The day I read about the lupus "fog" I felt so relieved. I have a terrible time sometimes trying to get a point across to people when I am have a discussion about things. It is so bad that I constantly look to my husband to finish my sentences. I am lost when he is not with me because some people get impatient with me and when I get nervous just forget about me finishing my sentence. Sometimes a word just will not come to me and my husband calmly says "give me a hint" and we play the guessing game.
It is very frustrating because I certainly am educated on a certain subject to have a conversation but some who don't really know me think I am being just a scatter brain.
The day I read about the lupus "fog" I felt so relieved. I have a terrible time sometims trying to get a point across to people when I am have a discussion about things. It is so bad that I constantly look to my husband to finish my sentences. I am lost when he is not with me because some people get impatient with me and when I get nervous just forget about me finishing my sentence. Sometimes a word just will not come to me and my husband calmly says "give me a hint" and we play the guessing game.
It is very frustrating because I certainly am educated on a certain subject to have a conversation but some who don't really know me think I am being just a scatter brain.
Hi, that sound alot like myself , but I have gotten to the point where I can and do Laugh at myself when this happens. Yes sometimes it is not funny , that is when I just remove myself away from the conversation. But most people who are around me all the time, they have gotten to the point to where they just keep talking . Most of the time when am out handling business , someone is always with me just in case this happens- most times it will be my oldest son, he is Very helpful and take the time to understand me. To sum this up , it is okay ! Just take your time and relax , even when you know when it starts to happen…Beverly L.
auntpearl said:
The day I read about the lupus “fog” I felt so relieved. I have a terrible time sometimes trying to get a point across to people when I am have a discussion about things. It is so bad that I constantly look to my husband to finish my sentences. I am lost when he is not with me because some people get impatient with me and when I get nervous just forget about me finishing my sentence. Sometimes a word just will not come to me and my husband calmly says “give me a hint” and we play the guessing game.
It is very frustrating because I certainly am educated on a certain subject to have a conversation but some who don’t really know me think I am being just a scatter brain.
Yes there are moments that we cry , but just keep the Faith that is within you and knowing that we are still humans that can and need to be Loved , with Hope to over come Lupus someday...Beverly L.
Latina said:
These illnesses can become overwhelming to deal with. Then comes the environment--work, home, family, and friends. The icing on the cake is when we "morn" our health (cry remembering how healthy we were). I'll say we are "normal" and no one should blame us if we react to our dilemma. It is part of the package we get with the disease. Anti-depressives don't hurt.
Oh Beverly I so agree...Laughter is still the best medicine. I learned early on from my mother, as ill as she was, she could always find something to giggle about.
Take care.
Beverly L. said:
Hi, that sound alot like myself , but I have gotten to the point where I can and do Laugh at myself when this happens. Yes sometimes it is not funny , that is when I just remove myself away from the conversation. But most people who are around me all the time, they have gotten to the point to where they just keep talking . Most of the time when am out handling business , someone is always with me just in case this happens- most times it will be my oldest son, he is Very helpful and take the time to understand me. To sum this up , it is okay ! Just take your time and relax , even when you know when it starts to happen...Beverly L.
auntpearl said:
The day I read about the lupus "fog" I felt so relieved. I have a terrible time sometimes trying to get a point across to people when I am have a discussion about things. It is so bad that I constantly look to my husband to finish my sentences. I am lost when he is not with me because some people get impatient with me and when I get nervous just forget about me finishing my sentence. Sometimes a word just will not come to me and my husband calmly says "give me a hint" and we play the guessing game.
It is very frustrating because I certainly am educated on a certain subject to have a conversation but some who don't really know me think I am being just a scatter brain.
Children have a way of making you feel so good because you are looking at the world through their eyes. My great nieces and nephew give me a hug and I melt.
I cannot not smile when I am around them. When they leave, I still laugh recalling their inocence. They are 2, 4, and 6 years old. They are one of my therapies.
Oh yes it is the very BEST!,!!! Nothing like it! Even when there is nothing to laugh about . A thought from 20+ years ago might pop up in my mind, and there goes the out burst of laughs .So, yes it is very healthy form us , Living with Lupus...Beverly L.
auntpearl said:
Oh Beverly I so agree...Laughter is still the best medicine. I learned early on from my mother, as ill as she was, she could always find something to giggle about.
Take care.
Beverly L. said:
Hi, that sound alot like myself , but I have gotten to the point where I can and do Laugh at myself when this happens. Yes sometimes it is not funny , that is when I just remove myself away from the conversation. But most people who are around me all the time, they have gotten to the point to where they just keep talking . Most of the time when am out handling business , someone is always with me just in case this happens- most times it will be my oldest son, he is Very helpful and take the time to understand me. To sum this up , it is okay ! Just take your time and relax , even when you know when it starts to happen...Beverly L.
auntpearl said:
The day I read about the lupus "fog" I felt so relieved. I have a terrible time sometimes trying to get a point across to people when I am have a discussion about things. It is so bad that I constantly look to my husband to finish my sentences. I am lost when he is not with me because some people get impatient with me and when I get nervous just forget about me finishing my sentence. Sometimes a word just will not come to me and my husband calmly says "give me a hint" and we play the guessing game.
It is very frustrating because I certainly am educated on a certain subject to have a conversation but some who don't really know me think I am being just a scatter brain.