Welcome
Newbies Guide To Lupus Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information Guidelines, Privacy, and Terms of Service What is different about a Ben’s Friend’s Patient Community. Our Privacy Statement and Terms of Use Greetings and Introductions New members, start your experience here. Introduce yourself and share your story. Let us welcome you FAQ FAQ about the Lupus Community New User Help Are you a new user? Don’t worry we will guide you through the following videos.
| Topic | Replies | Views | Activity | |
|---|---|---|---|---|
|
About Life with Lupus
What is LifeWithLupus.org? LifeWithLupus.org is a dedicated patient-to-patient support community for families affected by Lupus. LifeWithLupus.org is powered by BensFriends.org patient support communities for rare di… |
|
1 | 5306 | August 26, 2016 |
| About the Welcome category |
|
0 | 2995 | August 26, 2016 |
| 4 tips on how to get the most out of your Ben’s Friends patient community |
|
0 | 310 | November 23, 2022 |
| A Guide to Navigating Interactions with Lupus Patients |
|
0 | 347 | December 10, 2023 |
| First time posting! |
|
1 | 11 | February 13, 2025 |
| How do you explain to people what Lupus is and what it means |
|
31 | 5382 | July 2, 2023 |
| Overwhelmed |
|
5 | 592 | December 20, 2022 |
| Learning to live with Lupus |
|
7 | 880 | December 6, 2021 |
| Privacy Policy |
|
0 | 423 | August 26, 2016 |
| Terms of Service |
|
0 | 414 | August 26, 2016 |
| Community Guidelines |
|
0 | 376 | November 11, 2021 |
| How is Ben’s Friends Different from Social Media and Other Support Sites? |
|
0 | 410 | November 11, 2021 |
| Hi there Becky, how are you? |
|
0 | 527 | January 27, 2021 |
| New User Guide |
|
0 | 670 | October 8, 2020 |
| New to this group |
|
4 | 651 | April 6, 2020 |
| Help finding a good doctor |
|
1 | 682 | May 29, 2019 |
| Creating a New Account |
|
2 | 633 | October 8, 2020 |
| Recently Joined |
|
2 | 967 | May 5, 2019 |
| Lupus since 1985 |
|
3 | 1038 | January 28, 2019 |
| SLE newbie |
|
6 | 1370 | October 2, 2018 |
| Newbie - Recently Diagnosed |
|
8 | 919 | August 17, 2018 |
| Wondering if I might have lupus |
|
10 | 1663 | July 6, 2018 |
| Welcome, Q22 |
|
4 | 1083 | July 5, 2018 |
| Newbie/Flare ups |
|
4 | 1262 | June 14, 2018 |
| Welcome, Judith |
|
0 | 904 | June 13, 2018 |
| Just random stuff |
|
6 | 1936 | June 11, 2018 |
| Welcome, Rachel! |
|
0 | 877 | June 4, 2018 |
| A warm welcome to our new member, Wendee |
|
0 | 827 | June 4, 2018 |
| 53 Year-old Harley Lover Just Diagnosed in March |
|
0 | 805 | May 31, 2018 |
| A warm welcome to our newest intern, Christie |
|
0 | 887 | May 24, 2018 |