this isw the heel of my hand...my skin is getting cracks ans fissres and i am still seeing thing s in weird color when i wake up and still have urine issues(sorry for gross)
today i wondered if it is kidney trouble. anyone
/? i have been using lotion and cream but my skin is drying out faster than i can moisturize it
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Hi Janice, sorry i just wanted to add at the moment, i can hardly bend the fingers, i am trying to ignore just quite how sore they are at the moment. So i completely understand where you are coming from. I hope it gets abit better soon. I am thinking of actually going to my doctors about it before it gets too much worse, as it has been getting worse over the last couple of weeks. Does yours feel as though its hot or burning where its red and sore at all? My knuckles go abit black but i put that down to having the Raynauds as i have always had darkened coloured knuckles and hands especially when i am having abit of a flare up. Anyway take care, bye for now, thinking of you, love and hugs Astrid40xoxo
wow---how odd that we both have it! I dont why I just had "a little bird" telling me to check for kidney---i called the doc and left a message so I hope she will get back to me tomor...it is embarrassing bc my fingers look so dirty.
we should start making an lwl album of all the dif "pictures of lupus" so that people new to the illness (and those who had suffered long already) can have something to compare new symptoms too.
im sorry to hear about your fingers being so sore---I want to catch up better but I still have swelling in legs that makes sitting hard...so I think about what I want to say after I read the posts and then come back when I can sit and type---it is like keyboard relay...one "me" read...then passes it on to "brain", brian passes it on to she-who-sits-at-computer. actually, that last one shares the chair with she-who-keeps-foot-in-mouth.
hug
Hi Janice, Thankyou for your reply. Yes it is odd we both have the same thing at the same time, but then again we do have alot of the same things that go with Lupus. I am pleased you have contacted your doctor, good idea. If mine isnt any better in the next couple of days i will do the same. I find going to the doctors such an expedition now. I do need to get an appoimtment though because of my scalp which again is driving me crazy, i will look out the cream that the doctor gave me last time, i do think though its going to have to be a course of antibiotics, like the last time. I dread taking antibiotics, you know what its like, they always make people like us with auto immune diseases end up feeling alot worse.
What a good idea! We should make an album, i have a few awful photos i would be able to post, i hate them if you know what i mean. Its good to keep records though, as when we see the Rheumy's and they ask how we have been, and we explain what we had, and they ask what was that like, then at least we have some photos to show them. My Rheumy has kept a few of the photos i have shown him.
I totally understand about you not being able to sit up at the computer for very long. If it wasnt for how i have my laptop set up by the bed i wouldnt be able to do this. I think it would be a good idea also if i got my husband to take a photo of how i manage to use the laptop, just for other peoples interest. As i cannot sit up straight, i have to slightly be leaning when i sit, or it kills me with pain. If my computer plays up, and i have to use Dave's, then trying to sit in his chair to type is agony, and i am like you i really cant sit there for very long, as it makes me really ache and the pain sets in. Its the same if i go out anywhere and i need to sit and have a drink in a cafe, i have to make sure i find one with chairs that arent totally hard and arent those where you have to sit bolt upright. I have all the places mapped out in town where its okay for me. Is there anyway you can find a chair or something that would help you be more comfortable at all. I am always trying to find solutions for myself when i am struggling, its not easy though. Anyway my dear friend i am so sorry to hear you are suffering so much. I am thinking of you, and praying for you as well. Some days, or rather most days really i look at myself and think my goodness you are a mess. Its not easy is it, we have changed so much from say just ten years ago. I have photos of myself where i havent looked too bad compared to how i look now. If and when i go out, i always try and make myself look presentable. I have notice even just after the last few weeks i have loads more grey hairs, its the stress i think, hehe. And of course i cant put a colour on my hair due to the fact my head has these awful sore things. It makes me feel like giving up on things sometimes, i expect you feel the same. Ah, well, i have to stay positive, things will get better, i always tell myself that, and i know how lucky i am in comparison with a lot of people. Anyway my friend i wont waffle on any longer, take care, hope you have abit of a better day today, thinking of you, prayers, love and hugs Astrid40xoxox
Same with me the past day and a half Jan.....I always had the skin issue, then it resolved, why has it gotten bad again, who the heck knows??Even my cheekbones, under my eyes is awfully red & rouch & tight feeling , Oh & burns too....??? But my hands feel like sand paper, hurt from the cracks & dryness, and ur right no amount of moisturizer helps?? So frustrating!!! UGH, ALL OF THIS IS JUST THAT!! :( I have always read into it, & it seemed like a dermatomyositis, and to think of it all of my muscles r extra painful too....?? So maybe??? They call it mechanics hands I think??? Sorry u feel this way too, hang in, & if u keep smiling, so will I, deal?? ;) No idea if kidney issues have anything to do with it?? Personally, I believe it is an issue all in it's own.....just my opinion, ask ur doc bout it, maybe u will get more insight....Good Luck! Xo Suzie :0)
I would try to take a preneadel vitamin with minerals. Thats what I am taking and my skin and hair looks alot better in under a week. Also try getting a body butter and some dollar gloves at walmart. Put the body butter on real thick and put the glove over it. Let it soak real good. I have this issue in the winter. This usually helps. I am sorry your skin is so bad. For your kidneys, well no coffee!!! I know its real hard for some ppl to cut out coffee, but thats horrible for those little babys. Also try to not drink colored drinks. Just water and cranberry juice. Juice not cocktail! For the color thing... I have no idea what to tell you. I have never had that happen to me. Although sometimes things seem to be a little further away then usual or even a little curved... I hope this works out very soon. Have u been to an eye Dr.?
