I'm so sorry to hear your not feeling well and if you've felt abit better before it could be a flare arising...take notice of your body and symptoms and it thrieves off depression badly so you will feel symptoms more if you are depressed.
If your like me i've noticed the big down fall in 2yrs since being diagnosed 5yrs ago and my hubby said he's seen more in the last year.
My heart goes out to you and i hope it's not a flare for your sake...all my love to you Terri xxx
Unshoreandscared said:
Feeling very down today. Not sure if this is a flare or just me being depressed. Its almost one year since diagnosis.
The meds have been reduced to just plaquenil and atenolol so that was positive. I am just dealing with alot of family dysfunction and this illness, with flares is making me feel worthless. Plus, trying to advance at my job, for a higher salary so I can get a house. So many aspirations, but then I feel like poop and then I think, is it worth the effort.
It feels like a mid life crisis at only 34 years old. But, thankful for this network of friends and thank you for the caring words.
Unshore
astrid40 said:
Hi Unshoreandscared, I am so sorry to hear you are feeling so awful. I went through a patch feeling really low last week, and wasnt whether it was down to the fact i was and still am having a huge flare at the moment. I expect one is causing the other. I expect the flare is probably having a knock on effect and making you feel low. As feeling down is all part and parcel of having the Lupus. And i expect you are feeling really fed up with how ill you have been feeling, so its not surprising you have been feeling like you have. How are you feeling that its been one year since the diagnosis? Since you got the diagnosis, do you feel as though you have got worse? Have the meds you have been put on helped? I have been diagnosed now for about twelve years. When i look back to when i was first diagnosed, i wasnt quite as unwell as i am now, but i know i was in so much pain, it was unbearable. So, some factors are better than others. When i am feeling down, i try and think of something that i can do for myself, to help make me feel a little better, whether its something silly like putting a face mask on, or soaking my feet in something nice. Or just looking at a magazine. Or if i have enough concentration, i will find a book i have been meaning to read for a while. Sometimes though we cant even think like this. Its really good you have come on here for a chat, as we all know what it feels like to be feeling down. I would think the feeling down is abit of a reactive thing, as its understandable really, You will get through this, it isnt easy i know that, and i am sure everyone else would say the same that its not easy. I am thinking of you, you take care, look after yourself, be kind to yourself, you deserve it. We are all here for you, love and hugs Astrid40xoxox
Thank you for the heart with wings and reassurance.
Unshore
Tez_20 said:
Hello unshoreandscared,
I'm so sorry to hear your not feeling well and if you've felt abit better before it could be a flare arising...take notice of your body and symptoms and it thrieves off depression badly so you will feel symptoms more if you are depressed.
If your like me i've noticed the big down fall in 2yrs since being diagnosed 5yrs ago and my hubby said he's seen more in the last year.
My heart goes out to you and i hope it's not a flare for your sake...all my love to you Terri xxx
Unshoreandscared said:
Feeling very down today. Not sure if this is a flare or just me being depressed. Its almost one year since diagnosis.
Hay there!!!, get some rest , and hang in there . Think of something that was very funny and laugh !!! And remember that we are here for you ... Hope that you feel better soon .... Beverly L.
Unshoreandscared said:
Feeling very down today. Not sure if this is a flare or just me being depressed. Its almost one year since diagnosis.
We want to be able to handle things with our families - but remember that sometimes we have to handle our stress level by resting then try to deal with the function of the family at the right time !! We can't do things sometime when problem come about , but we do have to try after we handle what is going on with ourself. Just don't stress it and make sure that you get the rest that you have to have , okay ??? talk with you later ... Beverly L.
Unshoreandscared said:
Hi Astrid,
The meds have been reduced to just plaquenil and atenolol so that was positive. I am just dealing with alot of family dysfunction and this illness, with flares is making me feel worthless. Plus, trying to advance at my job, for a higher salary so I can get a house. So many aspirations, but then I feel like poop and then I think, is it worth the effort.
It feels like a mid life crisis at only 34 years old. But, thankful for this network of friends and thank you for the caring words.
