I have recently been suffering from the same morning shutdown of the brain a lot of people have been talking about on here. It is hard to explain but very disturbing. I wake up and immediately have trouble focusing my attention on anything. For example: I will try to read a novel and suddenly "tune out" (for lack of a better word) as if I am falling asleep. I quickly am jolted back into reality, but then it happens again a short time later. The process continues for some time, usually improving around noon or so. This is pretty scary. I don't know how some of you continue to work a job if this same thing is afflicting you. Has anyone heard of a drug or any way to combat this nightmare? What do your doctors say?
It is so nice to have understanding atleast from fellow sufferes! My family has lost patience I feel. I go to a neurologist Dec 4 and will pass along any information I get!! It is starting to scare me as I work 55ish hrs a week and have an hr commute each way and am a single mom. Thank god I atleast have my mom that lives close by and helps with her. She takes the blunt of the mood swings that come with the fatigue that I cant seem to control and she of course is fed up with mommy using the excuse “I am sick”
I respect and admire you for being able to endure this kind of suffering with such a work schedule and being a single mom. I struggle with it and I am on disability, so I don't have all of your responsibilities. I have plenty of diseases to cope with and even beat cancer, but I don't think I could do what you are doing. Anyway, I would love to hear from you about what doctor says about this mysterious brain freeze (my term for it, at least). Hopefully he will know how to prevent this in the future or at least lead to some improvement. I plan to ask my rheumatologist about it on December 2 when I go for benlysta treatment.
Thomas Franklin
Calla Lilly said:
It is so nice to have understanding atleast from fellow sufferes! My family has lost patience I feel. I go to a neurologist Dec 4 and will pass along any information I get!! It is starting to scare me as I work 55ish hrs a week and have an hr commute each way and am a single mom. Thank god I atleast have my mom that lives close by and helps with her. She takes the blunt of the mood swings that come with the fatigue that I cant seem to control and she of course is fed up with mommy using the excuse "I am sick"
It's called Lupus Fog. There is info about it if you Google it. Ginkgo Biloba took me from being unable to complete a full paragraph, to almost being my old self.
I know all about the lupus fog. I start a sentence and at the end I forgot what I started to say. I also cannot spell a simple word. I too am glad I don't have to work and have small children.. I have been very sik that last 2 weeks. I think I have tested for everything under the sun. I hope I get some answers tomorrow. And now we re suppose to get a snow storm Have a happy Thanksgiving everyone.
This happens to me a lot too. I wonder if it could be some type of seizure? My biggest fear is its almost as if I've blacked out, I lose actual time, the other problem is behind the wheel sometimes I don't even remember driving from one place to another, luckily I don't drive very much anymore, also I don't take meds so it is not med related, its scary just the same.
Yes, I get that too as my other post mentioned. I describe it as my brain turning off for a quick second. But then it goes back into that deep fog when it turns back on. Some hours the fog is terrible and then slowly clears. I have not yet found a solution other than prednsione which my doc wants me off and I don't know what causes it. I will definitely let you all know if I find something that work.
I was just writing to a friend and I couldn't remember what city my daughter lived. I thought of it 10 minutes later. I hate it. I use to think it was old age.
YhI’ve never even mentioned it to the doctor, but he’s seen me when I have it. I usually worse things going on or I forget. But it really is a very hard thing to live with, Maybe I will
ask next appointment. If I remember, haha!
When I need to balance check book or call places like health insurance, Medicare, or IRS, and need my wits, I drink a Starbucks latte iced. It seems to help. But drink before noon or you won’t be able to sleep that night. I to thought it was age. Partly. But I have been looking at the side effects of all my meds. I’m going to try to reduce or get off prednisone. I have lupus n Ra. I think Plaquenil helps with both.