Tired all the time - Why?

Hi everyone I am just sharing this one. I found an interesting Q and A from Mayo Clinic. Maybe you can relate to this one. It gives thorough explanation why Lupus makes you feel tired all the time.

DEAR MAYO CLINIC: One year ago, at the age of 33, I was diagnosed with lupus. I am taking medications to help with flares, which are reasonably controlled, but I'm exhausted all the time. Is this just a part of the disease, or is there something that can help with fatigue?

ANSWER: Fatigue is a major problem in 50 percent to 80 percent of lupus patients and can be quite disabling. The specific cause, however, varies from person to person, with many potentially treatable conditions. Identifying what's causing you to feel run down much of the time is a good starting point.

Lupus is an autoimmune disease, meaning the immune system attacks the body's own tissues and organs, causing inflammation and damage. Lupus can affect any system in the body, but the skin, joints, lungs, kidneys and blood are most often affected. Because lupus can affect so much of the body, it's important that you work with a rheumatologist -- a specialist in the diagnosis and treatment of arthritis and other inflammatory joint conditions -- and/or a specialized care team familiar with lupus.

A number of factors can contribute to your feeling tired on a daily basis. Factors that are related to lupus include anemia, fever, and lung and heart disease. Decreased exercise capacity from reduced blood flow or inflammation in the muscles can also cause fatigue. In some cases, iron deficiency anemia, low thyroid function, infection and certain medications are responsible. Blood tests are very useful in pinpointing and differentiating between causes.

It's also important to recognize that poor quality sleep, fibromyalgia and depression are common causes of fatigue in patients. Living with the unknowns and emotional stress of a chronic disease such as lupus can cause a person to become clinically depressed. If you have feelings of hopelessness or general sadness, or if you have a loss of interest in daily activities, let your rheumatologist know.

Treatment should be tailored to the cause of fatigue. Ask your doctor if he or she thinks an underlying condition may be contributing to your fatigue. For patients with mild lupus, medications like corticosteroids and hydroxychloroquine can help. Some benefit has also been shown for a supplement called DHEA (dehydroepiandrosterone), but DHEA has significant side effects and should be taken only if prescribed by your doctor. In many patients, though, a clear cause is not discernible. If that is the case, making lifestyle changes will help you cope and lead a productive life.

There are things you can do daily to ensure that you aren't always feeling exhausted. Try to pace yourself in your daily activities. Taking frequent planned breaks or a nap during the day -- even if you don't feel tired -- can help you slow down and give your body the additional rest it may require to get through the day. Plan your day and eliminate unnecessary tasks or chores that can be delegated. Avoid total bed rest, as it can lead to de-conditioning of muscles and worsen fatigue.

Be sure to exercise regularly, which can actually increase your energy level. Taking part in any kind of exercise -- especially one that includes both an aerobic and strength training component -- is good for your overall well-being. Activities like walking, swimming and low impact aerobics are good choices. Use of moist heat (e.g., hot tubs, whirlpool bathtubs or a hot shower) may help patients who commonly experience sore muscles following exercise. Before embarking on an exercise program, check with your rheumatologist to see if it is safe to do so. Pay attention to your sleep habits and consult with your doctor if you experience sleep difficulties.

Eat a healthy diet that consists of fruits, vegetables and whole grains. If you have dietary restrictions or concerns, ask your doctor what foods will be beneficial for your situation.

Finally, don't be afraid to ask for help. Eliminating fatigue altogether may not be realistic for people who have lupus. But by working with your health care team, you should be able to determine the cause and hopefully lessen the amount of fatigue you are currently experiencing. -- Vaidehi Chowdhary, M.D., Rheumatology, Mayo Clinic, Rochester, Minn.

http://www.chicagotribune.com/health/sns-201302151400--tms--mayoclnctnmc-a20130215-20130215,0,147768.story

I understand how you feel sometimes I feel like if I were to stand still too long I would go to sleep!

I just wish my family understood they think I'm lazy and that really hurts my feelings. But at least people with Lupus understand. Keep your chin up and remember it's NOT you fault!

Piewacket

Hi Piewacket: I just posted a discussion yesterday and what you are saying is exactly my biggest frustration at this point. Ihave learned to accept I have lupus already, but I am really tired of people not understanding and still thinking we are milking or dwelling on this, is not like they say it to your face but it is so obvious. I truly need help on this since i am starting to resent it and it is affecting the relationship i have with the people I love.

Piewacket said:

I understand how you feel sometimes I feel like if I were to stand still too long I would go to sleep!

