Restless Leg Syndrome

General
1

I was wondering if any of you have had to deal with Restless Leg Syndrome? I have it so bad that I find myself rocking back and forth in pain. Sometimes it brings on my neuropathy in my right thigh and I am up till all hours of the night. Sometimes I am so exhausted I fall asleep sitting up. Do any of you have something that works for you?

Thank you.

2

AuntPearl,
I recently had a sleep study to rule out sleep apnea, which they did, but found I had RLS. I didn’t know that was part of my problem, but now that it has been diagnosed, it makes sense. I was put on med called neupro (patch). I don’t think it is helping yet, but as with so many of the Rxs I take, it will probably be a couple of months before it starts to help. I wouldn’t have had any idea if I hadn’t done the sleep study.

3

Thanks so much Sunflower. I am going to check into that patch.

Sunflower said:

AuntPearl,
I recently had a sleep study to rule out sleep apnea, which they did, but found I had RLS. I didn't know that was part of my problem, but now that it has been diagnosed, it makes sense. I was put on med called neupro (patch). I don't think it is helping yet, but as with so many of the Rxs I take, it will probably be a couple of months before it starts to help. I wouldn't have had any idea if I hadn't done the sleep study.
4

i have restless leg but it has never been painful check with your doctor because it is not suppose to be just aggravating and loss of sleep, i get up and walk around for a bit or get on treadmill and that helps sometimes nothing helps, good luck

5

seriously go to your regular doc on that. becuase it really has something ot do with thnervous system which yes--is usually affected by lupus. but thaat doc can get you the care you need fasxter.

sometimes at night when its so bad i cant sleep. i have to take a pain pill just to relax my muscles.

so i comepletely understand.

i am glad u posted this.... i am going to mention this to my doctor this week ,,,this has gone on too long.

6

I haven't been diagnosed with it but I do think I have it.. I lay in bed some nights and have to keep moving constantly cuz my legs feel sooo funny, like I have to move them.. and sometimes it feels like something is crawling on me and I stay still to get a good look and nothing is there. I would definitely ask your doc about it, especially if it's painful..

7

Oh I have definitely asked my doctor about this. I was diagnosed with Restless Leg Syndrome many, many years before Lupus. I have been told that my aunt had it when she was young but of course back then it didn't have a name. I take a drug called Requip for it and it does help but some nights nothing seems to help and I am up all night.

Thanks for all your comments.

Take care.