Living with Lupus: Treatment Advice and Words of Wisdom

General
1

http://health.lifegoesstrong.com/article/living-lupus-treatment-advice-and-words-wisdom

2

I know this was probably no it was a stupid thing to do. I was feeling so much like my old self that I decided on my own that I didn't need medication anymore so I stopped taking it. I didn't think i needed it anymore. Boy was I wrong. I am on my road back to square one. I haven't slept in a week. When I do sleep it is only for a couple hours. This has been gradually going on for weeks. My hair is back to falling out. I am having fevers like crazy and aches and pains like crazy. I must be an idiot for trying to be medication free. It took forever for the medication to even start to work in the first place. What was I thinking. Well I was thinking that maybe it just went away. Duh!! There is no telling how long it is going to take now for my medications to start working again. I will never try this again. I am already down to a size 0 and losing weight again. I am 6ft tall and am back down to 119lbs. This Disease really sucks. It bites the big one. I guess I am just venting from my own stupidity.

Sandie

3

In the article, I like where she says "Lupus isn't a disease like cancer, which you try to fight with everything you've got, it's more zen than that," she says. "You learn to live within your limitations."

I have found when I get angry and fight against lupus and push past my limits, I just get sicker.But if I accept my symptoms and do a sensible amount of activity, it eases up.

4

Thanks for sharing this article! I agree, I like that part too, to learn to live within your limitations.

Trisha

5

I understand completely how you feel! I would love nothing more than to not have to take all of the meds I do -- I'm a wife, mother and grandmother who's supposed to take care of everyone else! It's taken me a long time to accept the fact that there's only so much I can do and to just take each day at a time. It really cuts down on the ugly fights my husband and I have had! Keep your chin up Sandy!

Sanrien said:

I know this was probably no it was a stupid thing to do. I was feeling so much like my old self that I decided on my own that I didn't need medication anymore so I stopped taking it. I didn't think i needed it anymore. Boy was I wrong. I am on my road back to square one. I haven't slept in a week. When I do sleep it is only for a couple hours. This has been gradually going on for weeks. My hair is back to falling out. I am having fevers like crazy and aches and pains like crazy. I must be an idiot for trying to be medication free. It took forever for the medication to even start to work in the first place. What was I thinking. Well I was thinking that maybe it just went away. Duh!! There is no telling how long it is going to take now for my medications to start working again. I will never try this again. I am already down to a size 0 and losing weight again. I am 6ft tall and am back down to 119lbs. This Disease really sucks. It bites the big one. I guess I am just venting from my own stupidity.

Sandie