Hello Ann,
Thank you for asking and i hope your keeping fine...i'm taking it easy as i've been bad with my head and concentration as been up the wall.
Love Terri xxx
Ann A. said:
I hope that you are having a good day - to Tez and Fighter and anyone else reading.
Tez_20 said:Hello fighter,
M((Hugs & Kisses)) Terri xxx
Hello Awesome Ann A. I hope that you are having a great day as well, I have been having so much pain in my legs lately, especially, the one that they took a muscle sample from. It hurts to sit too long and it hurts to stand too long, so what do you do, I lay down. But all in all God is good and will take of everything. I hope everyone has a fantastic MOTHER'S DAY!!!!! and take it easy, it is our day, let someone take over for that one day if possible. Many blessings and hugs.
Hey, my awsome Ann.A I needed that, I am having such a hard time managing this diabetes along with the lupus. They only have me on 500mg of metformin a day, which may not be enough for the whole day. I had a appointment with the nutritionist today, but I had to reschedule, because I felt so bad this morning. It seems that everything I eat flares up the diabetes or the lupus, it seems that it is a lose, lose situation. I will pick up a diabetes cook book tomorrow, maybe that will help me to eat healthier. Wish me luck, and please offer any advice that you may have. Many blessings and hugs.
Hello fighter,
No your not alone. My sister has the same symptom as well. It has gotten to the point that she just call me sister cause she sometimes forget my name. I see how it makes her feel so I can only imagine how you feel. Your in my heart and prayers xoxo
Thank you Lovingkita, that the best thing we can do for each is pray. Many blessings and hugs
hello ausome AnnA. I have type 2 diabetes, so I only take the tablet to control it, and the doctor says that it is the prednisone that keeps spiking it up, but the pill is a preventive. Thanks for the cheers. Many blessings and hugs
Hello fighter,
I really feel for you and the way your so down at the moment and being a diabetic is'nt fun for anyone who suffers it and having 2 types it's alot harder to fight and control.
My mom was a bad diabetic and started off on tablets, then it got testing it daily it was sky high on the readings and she had 3 meals a day which the dietican told her to have and also best foods to eat and avoid and before we knew it she was on insulin.
My thoughts are with you dearly mate...just knowing what my mom went through alone showed me enough about how ill it can make you.
All my love to you & a large hug Terri xxx
Hello Ann,
Those are the best mate and the first one made me laugh...i could just imagine myself doing that besides fighter needing a good laugh. "Nice one"
I really hope your doing fine besides Ann.
((Love to you Terri)) xxx
Oh My God, Awesome AnnA. I loved the pictures, they were too funny, and you are right I will look at them each time I get depressed about having lupus fog. Thats why I love your sense of humor. It really feels good to know that I am really not alone. You b careful going out alone when you have lupus fog. I saw your purse on top of the car and I got worried. I am gonna print them out and put them on the refrigerator (lol) Many blessings and hugs
I so understand being forgetful...I have had instances where I have forgotten names and dates and I'm usually the one that remembers everything. The most frightening episode for me was when I went to my car to get something and I was headed back into my apartment building which has a secure entrance and I was standing there with my keys that would open the door in my hands and literally broke down crying because I thought that I was locked out of the building only to realize that I had the solution right in my hand. The other day I was on the phone and I turned to my daughter and told her I can't find my phone....she laughed of course and I did too to kind of make light of the situation but it has been a very scary experience. I'm so glad to know that there is a family that I can turn to that understands exactly what I'm going through and I agree out of all the things I'm losing I miss my mind the most LOL.
Hi Fighter,
This Lupus is an uphill battle for all of us. I am sorry that social security is denying your claim, note they do that for most first time applicants. Try again. Is their a reason you don't or can't work? My struggle is not to go on SSD so early, I want to continue working, a modified schedule, a remain active for as long as I can, so that I don't succumb to this illness too early. Sometimes, mind over matter is key.
One thing, I hope not to do, is work and stress out my body, so I filed ADA and my work schedule is modified for a half day, I pace my activities during the day, bring snacks from home to eat throughout the day, sometimes, I feel hungry or dizzy for no reason during the day, but eating small snacks and drinking water assists with the feeling. The late start schedule at my job helps for me to ease into the day without stress and problems if I am stiff that day, I take my time without rushing. If I have a doctor's appointment then I am not worried about being late to work.
