Hi I have been diagnosed with Lupus since last summer and I am on Imuran and Prendisone. My Dr has has been reducing my Prendisone gradually. I was on 10 mg and then to 7 1/2 and now been taking just 5 for a few months.
My eyesight has become really blurry. Sometimes more than others. Does anyone or has anyone had this. I am wondering if it is from the Lupus and decreasing my Prendisone.
I am grateful that along with the Imuran that my symptoms are under control and I really would love to get off the Prendisone cause my face is getting really fat but the blurry vision is really scaring me.
Thanks for listening
I had a lot of blurred vision, then it stopped when I started taking the anti malarial drug Hydroxyclorequine.
For me it has to do more with my brain and nervous system then with the eyes themselves.
Hope that helps!
Thank you Jon.
I just mentioned to my husband that my vision is blurry. He said to mention at the next drs. visit. I normally have 20/20 vision but I do have episodes of eye issues because of the brain involvement. I started prendisone 30 mg 7 weeks ago and cellcept 2 weeks ago. I started noticing the blurred vision with the start of the cellcept. I am hoping it is the drugs. Hopefully the same for you.
Blurred vision as side effect of Cellcept…
thanks john, i guess i don't need to worry about my vision.
Jon_sparky said:
Blurred vision as side effect of Cellcept...
I didn’t have that with cellcept. I would let the doc know,e effects esp. If it’s listed as a serious side effect. Google “cellcept side effects” though, you need to be aware of side effects of your meds. I don’t remember them all now. I had overwhelming tiredness, which isn’t even listed as a side effect-but I had it. Also some nausea and food tasted bad so I lost eright.
I agree, I didn’t mean to not worry about it… I had the same thing with Lyrica, terrible blurred vision, went away when I stopped taking it.
I agree, it is always a good idea to run new issues / concerns by your physician. Sometimes things are side effects of medications and sometimes not. Always good to get the input of your doctor.
Hey Pamk1953 did you find anything out from your dr. I spoke with mine about my blurry vision and he said it is from the prednisone. He has lowered mine from 30mg to 15mg. My vision is a little better but not completely. Hope your doing ok.
Hi Reddog thank you for asking.
It. Has gotten better and my Dr has weaned me off Prendisone so I am assuming that’s what it was but I had been on it since last summer and my eyes just started doing that a few months ago so not sure why all of a sudden but just glad it’s gone.
Although I feel my eyesight has gotten worse. He told me to go to the eye Dr and I just keep putting it off. I go back to my Dr in May to see if I can stay off of the Predisone. Hopefully my liver panel and the other test will be good without it.
I hope you are well and thank you again for answering me.
Pam
reddog said:
Hey Pamk1953 did you find anything out from your dr. I spoke with mine about my blurry vision and he said it is from the prednisone. He has lowered mine from 30mg to 15mg. My vision is a little better but not completely. Hope your doing ok.
I'm glad your eyes are doing better. I hope your tests turn out well and you can stay off the prednisone. I know I can not wait to be able to stop taking it. I hate the side effects. This whole lupus thing sure is a huge challenge. Good luck in May and tons of hugs.
Thanks reddog.
I actually felt better when I was on the 10 mg of Predisone.
The only side effects that I had was the weight gain especially in my face.
And of course the blurry eyes .
What kind of side effects do you have?
I hope you are doing ok.
Yes Lupus sucks that’s for sure.
Pam
Hi Pam,
I am also starting to wonder if the dr dropped down my predisone too soon because some of my old symptoms have gotten worse. I just hated the side effects so I really do not want to tell him. My face gets so swollen that I feel like I have it filled with novacane, it is very tight and numb. My vision is blurred, when I eat it feels like I am gumming my food and food has no texture. Also my fingers and toes are numb. I know these are little things in comparison to lupus but along with the crappy feeling of lupus it's too much. It sounds like the Imuran isn't totally helping you. What type of lupus symptoms do you have? I get frustrated that it is taking so long to feel better. You have been sick longer than me, how do you feel about this?
Take care,
Janet, Reddog
Hi Janet, reddog
I know what you mean about telling the Dr but you really should.
The Imuran has helped in so many ways.
I went to a Reumatologist in 2013 and she blew me off and said I don’t think you have Lupus just stay out of the sun. A year later in 2014 I got a new primary Dr and she was pissed cause nobody followed through so she sent me for tests .
Well long story short my liver count was 200, and the test they did for the muscles was high too.
My new Reumatologist said I had Autoimmune Hepatitis and myositis .
So I went on the Predisone and then the Immuran . The only thing is when he lowered my dosage of Predisone my joints started hurting. And now that I am completely off some of my muscles hurt.
So we shall see.
You sound like you are having a lot of issues even though you don’t want to you really need to tell your Dr.
When I told my Dr about my eyes being blurry he said to see an eye Dr.
Anyway it sounds like you are having a lot more issues than me.
Please take care of yourself.
Pam
It's terrible how many drs do not take us seriously until we get very sick. I had a similar issue with drs pushing me around. If I could have been treated earlier I wouldn't have had to get to this point. I find it interesting how different this disease is for everyone. Autoimmune hepatitis is serious, you need to take care of yourself. My brother in law had to have a liver transplant and my cousin fought hepatitis for several years. None of this is an easy road. I see my dr in two weeks, at that time I know I will tell him everything. He is real easy to speak with and he has me seeing him every month. I hope your liver test in May comes back normal, please let me know. I'll keep my fingers crossed.
Hugs,
Reddog(Janet)
Hi Janet (reddog)
How are you doing?
I hope you are doing okay.
pam
reddog said:
It’s terrible how many drs do not take us seriously until we get very sick. I had a similar issue with drs pushing me around. If I could have been treated earlier I wouldn’t have had to get to this point. I find it interesting how different this disease is for everyone. Autoimmune hepatitis is serious, you need to take care of yourself. My brother in law had to have a liver transplant and my cousin fought hepatitis for several years. None of this is an easy road. I see my dr in two weeks, at that time I know I will tell him everything. He is real easy to speak with and he has me seeing him every month. I hope your liver test in May comes back normal, please let me know. I’ll keep my fingers crossed.
Hugs,
Reddog(Janet)
Hi Pam,
I am doing pretty good. This last week I feel a lot better. The fatigue doesn't seem to be as bad and the nausea/headaches not as severe. Maybe the cellcept has kicked in? I see my dr next week , so I'll see what he says. I did see a new nearo though and she did upset me. She said she isn't so sure that this is lupus or just lupus. She will contact my regular neuro with recommendations. This upset me because finally I get a diagnoses and I am being treated and on the road to hopefully getting better and it's like she wants to just throw all that away. Oh well, I keep looking at the fact at how much better I am now compare to in Dec. How are you doing? I know your test is not until May, so you probably do not have any updates? I hope all is well.
Janet
Hi Janet
I am glad to hear that you are doing better.
I know that we all have days that we just feel crappy , I guess that is just something we have to put up with.
Please let me know what is going on with you. You know sometimes I don’t know what symptoms go with the Lupus and what doesn’t . Lol
Pleas let me know what the Drs say.
Pam