I am super new to this group and don't know where to start. I was dxd in may 2014 and my life has been in shambles since. I have extreme pain , fatigue and thinning of my hair. My lupus is in my skin joints and tissues. I also have raynauds, fibromyalgia, anxiety, depression and bursitis whew! I am finding it so hard to cope so that's why I decided to connect with a support group. I don't want to seem like a crybaby or want pity. Can anyone relate or help? THANKS
gemini, Welcome.
You have already begun by reaching out here.
This is a wonderful community and we are here for your support. Please know noone here will judge you for expressing you are suffering. I find what helps me when I am having difficulty coping is drawing strength and comfort from others with illness as well.
Hugs,
Laurie
Hi gemini:) just saw your comment, thank you, you’re very kind ! Your definitely NOT being a cry baby and for sure you’ll be able to connect with lots of people here that can completely relate with your struggles . Hope you feel better soon xo
Welcome there are so many people on this site that care and have lots of suggestions or ideas. I am new to the site myself. I have Lupus and Fibromyalgia and God knows what else. Ask these wonderful people questions and suggestions and they’ll respond. Hope you feel better soon
Welcome! Thanks for posting. This community is awesome. Keep posting and asking questions. You are a brave person. I think everyone in the community is brave to be able to cope with any autoimmune disease. I too have lost a lot of hair. I have extreme pain at times. My fatigue just won't quit. Sometimes the hurt feels like it is in my bones. I can't sleep. Sometimes I can't eat because my stomach hurts. I have low grade fevers that come on about the same time every afternoon. However, I am still able to wake up and get out of bed in the morning (very slowly). That's a win in my book. Hang in there. We are all rooting for each other.
Minxie!
Thanks for your input Minxie. It means a lot to me that other people can truly relate.
Minxie40 said:
Welcome! Thanks for posting. This community is awesome. Keep posting and asking questions. You are a brave person. I think everyone in the community is brave to be able to cope with any autoimmune disease. I too have lost a lot of hair. I have extreme pain at times. My fatigue just won't quit. Sometimes the hurt feels like it is in my bones. I can't sleep. Sometimes I can't eat because my stomach hurts. I have low grade fevers that come on about the same time every afternoon. However, I am still able to wake up and get out of bed in the morning (very slowly). That's a win in my book. Hang in there. We are all rooting for each other.
Minxie!
Hi. I’m new here too and I can definitely relate. I’ve been struggling a lot lately, which is why I also joined. I can relate to the pain, fatigue, thinning hair, and so much more. Some days are really hard but I’m trying to stay positive. Easier said than done, I know.