Two questions

Does anyone here have avascular necrosis? I had an MRI which alarmed my never alarmed Rheumatologist. When he read the report about my left hip, told me to elevate my leg, lie in bed and see an orthopedist ASAP. I allowed myself a few google searches as I have been on 3 steroids w/o choice for over 7 years now, us found that everything on my MRI report was what one sees with AVN of hip, not to mention my symptoms. I got in very quickly, no referral or Rheumy call. He told me this Friday, and even stood w/ his nurse on what he has never done (1) Friday calls, as he closes down due to being SIL of Orthodox Rabbi, and 2)follow ups which are usually patient obligation. At 3:00 ish (office shuts down on Fri. at Noon) he wanted to know through her if I had gotten an appointment, and how soon? I told them my other unbelievable “miracle”: that I have Tues. this week (Hubby’s BIrthday) this week, (tomorrow) at 9:30! I could have one earlier if I had MD call, but I stuck with only weekend and until Tues. wait. I have effusion, edema on, in. Around (??I cannot remember) femoral head and acetebulum, and it is suffering from cartilage loss there: femoral head and weight bearing
acetebulum. I suffer (am somehow blessed usually w/ great stoicism) from unbelievable pain, cry, have had to move from my required (by Neuro) walker to wheelchair, and if I try to walk, the pain, which I have had checked ever since 2004, when I didn’t understand pain (!!), and showed up a “hematopoietic marrow” problem (AVN is lack of blood flow I gather) and was put on MS Contin in addition to my pre-existing pain treatment (after decade of every NSAID, Ultram, plaquenil, plasmapheresis and IVIG, more and more). Then the docs thought hematopoietic meant search for cancer (Lymphoma due to my Sjogren’s and lymph nodes,now in 50’s on methotrexate. I cannot take the biologics: another story for later. Anyway, walking makes me hurt through duragesic patch and MSContin and gives me a sort of paralysis in that I cannot make my left side move. Anyone recognize this or can tell me (please) I am wrong? I know it requires MD opinion. (My right hip is not as bad, but was predicted to follow.)

Second question very brief: I read with great attention to everything the discussion on TIAs and brain lesions. The side (almost) comment re re learning to talk, maybe Friends weren’t happy, really caught my attention. I have low sodium (condition is SIADH), hospital made very big mistake ; and result looked like right sided stroke. Now the part (I am told) of temporal lobe that controls cessation of speech is literally gone! As my DH says (oh dear) I married you (me) because you were quiet and shy even! Of course he loves me, but I even hate the sound of my voice, am often hoarse without GERD attack, and as I roils put it “gab, gab, babble babble.” :frowning: No Speech cognitive therapist (even the great re hab at McGee has had any idea, and only one MD said “You just have to tell yourself to stop!!” Does anyone have TIAs (I do, but no strokes; my Neuro even “caught” me in middle of one. Or brain injury, or stroke?? That left them talking too much, like my Husband’s Early onset Parkinson’s tremors, during waking hours? Penny for your thoughts or speech! :slight_smile: Be Well, burtiebee Lizzie

I'm confused but yes I have AVN of both hips and both knees I had a core decompression done of each of these joints with good results but was not allowed to weight bear for 6 weeks During that time I used crutches or a wheelchair. You are right the pain is endless - at a certain point I had the knee (most painful) replaced Good luck at your ortho visit

My left knee is exactly the same as your hip but my diagnosis is bone contusion not AVN.. I do have wide spread edema, infusions in my bone marrow and extremely abnormal cartilage loss in my left knee, shoulder and both hips so I totally sympathize with the pain! Im only 34 an restricted to a walker and wheelchair too... its really important to try to keep walking when its tolerable and of course don't over doing it ,I know sometimes it can feel impossible :/bone pain is unbearable and excruciating so I hope your getting some comfort from your pain medication .

I have AVN in my left hip. Ortho told me years ago I needed a new one, but wanted me to lose weight first so I didnt overstress the new joint. After I lost 50 lbs, my hip doesnt hurt nearly as much…I dont need the surgery anymore

Hi!, having Lupus cause sooooo mano problemas til we just Getafe to a point it don’t matter-smile . So if the doctor , suggest something totally different everytime , we start thinking that Is what the problem Is. This Is what happening with me with my left hip also , of corsé the rhab didn’t work the orthro doctor didn’t one treatment of therphy and said that i/we Washington in no shape to do the theraphy , and has 2 MRI’s and one bone denecy test, nos am back to taking another MRI and another bone denecy test! I give up! And paín pills only mate me sleep!! There Is nothing i feel Williams help me. Am going to do those test and hope they solve This problem for the doctor. He Is really nice and he has Been my doctor from the start -i don’t wait to change! I really hope for the best for all of us that has This Lupus situation with Lupus, wishes go out to you …Beverly L.