After months of unrelenting pain I finally got a dr to listen to me and run blood test. I had a high ANA, don't know what it was but the dr said it was indicative of lupus. Run more test and had another positive-the anti smith/anti rmp was positive. My hands indicate nerve damage as the tips of my fingers and toes turn white and red. I don't go back until next week but I am wondering if that last blood test-the anti smith etc is the final indicator of lupus. The dr has started me on plaquenil and the pain in my ankles seems to be lessoning somewhat. But I am exhausted and around my back, the rib area aches. It's bizarre. Any ideas, anything that I need to know since I am shocked I even have this? One relative I told about the drs thinking I have this, she asked me if it was contagious...seriously, just wow.
We must be kin I also had a family member ask if it was contagious. LOL When I first found out I had lupus I was much younger and read every thing I could I actually did well for 10 years I worked full time and found the right combination of meds rest and eating habits. Yoga has worked wonders. Dont get frustrated some times it takes a little while to find what works for you. A heating pad may help with the pain in the rib area.
I have had that "mysterious" rib pain since I found our I had Lupus earlier this year. NO doctor could explain it even after numerous tests. So I saw a chiropractor that has had many Lupus patients, and wouldn't you know as soon as I said where it started, he followed it up with and the pain ends here right. Finally someone can explain and knew what I was going through and I am not crazy! LOL So I go once or twice a week and I have very little to no pain. I do notice when I flair that I really feel it brought on, but I do stretches, Yoga, and go to the chiropractor and it has helped immensely. Hope this helps. :)
I have that rib pain too, yes the heating pad helps. If a relative asked me if it was contagious and they were someone I really didn’t like, I’d tell tell them yes! LOL!
Oh and about the Anti-Smith and Anti-Roe could mean you have Sjogren’s Syndrome too. Both my wife and I have that.
I do know that I have Raynaud's, that's a ball of fun on it's own. Wouldn't shock me if I didn't have Sjogren's because I do have dry eyes and dry mouth. I just can't figure out why on earth someone would think that Lupus is contagious. I don't know if Anti-roe and Anti-RNP are the same thing. I just don't get why my body wants to attack itself.
My daughter and I have Raynauds and we either ask my wife/her mom to Get things from freezer or we use oven mits. I thought you may have mispelled it. LOL!
Hi! and WELCOME to the family of LIVING with LUPUS !!!, Hope that you enjoy the time here with us ( people that you don't have to explain thing's to - WE already KNOW) -smile You know LUUPUS is just now really getting the attention to people (which it has been around for a long time ), family and friend's well have that question all the time ( Is it Contagious? in their mind) , but don't GET STRESSED OUT about it to answer them ( They just want to know ) . And being who you are with this auto disease , it is your position to give the KNOWLEDGE of LUPUS to them . My prayer's go out to you and your's , you can live with LUPUS and they can live with you - it will take a moment for this to sink in , but the best part is when everyone get the same understanding ...Beverly L.
Thanks for the comments, the more I learn the less I don't like it, lol. I hate this exhaustion, it's driving me batty.
Hello, hold on !!!!?????? It may seem like it is a long Journey , but it is worth fighting for the cure ,and those whom we have lost along the way . Stand strong and help fight this battle , one day SOON the break through will come for us and those to come behind us ... Beverly L.