Hi, I’m reposting this introduction for new member Faithful. Please welcome her to our community.
At 10:30pm on September 12, 2015, Faithful said…
Hi all! Thank say thank you to all who welcomed me! Doing my best to get familiar with this website! What to say about myself? Well, I’m 57 & have been living or surviving with lupus & tons of other health problems that go with lupus for a long time now. Like a lot of lupus patients, I’ve had a hard life with lupus, & as we all know the struggle continues day by day & sometimes moment by moment. My longest hospital stay was a very long 5 year hard streach! That was in my bigining years of lupus. In the past 5 years I have been ressessatated 7 times. I’ve since made my will & there will be no more ressessatations. I believe that if God wants me here, He will keep me here! I tried but failed to have children 7 times. All my pregnancies ended up as stillborns in the 6-8 months, except my 3rd one which was a c section, & was 1lb.9 oz & lived only 2 weeks. I had a full hysterectomy after the last miscarriage. I am on blood thinners for the rest of my life, as I am a clotter & a bleeder too. Some of my most worst health problems are but not limited to both systemic & discoid lupus. I have fibromyalgia, rumatiod arthritis, osteoporosis, osteoarthritis, mytral valve prolapse, heart murmur, COPD, asthma, bronchitis, chronic fatigue , migraines, am in 2nd stage kidney failure, & my way to long list goes on & on! I’ve had pneumonia 10 times, I have a lot of allergies to a lot of stuff, am allergic to over 50 different medications. Yes I’m one of those patients that most doctors run from! & they did! Anyway, I am married to my husband who just turned 64, & coming up in November we will have our 27 the anniversary! I love my husband but, he’s not much of a support system! At least not emotionally! I know living with & being a caretaker of someone who has lupus is not easy! I myself was a fulltime caregiver to my mom & dad & 2 brothers, all of whom also had lupus, while struggling with my own stuff. It’s rare to have all members of one family to have lupus but all of my family had it too. I have since lost my entire family. My mom also had polieomyalgiarhumatica, which is a rare form of lupus. My dad had lupus too & was a alcoholic as was my oldest brother. They both had heart involvement too. My other brother ( the sweet one!) died at 42 from kidney failure. He also had mental retardation. I used to think while growing up, that being the baby of the family, that I would be the on taken care of by them. Little did I know the opposite of that would be the outcome! Lupus also ran in my extended family too, as my grandfather, & an uncle, & a aunt also had lupus! I guess the lupus geans in my family line forgot they were supposed to skip a generation or too. I really don’t know what else to say about myself except, that I do believe in God, & I know He is with me at all times! I believe that God will decide when I will take my last breath, so I cling to Him as much as possible! In 2007 I got a infection in my liver, & my liver filled completely with blood clots except for 1 1\2" that did not have clots. I spent 6 1\2 weeks in a coma then, but here I am today, still breathing & defying masteries of lupus! Do I get depressed? Oh yah! But so far God continues to pull me through it all! Lupus is a very hard & can be a very lonely disease! So finding this lupus website is a God send to me! I’ve always said that God doesn’t put me through it, He gets me through it! So whatever credit goes to Him! Well, I hope I’ve introduced myself & said what I was supposed to say about me! I hope to meet a lot of fellow lupins here, & get to know y’all too! I have dyslexia too so if I get things backwards or don’t navigate to the right place, please forgive! Well my hubby will be home soon, so need to wheel myself into that kitchen! I hope I haven’t sounded to down here! I am going through a bit of depression but I know God will pull my through a