I have to start by saying that the level of pain I'm going through today is the worst I've ever had next to recovering from a surgery! So the past few days my right shoulder (the good side) was very sore, burning and could hear and feel grinding and hard cracking with every movement.... last night while asleep I rolled over to my right side and my shoulder particularly dislocated:( on top of that I've been dealing with extreme stabbing, burning pain under my right rib, it's all excruciating... so I had to get ice , pain meds, ace bandage my shoulder tight to my body and finish crying my eyes out then finally went to bed... I woke up and took a nice hot shower but when I was drying off in slid out again!! OMG the pain!! So now more ice , meds, bandaging ... im writing now from my good girlfriends house, she's also my primary doctor's , we had plans for a week to have a slumber party so I didn't wanna cancel and we always have so much fun just hanging out together:) she said the pain under my rib is definitely my kidney, she felt around as I screamed :/ she's ordering at CT of the kidneys on Monday. Unfortunately there's nothing much I can do for my right shoulder.... I've already had subluxation(partial dislocation)to my left shoulder and knee cap and am to sick to have any torn tissues repaired because my orthopedic said my connective tissues will just keep degenerating. Apparently the dislocations are caused by my homocystin disease and are not common to lupus.... I just can't believe how much pain I'm in between this kidney and shoulder! It just amazing how quickly things turn serious for me.. I just had to have my gallbladder removed and im a tiny , skinny 34 year old that eats a healthy , unprocessed diet but I was puking up bile and suffering from extreme nausea for several months .. it was all thanks to my diseases. So now I can't use my walker because my shoulder is destroyed and its very difficult to walk with just a cane because from the hip down my left side is completely deteriorating. My balance has gotten soooo bad I'm afraid im gonna fall ..now I'll have to be back in my wheelchair for a while, I feel so defeated:(
Have you been checked for Ehrlos Danlos? Just asked because you describe multiple dislocations
Dawncelest, you have been through so much in your young life! It is so not fair! You have always been so strong and looked on the bright side, which inspires all of us. The pains you are having are two of the worst and you are having them together...unbelievable!!
Prayers and hugs to you!
Geneva
First of all, I’m so sorry to hear of how much pain you’re in and how much you are going through overall! I hope it helps to share it with those who care, and can handle, to listen! I can’t say I’ve experienced any difficulties or pain as severe as you have, but I feel for you.
Second, I’m sure you’ve tried many things for keeping your shoulder in its proper place, but in case you haven’t heard of it I wanted to suggest KinesioTape. It’s flexible enough to have a full range of motion (probably also important for you to keep it from stiffening and holding in the pain…) yet also strong/springy enough to support the joint in it’s proper place, with a few strips in the proper places rather than a whole bandage that non-specifically pins it down. A physical therapist would be the one to decide and show you how to place the tape (a helper would do it, but you’d want to know the instructions!!) Guessing you already have a PT, but if not, they’re essential for physical problems like you’rdes having. An occupation therapist might help a lot too with strategy, especially with how to use your walking aids or skiing
I hope you find at least some relief for at least s
I’m so sorry to hear the pain and all you are going thru I can’t imagine the pain except flash backs I get before I got treatment hope something helps and will pray that you feel better and god keeps giving you the strength to get thru this because you are not defeated you are so strong just being able to share with us what your going thru god bless and stay strong
Thanks friends:) the past few days have been so hard… im considering asking my primary to admit me to the hospital tomorrow so I’m not just walking into the ER with no background information… don’t know if there’s much that can be done for my shoulder but I do think its possibly fractured or another contusion happened:/its excruciating with a lot of fluid around the bone ( twice the size as my other shoulder) and is hanging down at least an inch from where it should be… maybe they could at least put me in an immobilizer/cast so it doesn’t injury more ??? This kidney area pain is a whole other issue…it took about 5 days after my gallbladder surgery a few weeks ago to stand up straight and now im back hunched over again from this new pain… having gallstones was rough but if this pain I have now is kidney stones than I’ll take my gallbladder back lol! I’ll see how I get though the night, how many times I wake up in agony will decide whether I go to the hospital or wait later in the week for CTs and Xrays, we’ll see???