but they're great on diagnosing without bloods, as my Dermo's is great reagrding that aspect.

All the best mate besides getting by in these bad situations. :) xxx

8

thanks! Along with the hemotologist, I did make an appointment with a dermotologist. He cant see me till the middle of December. i hope he know's something about EM. Will keep you posted. I feel very lucky. We were out of power for only four days, with no real damage. Our tri-state area is devasted and so many people lost everything.

9

Hello lambchop,

Dermo's are covered in all issues to do with the skin besides running bloods to look at other issues, that's what my dermo did as he must have suspected something and bang Lupus showed and i was refered to a crap rheumo but thank god i'm with a better one through my Dermo's help.

This bit of info may help about Erythromelalgia:

Erythromelalgia, also known as Mitchell's disease (after Silas Weir Mitchell) and red neuralgia, is a rare disorder in which blood vessels, usually in the extremeties and especially in the feet, are blocked and inflamed, causing a painful burning and throbbing sensation and red skin. The attacks come and go, and tend to be worse in summer. Erythromelalgia is often associated with vascular diseases such as polycythaemiavera, thrombocytosisor with heavy metalpoisoning.

Erythromelalgia responds to cooling, and often disappears completely on taking non-steroidal anti-inflammatory drugs, such as aspirin.

A primary (or familial) form is termed erythermalgia. This occurs in patients who are younger. The disease is very rare. It has been linked to a mutation of the SCN9A (a sodium channel), the gene of which is located on the long arm of the second chromosome(2q24). It inherits in an autosomal dominantfashion.

http://www.dermnetnz.org/vascular/erythromelalgia.html

Even waiting to the middle of Decemeber at least it's not next year hold in strong mate although it's hurting.

Hugs Terri xxx

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Thanks so much. Will keep u posted.

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You welcome lambchop and will wait to hear from you. :) xxx

lambchop0103 said:

Thanks so much. Will keep u posted.