Welcome back Faye! I am prayin for u! I wanted to share, I started plaquenil again, I still take a natural approach to this disease, with food and supplements, but just couldn’t take it anymore. After 1 month I do feel less symptoms and I am happier. I am starting to drink Jasuru also. Can’t wait to see it this helps my joints! Thanks all!
Hello Sue,
I stopped Plaquenil through bad side affects when i first add it plus my joints and spasms got worse i went back on it...it eases my system abit but mainly helps my DLE because the main issues happening with me are alot to do with the sjogren's having a right old field day with my system.
I'm really pleased for you otherwise and seeing the difference slightly in a month.
It does help the joints but it's according to how much your on...i started off on 200 and i'm now taking 400mg daily but need my 4000mg of parcetamol to help me along besides.
All the best mate and please keep we updated please.
Love Terri xxx
Thanks Terri. I hope u r better from the nasty flu! I really neede something, as the all natural wasnt totally doing it for me. I had gi problems when I took it 3 years ago, so I stopped taking it. Then i found out plaquenil has lactose in it, so now I take a dairy enzyme with it. After plaquenil the soc put me on methotrexate which cause liver enzymes to increase that is when I decided to do all natural. It has helped some, but stress related issues kept giving me flares so I decided to go to
Plaquenil again. Prayer for ya!
Hello Sue,
This cold still lingering and quite a few in the area have been bad and i can't tell you how long the neighbours as been going on for but through it...it's kicking skin flare ups off besides my organs.
Natural remedies have to be watched because some can hurt your body more plus with counter reaction...i do known either Armando or Gonzalo added a discussion about it and you do have to be careful.
Well it's funny a new member as just joined called Daisy and she's got to come off plaquenil as it's affected her eyes and the specialist wants her on methotrexate and she's asking about it in her profile....Dapsone which i took is very similar and i was pulled off it i went yellow and my organs swelled with it but come tomorrow i'm to see my rheumo i'll find out what's happening with my feet and hands through cracking and he wants to know if i'll trial Rituxan IV infusions which they're doing for sjogren's now...as that's took over my body and over rode Lupus and if that alone don't see me off god knows what will it's shrinking my organs with dehydration and when a flare comes they swell and go into some right pain.
Sue i am sorry for venting on mate i really do apologise but best of luck with the plaquenil.
Terri xxx
My goodness, well I have had crackin fingers n I use anything n everything n wrap at night I’ve used so many couldn’t tell u which one works. Sorry bout sjrogens. I too battle the dry stuff, the heat in homes kills me! Keep me posted on how u r n the inufuaikns. Tell me about ur appointment tomorrow, well today for u! Best wishes n in my prayers!
Sue
Hello Sue,
Thanks for the Best wishes mate and it could be any form of Arthritis causing your fingers to crack...i only mentioned my feet as my toes have twisted he looked at my hands and saw them swollen and the next thing they're being x-rayed....sjogren's alone is one serious A1 Disease and a right living nightmare to go with it 
Well if dryness bothers you...this is a condition which comes with sjogren's...dizzyLynn joined the site tonight she's not been diagnosed but carries to many symptoms which it gives off and it does'nt always show in bloods there's test run besides to see if you have it....if your interested in viewing the site and discussions the lin is:
www.sjogrenssyndromesupport.org
Sue i'll add a discussion tomorrow about how i got on...as so many members ask me how i'm doing knowing i've had a right struggle with it all.
Do takecare and all my love to you Terri xxx
Thanks Sue. I am beginning to feel better. I too am trying some natural approaches along with the meds that have begun to help. I hope the plaquenil will give some relief. We do what we have to do, don't we! So thankful you are feeling better also.
Hugs,
Faye
Terri n Faye, prayin for ya!
Sue
Oh bless you Sue...your such a wonderful friend :) xxx
my pcp put me on glucosamine for my osteoarthytis in my knees he said the studies show that it doesn't work but he has lots of patients that swear by it. it has helped me tremendously. I have been on plaquenil for 3 weeks now mainly for my hair lossand i think it is helping.
freightliner
Hello freightliner,
Plaquenil is an excellent drug it can take upto 6mths but i first felt it just before 3mths...it does'nt help my hair, mind you i've got mine on the skin head now pointless growing it but are you doing ok otherwise with side affects?
Terri :) xxx
freightliner said:
my pcp put me on glucosamine for my osteoarthytis in my knees he said the studies show that it doesn't work but he has lots of patients that swear by it. it has helped me tremendously. I have been on plaquenil for 3 weeks now mainly for my hair lossand i think it is helping.
freightliner
Hello Sue,
How are you mate and is the plaquenil helping you more now?
I'll wait to hear from you and do takecare.
Love Terri xxx
Hey Teri. Yes feelin better, not whole, but have less fatigue n pain. Still have joint swelling, but the weather n Christmas stress have loads to do with that. How r u doing? Didn’t u go to the doc? Tell me how it went. Take care for nOw!
Hello Sue,
Nice to hear your feeling better regarding fatigue and pain but with joints swelling the weather does go aginst us alot when it's cold and when you have Raynauds ontop it doubles mate....try not to get to stressed out as it won't help plus pace yourself pleazzzzzzz
I went to my rheumo and he was one nice straight bloke and i added this discussion at the time, if you read it, it's better than me typing it out and you know then what's gone on.
Takecare yourself and all my love :) xxx