I just wish my family understood they think I'm lazy and that really hurts my feelings. But at least people with Lupus understand. Keep your chin up and remember it's NOT you fault!

Piewacket



Donatella said:

Hi Piewacket: I just posted a discussion yesterday and what you are saying is exactly my biggest frustration at this point. Ihave learned to accept I have lupus already, but I am really tired of people not understanding and still thinking we are milking or dwelling on this, is not like they say it to your face but it is so obvious. I truly need help on this since i am starting to resent it and it is affecting the relationship i have with the people I love.

Piewacket said:

I understand how you feel sometimes I feel like if I were to stand still too long I would go to sleep!

I just wish my family understood they think I'm lazy and that really hurts my feelings. But at least people with Lupus understand. Keep your chin up and remember it's NOT you fault!

Piewacket

Hi Donatella, I'm sorry that you have to put up with that I know what you are feeling. I have an 11 year old nephew who is my heart and soul I love that boy more than I thought possible. My sister tells him that the reason I sometimes sleep a lot or when I am in too much pain to do things that that's the way I want it that I want people to feel sorry for me but my nephew is too smart for that. But it still hurts when your own family makes hurtful comments about you. Here is something you might try I took my mom to my rheumatologist with me and had him have talk with her and every since my family has been more understanding with the exception of my two sisters they are still mean and hateful. But I have come to the realization that it is NOT MY FAULT and I won't let them make me feel bad for something I have no control over. I know that just like the rest of us you are a good person and you are not trying to get away with anything it's just the way it is, We did not ask for this and we are doing the very best can. Remember that you are doing the best you can and if the people around you can't understand that then that is THEIR problem. You have enough to deal with don't let them get to you. I know that it is easier said than done but give it a try. If you ever need to talk just let me know! Be well and God Bless you.

Piewacket

Piewacket said:



Donatella said:

Hi Piewacket: I just posted a discussion yesterday and what you are saying is exactly my biggest frustration at this point. Ihave learned to accept I have lupus already, but I am really tired of people not understanding and still thinking we are milking or dwelling on this, is not like they say it to your face but it is so obvious. I truly need help on this since i am starting to resent it and it is affecting the relationship i have with the people I love.

Piewacket said:

I understand how you feel sometimes I feel like if I were to stand still too long I would go to sleep!

I just wish my family understood they think I'm lazy and that really hurts my feelings. But at least people with Lupus understand. Keep your chin up and remember it's NOT you fault!

Piewacket

Hi Mary,

All the ailments it says causes it..i have and my blood flow is bad especially through the legs and although i'm on plaquenil which helps my skin only to a certain degree now, there's no help for me otherwise and it's took my disability and energy to it's lowest and i'm sleeping more now than i've ever done but for pacing life and taking breaks...i've always stated this to any member.

Good info you've added about tiedness which will help many members who wonder about it and especially new ones.

Terri :)

I know how you all feel. And I have no support from my family. I’m tired of the pain. Tired of being tired and tired of getting no help from my family. I’m all alone. No one to help me. It’s not fait

Hello Jillynic,

I am sorry to hear of how your feeling besides your position and coping with it, it's just a pure shame your family won't consider what your going through and get stuck in where helps needed, we have many members the same as yourself with family where they're not considered and try and fight it alone best possible but it can be so waring out mentally at times.

All my love to you Terri xxx





Jillynic said:

I know how you all feel. And I have no support from my family. I'm tired of the pain. Tired of being tired and tired of getting no help from my family. I'm all alone. No one to help me. It's not fait

Jillynic, I can empathize with you. I am so exhausted all the time and so tired of being told well you just need to get up and do your house, be at work everyday and get out and do it all. Your really not that sick, it’s all in your head cause you want people to feel sorry for you and you just fake exhaustion and falling for attention. I just discovered the other day that some of my “closest friends” have been going around saying that to some of my other friends and some family members have agreed with them. I am so tired of fighting this all the time and no one seems to have solutions. I feel my outlook spiraling way down and I almost just don’t care anymore. If this stupid disease is gonna continue to cause me too loose everyone support around me and make me be the constant subject of their verbal and emotional bullying I wish it would just run it’s course and kill me already! Today I just don’t care anymore. I’m venting why I don’t know it won’t change anything. It just really sucks. And I’m so tired of keep trying all these different avenues of trying to get better with the same or worse outcome.

Thank you every one for your replies.. <3

Hello Mary,

Your welcome and how you feeling?...an update when you can would be nice.

Hugs Terri xxx

mary said:

Thank you every one for your replies.. <3