I know this struggle is hard, but it might not be a bad idea to file ADA with your job if you work, or to find a job that is low impact and will increase mobility within the day. Little changes to the day might help with managing Lupus, until, if ever the day comes, where you need to not work at all. Then volunteer. This may help with your memory issues.
Good Luck
Me too Nu Direction, I have experienced times where I am forgetful and don't remember certain processes that are second nature. I actually locked my car keys in the car in front of the post office. My temporary solution for memory loss, within me, is to take my time and complete tasks one at a time. Write post it notes at work, reminding me what to do, or tasks to be completed. At home, brought a new phone that lights up and makes sound when paged.
Most of all, I forgive myself, when I draw a blank in the middle of a thought or when my speech slows down while speaking, or when I invert letters in spelling tasks. Memory loss is scary but I try to just forgive myself, with no expectations or pressure. One thing, I did when I lived in an apartment building, is take the key needed for my apartment door and car place them on a ring together so I could not forget them, as I often did with many keys on a ring. I did not know I was ill with Lupus at the time.
Most recently, I am working on forgiving myself for leaving items in places when we moved, I literally forgot the items; boxes, with books, or small items that I left for last to put in the car with me, but did not. I could not understand why I just did not go and get the boxes or items. In this case only one or two boxes with sentimental items, not realizing it was probably the lupus brain fog causing me to forget what I needed to remember. I have cried nights over leaving small boxes and misplacing photos in my current home, because I feel like everything I own is being given away or just not here. Now, I realize how ill I was, my memory did not function normally and I felt very run down. So, I have to forgive myself and ask my daughter to forgive me for not remembering the small sentimental items, as I have beat myself up enough emotionally over being "lazy" as I thought it was, now realizing it was side effects of Lupus brain fog.
Forgiveness is key.
NuDirection said:
I so understand being forgetful...I have had instances where I have forgotten names and dates and I'm usually the one that remembers everything. The most frightening episode for me was when I went to my car to get something and I was headed back into my apartment building which has a secure entrance and I was standing there with my keys that would open the door in my hands and literally broke down crying because I thought that I was locked out of the building only to realize that I had the solution right in my hand. The other day I was on the phone and I turned to my daughter and told her I can't find my phone....she laughed of course and I did too to kind of make light of the situation but it has been a very scary experience. I'm so glad to know that there is a family that I can turn to that understands exactly what I'm going through and I agree out of all the things I'm losing I miss my mind the most LOL.
My Awesome AnnA. I love the picture of the cheerleader holding the picture upside down. It made my day, once you have that lovely since of humor displaying again. You are as awsome supporter for our LWL family. I love you for it. Many blessings and hugs.
Ann A. said:
Fighter Angel, the fog is with people of all ages
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thanks, Terrie, I am afraid to eat anything at all. I checked it today at 5pm and it was 480, and that really pissed me off and made me want to just say forget, I am damed if I do and I am damed if I do. What can I do except pray. I missed my appointment with the nutritionist because I didn't feel well that day, but I rescheduled it and hopefully I can keep the next one. Keep me in your prayers. Many blessings and hugs.
Tez_20 said:
Hello fighter,
I really feel for you and the way your so down at the moment and being a diabetic is'nt fun for anyone who suffers it and having 2 types it's alot harder to fight and control.
My mom was a bad diabetic and started off on tablets, then it got testing it daily it was sky high on the readings and she had 3 meals a day which the dietican told her to have and also best foods to eat and avoid and before we knew it she was on insulin.
My thoughts are with you dearly mate...just knowing what my mom went through alone showed me enough about how ill it can make you.
All my love to you & a large hug Terri xxx
Oh my gosh I hate this disease. I tell my husband that I am so dumb now. I used to have the best memory and never had to ask how to spell anything. Now I talk and the wrong word comes out. I mean I don’t even know where the words come from or where I hid my own things from myself.
I go through the same thing. When I speak, I have to speak slowly and deliberately to ensure the right words are being selected. Sometimes, I freeze on the word, I relax and breathe deep then try again. We can not beat ourselves up Heather, our bodies are doing enough beating up. We can only adjust. I almost did not apply for a job with a raise because of this illness, but, I just used the ADA accommodations and move on.
Adjust to the situation and try not to become frustrated.
Heather said:
Oh my gosh I hate this disease. I tell my husband that I am so dumb now. I used to have the best memory and never had to ask how to spell anything. Now I talk and the wrong word comes out. I mean I don't even know where the words come from or where I hid my own things from myself.
They must of had a lupus fog that day (lol)
LOL. Time for the play-offs, will talk to you later, many blessings and hugs.