Hi everyone, I'm trying to get disability. I have Lupus, Connective Tissue disorder, Sojgrens and Scleroderma. Now tonight I've started with a terrible migraine. I've taken my pain meds, Phenergan and Tramadol. Nothing helping. Does anyone have any suggestions?
Please help :-(
Rhonda
I haven’t got much in terms of advice unfortunately but I know how you feel! I get terrible headaches and migraines but I don’t have any meds as I haven’t been properly diognosed yet. The only medication I’m on is amatriptaline which helps a little with sleep and headaches. Just try to get lots of sleep at night if you can and turning down brightness on phones, tv, computer, room lights ect help a little. Sorry I’m not much help! Hope you’re feeling a little better soon! x
Rhonda…I used to take tramadol and it just wasnt touching them so now I use disolvable Maxalt…I swear by it!!! Please try it.
I don't have much advice either, but I know what helps me. I get accupuncture and chiropractic treatments. When you are inflamed it can put pressure on your neck and that causes my headaches. Chloe has good advice too.
Hope you feel better soon.
geneva21 said:
I don't have much advice either, but I know what helps me. I get accupuncture and chiropractic treatments. When you are inflamed it can put pressure on your neck and that causes my headaches. Chloe has good advice too.
Hope you feel better soon.
My daughter is now 25 years old and has been suffering from Lupus symptoms for 8 years. She was finally formally diagnosed last year. One of her earliest symptoms was migraine activity. She has had everything from dreadful, excruitiating headaches, to temporary vision loss (on several occasions losing her sight completely for a couple of minutes several times a day), horrible nausea, inability to speak, loss of use of one arm, etc., etc.
On a couple of occasions, she has agreed to go to the emergency dept because of the migraine. Other times, she has already been at the hospital because of other symptoms and felt one coming on. What is most effective is if she gets IV fluids to get REALLY hydrated, as well as IV metropolol. That seems to resolve all symptoms. She has asked if there is anything that she can be prescribed to take at home when she feels that there is one coming on but was told "no" by her neurologist.
An MRI was done of her brain a few years ago and he found was was called a small benign mass. We were told it was nothing to worry about. However, based on that, she can't have anything for her migraines.
Hmmm.....
I take nortriptyline and can tell a difference. My headaches most of the time though are not full blown migraines. I get ocular problems more than the bad headaches. So sorry you are suffering this, wish I could be more helpful.
I’m so sorry Concerned Mom! I went to a neurologist after being diagnosed w Sjogren’s and developing lupus. Started having migraine’s after diagnosis and she prescribed Rizatriptan for when it starts to come. I wonder why they won’t prescribe it?
Because of advanced kidney disease I can't have any of the traditional migraine meds either as they cause vasospasms However I take verapamil, a calcium channel blocker to prevent There are several other meds that can be used- Inderal is one- a beta blocker which I believe metoprolol is too and some of your anti-convulsants Perhaps you could ask your neuro about this.
I have had several migraines but the worst one I had was when It woke me up out of a dead sleep at 3am in the mornng, couldn't see, light just killed my eyes, and throwing up. Husband had to take me to he emergency room and the immediately took me back. Hope and pray I and nobody else ever has to expierence one of those.
Also inregards to getting your disability, and as bad as I hate tosay this, but speaking from experience you'll have a better chance if you suffer from any type of mental issues along with your other illness. Good luck to ya
Working in pharmacy, I have to attest that survivor4ever is right mental issues, drug and alcohol abuse tends to get a better chance of disability then physical limitations.