thanks for the input you guys...all good stuff...i will get gloves and heavy duty cream and talk to doc etc...but coffee...ouch i don't know if i can give that up yet (boo hoo boo hoo) i love coffee http://youtu.be/6lgX0YrCNYU
Hi Suzie, Its horrible this cracked skin, and soreness. I am the same, i have put a ton of handcream on, and even the special body gel cream that the doctor gave me when he noticed last time that my skin is really dry. I remember my doctor saying he was going to give me something alot better than the creams i have ever had before. It had been helping, but this time nothing is working. Last night i couldnt even bend my knuckles without going ouch every time. I wish whatever is causing it would sort itself out, hehe. Ah well these things happen dont they,? Just have to put up with some things sometimes i think. I have just seen though, sunshinespraypaint has put a load of useful tips down, so i will have a look see if there is anything i can do to help myself, hehe. Its strange how three of us have all got this at the same time though, i think the weather chopping and changing over here all the time doesnt help matters. Anyway take care, bye for now, love and hugs Astrid40xoxo
Suzie D. said:
Same with me the past day and a half Jan.....I always had the skin issue, then it resolved, why has it gotten bad again, who the heck knows??Even my cheekbones, under my eyes is awfully red & rouch & tight feeling , Oh & burns too....??? But my hands feel like sand paper, hurt from the cracks & dryness, and ur right no amount of moisturizer helps?? So frustrating!!! UGH, ALL OF THIS IS JUST THAT!! :( I have always read into it, & it seemed like a dermatomyositis, and to think of it all of my muscles r extra painful too....?? So maybe??? They call it mechanics hands I think??? Sorry u feel this way too, hang in, & if u keep smiling, so will I, deal?? ;) No idea if kidney issues have anything to do with it?? Personally, I believe it is an issue all in it's own.....just my opinion, ask ur doc bout it, maybe u will get more insight....Good Luck! Xo Suzie :0)
Hi Sunshinespraypaint. I feel awful as i feel as though i am butting in abit, as this started off with Janice posting this, but i too have the same problem, and so does Suzie by the looks of it. Anyway i just noticed all of you great tips. We dont have a WallMart over here as i am in the UK, but i am sure i would be able to find somewhere that does something for me. I was given some heavy duty cream by my doctor, but nothing seems to be working, i will try leaving the cream on and putting the gloves on, that sounds a really good idea. I do that with my feet sometimes, as its a great way of moisturising them. I am okay as far as dont drink Coffee, as i dont drink any hot drinks anymore. Thats interesting about the coloured drinks. I gave up fizzy drinks about six months ago now, which has helped me. I mainly drink plain water, or flavoured waters. I try not to add anything as plain is best, but sometimes i just feel as though i need something different. You can get separate nail and hair vitamens if i remember rightly, its remembering to take them, as i have so many other meds to take. Thankyou for all those tips, i am sure that everyone else will appreciate them as well, bye for now, take care, love and hugs Astrid40xoxo
sunshinespraypaint said:
I would try to take a preneadel vitamin with minerals. Thats what I am taking and my skin and hair looks alot better in under a week. Also try getting a body butter and some dollar gloves at walmart. Put the body butter on real thick and put the glove over it. Let it soak real good. I have this issue in the winter. This usually helps. I am sorry your skin is so bad. For your kidneys, well no coffee!!! I know its real hard for some ppl to cut out coffee, but thats horrible for those little babys. Also try to not drink colored drinks. Just water and cranberry juice. Juice not cocktail! For the color thing... I have no idea what to tell you. I have never had that happen to me. Although sometimes things seem to be a little further away then usual or even a little curved... I hope this works out very soon. Have u been to an eye Dr.?
Hi Janice, i am thinking of you. I didnt mean to but in when you started thisup, but i just couldnt believe that we both had exactly the same thing at the moment, i just wanted to share it with you. Its so annoying when all these things crop up. Anyway my dear friend i am thinking of you so much, praying so long and hard at times that you start to feel a little better yourself. Take care, bye for now, speak soon, love and hugs Astridxoxox
janice said:
thanks for the input you guys...all good stuff...i will get gloves and heavy duty cream and talk to doc etc...but coffee...ouch i don't know if i can give that up yet (boo hoo boo hoo) i love coffee http://youtu.be/6lgX0YrCNYU
I’m sorry that your hands giving you trouble. When I first got diagnosed i had like little sores on my finger tips. They were red and hard. They eventually peeled off though. I doubt it’s the same thing your going through though. I hope you get to feeling better 
I use gloves and Bag Balum on my hands at night while I sleep. Try it and see if it will work for you.
Hello Janice,
My god that does look sore and you could do with some cream to help...i've got DLE as you know and my hands dry badly, you'd think i worked on a building site etc and i've used steriod creams and what i find helps me alot is either Nivea cream for dry skin and this other cream is excellent "Cetraben-Emollient cream" relieves dry skin and eczema and it does take some rubbing in.
When your on about your kidneys and urine...in what manner are you talking about if you don't mind me asking?...as i've had kidney trouble plus protein trouble.
((Hugs to you Janice)) Love Terri xxx
Wow, I came to offer help - but think I've received more than I can give!
I recently started having skin issues and tried finding some remedies. Here's just one I have - drink more water. Don't know if it'll help or not, but I'm giving it a whirl.
As for kidneys - that's why I popped in here - many questions myself but did read it can cause itchiness when toxins build in blood from kidney problems.
Hang in there! May your skin be renewed, itchless and soreless!!!
blessings,
Traci