Unshore
astrid40 said:
Hi Unshoreandscared, I am so sorry to hear you are feeling so awful. I went through a patch feeling really low last week, and wasnt whether it was down to the fact i was and still am having a huge flare at the moment. I expect one is causing the other. I expect the flare is probably having a knock on effect and making you feel low. As feeling down is all part and parcel of having the Lupus. And i expect you are feeling really fed up with how ill you have been feeling, so its not surprising you have been feeling like you have. How are you feeling that its been one year since the diagnosis? Since you got the diagnosis, do you feel as though you have got worse? Have the meds you have been put on helped? I have been diagnosed now for about twelve years. When i look back to when i was first diagnosed, i wasnt quite as unwell as i am now, but i know i was in so much pain, it was unbearable. So, some factors are better than others. When i am feeling down, i try and think of something that i can do for myself, to help make me feel a little better, whether its something silly like putting a face mask on, or soaking my feet in something nice. Or just looking at a magazine. Or if i have enough concentration, i will find a book i have been meaning to read for a while. Sometimes though we cant even think like this. Its really good you have come on here for a chat, as we all know what it feels like to be feeling down. I would think the feeling down is abit of a reactive thing, as its understandable really, You will get through this, it isnt easy i know that, and i am sure everyone else would say the same that its not easy. I am thinking of you, you take care, look after yourself, be kind to yourself, you deserve it. We are all here for you, love and hugs Astrid40xoxox
Hi Unshoreandscared, Thankyou so much for your reply. I am so sorry you have so much to deal with. It never rains but it pours sometimes. My problems are slightly different to yours. Mine is having a flare, and a burst pipe that runs through from outside into the kitchen, that means the kitchen has to be dug up, which is the last thing i feel like dealing with at the moment as you can imagine. Talking of family and dysfunction, there is a good book i think called Family and How To Survive Them. Its a practical look at the way families are to each other, but also has a comical side to it as well. Family are always the worst for being horrible to each other, and taking each other for granted. And its usually the nicest family member that gets the brunt of everything awful and the blame for everything that may or not have gone wrong. I think its because with family they know they can behave like this towards each other, because people are less lightly to say i have had enough of you, whereas if a friend behaved badly you probably would. We forgive our family but not our friends if they treat us badly. Also another really good book to read is The Games People Play. As in all relationships whether it be with family or friends, alot of game playing goes on. And having an insight really helps. My husbands father was a psychologist, and he recommended me a couple of books as i used to get really upset with a couple of my family members years back. These things might not be relevant to you. You are definately not worthless. You might feel worthless, you are a lovely person with a lot to give. Its all too easy to put ourselves down when we are feeling low, we all do it. I have days where i feel totally useless, so i do understand. You are doing so brilliantly, and i know it must be really hard for you, especially still holding down a job, you are totally amazing. Well done, and keep up the good work, i admire you. I do understand why you want to get a higher paid job, just be careful though not to burn yourself out. I did that a good few years back, i was working four different jobs at once, i had one full time one, and when i had finished for the day i would go to work in the evenings, and at weekends doing other work, then i would also sell avon, in the end i just wore myself out completely and wasnt able to do anything. I am sure you wouldnt end up doing this, but its always good to be aware especially as you have Lupus. Like i said i think you are so amazing keeping going. Is there anyway you could find something where you could work from home at all? That was one of my ideas when i was not as ill as i am now. For me, i find pacing myself helps and making sure i get enough rest when i need it, although thats not always possible as i am sure you know for yourself. I really hope things start to improve for you. I am thinking of you, look after yourself, take care, prayers, love and hugs Astrid40xoxo
Unshoreandscared said:
Hi Astrid,
The meds have been reduced to just plaquenil and atenolol so that was positive. I am just dealing with alot of family dysfunction and this illness, with flares is making me feel worthless. Plus, trying to advance at my job, for a higher salary so I can get a house. So many aspirations, but then I feel like poop and then I think, is it worth the effort.
It feels like a mid life crisis at only 34 years old. But, thankful for this network of friends and thank you for the caring words.
