So my last post was worrying about prom. Well now i just found out im pregnant. We all probably know the medication isnt good for the baby and your suppose to be off of it while trying to conceive. Obviously i wasnt trying to, but it happened. Does anyone know if i stop the medication now if i should be okay to have a HEALTHY baby? I couldnt imagen aborting a child for my mistake. PLEASE HELP!!!
You need to talk to your OB You can also read up on each of your medications to see if they cause birth defects
Hi Hon,
I have a dear lupus friend who is also expecting and her Dr. took her off ALL medicines immediately. You will go through withdrawal, and I'm so sorry for you, but you will get through it. I'm not sure whether I should say congratulations or I'm sorry. How do you feel about being pregnant? I got pregnant at 18, so closer to the end of being a teenager. I got married. I felt better during pregnancy! I hope that happens for you too! Whether your baby will be perfect or not depends on a lot of things. Which meds you are on and which doses and how far along you are. You won't know until you get some ultrasounds when the baby is farther along, but PLEASE try not to worry. That will make your pregnancy and health and lupus much worse. Many of us were born "not perfect" but are living a productive life. Each of my daughters had a side effect of lupus. One had a hole in her heart that was discovered when she was 21 and fixed in minutes, and the other was 2 months premature. You can't blame yourself for what happened since the beginning of the pregnancy, because you didn't know you were pregnant. Just do the best you can from today forward. Please go see an OB-GYN right away because lupus pregnancies are considered high risk pregnancies. My Mom was on TONS of meds with each of my siblings and we are all alright except for Lupus, which is genetic in many families, so don't worry. The Dr told my Mom I would be retarded, blind, deaf and crippled, and I'm fine except for lupus. She almost aborted me. Oh, I do have one deformity. My baby toenails grow straight up instead of flat, but every time I look at them, it reminds me of how blessed I am that I didn't have all those deformities the Dr. thought I'd have. Most of us were Moms while sick also, so don't worry about that either. We just take one hour or one day at a time.
You now qualify for a program called (Oh shoot I hate lupus fog. It was on the tip of my tongue.) It is a program that helps you with prenatal care and gives you coupons for healthy foods and drinks. OH! WIC! Women, Infants, Children. You can stay on that even when your baby is a child, If you don't have insurance, seek out medicare, or seek out social services, which will help you with rent and utilities and medical care.
Hugs!
Sheila
Im going to be 17 in september and about 4 weeks along. Im on hydroxychloroquine and azathioprine and prednisone. My moms getting in touch with the reumotologist today.
It depends on the medication. Both prednisone and plaquenil were safe and I took them throughout my pregnancies. However I was followed by a high risk OB/GYN for all of my pregnancies. You have to be monitored continually for things like fetal heart block, clotting issues, etc… So my advice is to see your OB as soon as possible. Good luck!
You should not take advice on something like this from a forum...this needs to be decided and discussed with your medical team. Each situation and each case is completely different. Some people get taken off all meds, some people have to stay on everything. Some stay on one or two...but it comes from medical advice, not personal opinions. Get in touch with your providers.
I had my son at 17. I actually felt better with my 2nd pregancy. Your ob and rheumy should be able to help you with the meds. I hope you and the baby do good thru out the pregancy. Keep us posted.
You should see the dr. NOW!!! I was very high risk and certain meds will cause your baby brain damage. This is not a forum question, this is something your dr should be answering now. I’d stop all medication until I had an answer. I only took low dose prednisone when I was pregnant. Healthy preemie but I had many complications to myself due to the fact I couldn’t take other meds. I hope you get help soon.
Ask your doctor...
fan said:I totally agree please consult with your physician immediately. God Bless
You should see the dr. NOW!!!! I was very high risk and certain meds will cause your baby brain damage. This is not a forum question, this is something your dr should be answering now. I'd stop all medication until I had an answer. I only took low dose prednisone when I was pregnant. Healthy preemie but I had many complications to myself due to the fact I couldn't take other meds. I hope you get help soon.
Im off both medications but she raised my dose of prednisone. Im going to a high risk doctor this week. Thank you guys! U all took me off panic mode. Please keep my baby in your prayers!
I felt compelled to reply to your post 
I was 18 when I was diagnosed with lupus that year I had my 1st miscarriage a year later a stillborn. At 20 we welcomed my daughter into the world. She is my world and I adore her! Most people don’t have a planned pregnacy at 20 however my doctor explained that if we wanted a family we were gonna have to start young. Abbie is now 3! She can read, talks as well as an adult lol! Because my husband and I were in college we have had the opportunity to spend a lot of time with Abbie we both stayed home with her until she turned 1. being young and a parent in my opinion is awesome!
Thats adorable! Im just praying that this one is healthy.
Bless your heart....prayers are with you!
Lori
I took 80mg of prednisone daily after the 2nd month. I also took heprin shots to prevent blood clots causing a miscarriage. Hope that helps. God bless
I feel like I should comment here as well. I'm glad that you called your doctor and figured out which meds to take. I had an unplanned pregnancy at age 17. I still remember like it was yesterday. The father was my high school boyfriend of 3 years. He was NOT a person I would ever marry. My family moved to KY, he lived in KS (I am a military brat). I told him that we could be friends but I didn't really want him involved. I dropped out of high school to start community college early, transferred to a University (WKU), and got a degree in Dental Hygiene. It was just me and Jake (my son) the whole time I was in school. No family around, they had moved to Arkansas by then. It was hard. No money, lived on student loans, which I am still paying back. His biological father also helped me out financially during that time, even though I didn't go through the court systems. He was just trying to do the right thing. That degree enabled me to make a decent living right out of school (which is why I chose it). Lots of sleepless nights. I studied after he went to sleep. He is now 12 and I also have a 3-year-old son. I am married, have been for 6 years now. My Lupus got worse after my second son was born, in fact, that was when I was officially diagnosed. I have not been the same since. I truly wish you the best of luck. Just know that whatever happens, you can deal with it. There will be people who judge you (like they have never made a mistake in their life). Just so happens your mistake will end up producing a miracle OR not. If your pregnancy doesn't make it to term, that could be a blessing in disguise. My point is that you really don't know what lies ahead for you. Just stay strong, if somebody brings you down-oust them (you don't have the energy to deal with any nonsense), focus on making yourself better, and realize that you CAN do it, whatever it is. You just may have to find an alternate path.