HI everyone. I would like to know if anyone has had trouble with neck pain and head pain.and i also have trouble with my throat.my MRI showed white spots on my brain.what does this mean could i have ms.has anyone had this pain is so bad in neck and head eye pain.
No Hun I have not had those issues. I have neck pain at times and my eyes get really dry and bother me. Those are things you have to talk to your doctor about. I hope everything works out for you! If you need to talk email me!!!
Hi Dee, I have had severe ,migraines and "lupus headaches, but not the changes on an MRI. I'm sorry to hear about your pain. my prayers are with you
janice
Thanks Sunshinespraypaint. I just get these headaches bad.he has me on maxallt but cant take them more than.2 times a week.well thanks
sunshinespraypaint said:
No Hun I have not had those issues. I have neck pain at times and my eyes get really dry and bother me. Those are things you have to talk to your doctor about. I hope everything works out for you! If you need to talk email me!!!
HI Janice. well i had spots 2 years ago and now they say the headaches are do to it.can these spots come and go.I don’t get that because they are worse now.what did they give you for your headaches he gave me nortriptyline and maxalt .thanks
janice said:
Hi Dee, I have had severe ,migraines and "lupus headaches, but not the changes on an MRI. I'm sorry to hear about your pain. my prayers are with you
janice
do you think that spots on brain can come and go my headaches are worse now than back then.I dont know what to think.
sunshinespraypaint said:
No Hun I have not had those issues. I have neck pain at times and my eyes get really dry and bother me. Those are things you have to talk to your doctor about. I hope everything works out for you! If you need to talk email me!!!
i AM AFRAID I MIGHT HAVE MS THAT IS ONE OF THE SIGHS TO.
sunshinespraypaint said:
No Hun I have not had those issues. I have neck pain at times and my eyes get really dry and bother me. Those are things you have to talk to your doctor about. I hope everything works out for you! If you need to talk email me!!!
Hi Dee, Don’t get yourself into a panic, as you can see, alot of us have headache issues, I guess they are considered “Lupus Headaches”, from inflammation of course…Like every other damn thing we deal with comes from that too! I wouldn’t get worked up, I know it is so scary, but if the doctor who ordered the MRI didn’t mention MS to you than he must not think that is what it is… MS I believe has a distict look on the MRI. I suffer from a temporal arteritis, where the temples hurt so badly, it hurts to even chew. My head feels so bad when that happens…I actually feel sick, and it isn’t migraines. I saw a Neurologist for it 3 yrs ago, an MRI was done, he diagnosed the temp. arteritis/vasculaitic issue, of course was put on Pred. at the time…My sed rate was elevated at that time too, and other times, regardless of the intense pain & fatigue the Sed Rate isn’t elevated?! Weird, who knows, as I always say Tests, whether diagnostic or labwork does not mean everything or tell the whole picture of what you have, everything on these tests can Come and Go in the blink of an eye, and if MS was a thought you would have had further testing and treatment for it, so just think like that, the doctor wouldn’t just let u live with it without helping you…Relax, cause getting all worked up over it is only gonna make u feel even worse health wise…Trust Me, I know that Firsthand! Happens to me all the time…It sucks Dee, it really does, I hate the “always wondering” feeling, the sense of impending doom and the saddness & anger that this is what we must live with, but I would rather be here another day, everyday, than the alternative, that’s for sure! Stay Strong & Positive, try, even though I know how hard it is! Try to Smile! {{HUGS}} Suzie :0)
I forgot to add, when it is really bad, my temple pain, my neck is stiff & painful too…I think the head & neck are just very closely related! Suzie :0)
Yeah, I sure suffer from headaches–horrible migraines and their evil twin Lupus Headaches. The Lupus headaches are not easy to treat bc even with narcotics (IV) they won’t go away. About the only thing that works is IV Steroids…and a lot of docs, especially er docs won’t listen to me…puking all over the place usually gets their attention…LOL
HI Suzie D well i try not to but my head aches more now then 2 years ago I think what bothers me more is that no one had told me about this till now.and MS runs in my family 2 of my cousins have it 1 is in a wheel chair and she is younger than me.and when i ask the doctor anything i don"t get to many answers also i have not a lot of support my family does not know what i go threw I feel like i get the run around from doctors.i was told from so many doctors that this disease has nothing to do lymphnodes but i have had so many problems with them.i swell everywhere under my arms chest throat breast i need to get a mam but afraid because the lump is bigger.and i am tied they run the same test all the time.they see things but don’t feel it so they do nothing i know there is more wrong with me but don’t know what i am so drained of all of this.I wish my family could understand.I think that is why i get like this.I try not to cry I do it in my own way.I have not been sleeping i have bee up cents 5 am.well have a good day dee
Suzie D. said:
I forgot to add, when it is really bad, my temple pain, my neck is stiff & painful too....I think the head & neck are just very closely related! Suzie :0)
Hi janice I think i am worn out its the feeling that my family does not understand what i deal with and why i get this way.and then the doctors who don’t listen to me I think its one of my don’t feel good days well thank you janice dee
janice said:
Yeah, I sure suffer from headaches--horrible migraines and their evil twin Lupus Headaches. The Lupus headaches are not easy to treat bc even with narcotics (IV) they won't go away. About the only thing that works is IV Steroids...and a lot of docs, especially er docs won't listen to me...puking all over the place usually gets their attention..LOL
I have had headaches for years. I did find a Headache doctor and I have shots in the back of my neck and head next to the optical nerves I think he called it that. They work so wonderfully I can go about six months with only a few headaches instead of everyday until I can no longer function. I know about he er doctors and other to who all really suck. I could not even stand, walk or anything they would do nothing but send me home with narcotics which made things worse…