Unshore
astrid40 said:
Hi Unshoreandscared, I am so sorry to hear you are feeling so awful. I went through a patch feeling really low last week, and wasnt whether it was down to the fact i was and still am having a huge flare at the moment. I expect one is causing the other. I expect the flare is probably having a knock on effect and making you feel low. As feeling down is all part and parcel of having the Lupus. And i expect you are feeling really fed up with how ill you have been feeling, so its not surprising you have been feeling like you have. How are you feeling that its been one year since the diagnosis? Since you got the diagnosis, do you feel as though you have got worse? Have the meds you have been put on helped? I have been diagnosed now for about twelve years. When i look back to when i was first diagnosed, i wasnt quite as unwell as i am now, but i know i was in so much pain, it was unbearable. So, some factors are better than others. When i am feeling down, i try and think of something that i can do for myself, to help make me feel a little better, whether its something silly like putting a face mask on, or soaking my feet in something nice. Or just looking at a magazine. Or if i have enough concentration, i will find a book i have been meaning to read for a while. Sometimes though we cant even think like this. Its really good you have come on here for a chat, as we all know what it feels like to be feeling down. I would think the feeling down is abit of a reactive thing, as its understandable really, You will get through this, it isnt easy i know that, and i am sure everyone else would say the same that its not easy. I am thinking of you, you take care, look after yourself, be kind to yourself, you deserve it. We are all here for you, love and hugs Astrid40xoxox
Thanks Tez_20, for the lovely reply, and anytime you need to vent, just go for it, there is not time limit in any way here at LWL when a family member needs to talk, vent, get advice, or just be heard, and don't forget it. Many blessings and hugs.
Unshoreandscared said:
Thank you for the heart with wings and reassurance.
Unshore
Tez_20 said:
Hello unshoreandscared,
I'm so sorry to hear your not feeling well and if you've felt abit better before it could be a flare arising...take notice of your body and symptoms and it thrieves off depression badly so you will feel symptoms more if you are depressed.
If your like me i've noticed the big down fall in 2yrs since being diagnosed 5yrs ago and my hubby said he's seen more in the last year.
My heart goes out to you and i hope it's not a flare for your sake...all my love to you Terri xxx
Unshoreandscared said:
Feeling very down today. Not sure if this is a flare or just me being depressed. Its almost one year since diagnosis.
OMG! Fatigue?! did you say fatigue?! I only have about 2-3 hours a day, if I'm lucky to get anything done. I am a newbie lupie and just started meds. But the fatigue and terrible nights are awful. I too had low iron, way low vitamin D, B12 and magnesium that they told me. That's bound to make even non-lupus patients tired. Have you read "The Spoon Theory"? If not, google it. I love the explanation of how our energy is measured every day by a certain number of spoons. Each task takes away a spoon, so you have to plan carefully. I hope we both get to feeling better soon! I just came home from a nephrologist to see how to treat my high blood pressure. I apparently don't fit the typical mold. ; ) Good luck!
Yes it was fatigue mentioned and it's one issue that's so hard to over ride....only getting 2-3hrs sleep you must feel terrible but i take so many drugs i'm knocked out for the count unless the lovely leg spasms occur which are painful.
It sounds with the low low iron, way low vitamin D, B12 and magnesium that you could be possibly be an anaemic..it took 6mths for my bloods to show it again and now i'm on folic acid daily for life besides a b12 jb every 3mths as i have megolablastic anaemia but i had it in the past but the lupus sent my count down rock bottom to 8.0 and yes it does make you extremly tied and you've definitely got no get up or go and when i had it years back i was so low and crying with it, it caused me to over dose on drus and ended up in hospital for over a week and i did'nt get back to normal till they put 5000 of b12 back into my system...so i really know how your feeling besides the lupus on top.
I've read the spoon theory ages ago but just carry on a per-usual but at a low pace...sorry to hear they can't treat your high blood pressure as they can't treat my low blood pressure.
All my thoughts are with you. xxx
artchick said:
OMG! Fatigue?! did you say fatigue?! I only have about 2-3 hours a day, if I'm lucky to get anything done. I am a newbie lupie and just started meds. But the fatigue and terrible nights are awful. I too had low iron, way low vitamin D, B12 and magnesium that they told me. That's bound to make even non-lupus patients tired. Have you read "The Spoon Theory"? If not, google it. I love the explanation of how our energy is measured every day by a certain number of spoons. Each task takes away a spoon, so you have to plan carefully. I hope we both get to feeling better soon! I just came home from a nephrologist to see how to treat my high blood pressure. I apparently don't fit the typical mold. ; ) Good luck!
Your welcome and don't worry when i need to vent, everyone will know on a thread, as i go day by day like the rest of the family of LWL but there comes a time when everything comes flowing out, only those can understand who suffer the same problems.
