Anyone have liver issues from Lupus or the Lupus medications?
Hello Rejara,
I have a tumour on my liver which only appeared last year and at the moment they don't want to touch it although it's collecting blood but i do have trouble with my organs shrinking then expanding.
Members will answer in due course...as we have members besides with Liver issues and meds can interfer with the liver....methotrexate, Daspsone for a start off have to have regular blood checks because of the liver and organs.
I do hope the link below helps :)
http://www.lupusuk.org.uk/latest-news/from-the-national-magazine/65-lupus-and-the-liver
Yes my
I have but we're not sure what exactly is causing it. Over Christmas week, my liver enzymes went sky high. I also had the flu at the same time but I've had other times where it got a little high but then resolved. I've cut out all use of Tylenol, and of course, alcohol. And we're doing blood work every week. I'm waiting on results now so I can know whether or not I get a methotrexate injection tomorrow.
Good luck!
My first symptoms of autoimmune disease were from autoimmune hepatitis (non-viral). About the fith year after diagnosis for lupus, I had elevated liver enzymes, at the time it was attributed to my lupus and it was controlled with an increased dose of azathioprine.
I have issues from lupus and autoimmune hepatitis. I've had elevated enzymes lately and sonagram of it showed advanced cirrohsis. The liver specialist said that acetomenaphin (up to 3 grams/day) was better to take than NSAIDS. I have problem with pain control. I was on an arthritis med for 5 years, but kidneys were having elevated creatine and creatine. The NSAID was taken away.
Yes I have liver issues. The sphincter between liver and where gallbladder used to be malfunctions. Causing elevated liver enzymes and very severe pain.
since many of us with lupus end up getting other auto immune diseases there is one that effects one's liver, called hemochromatosis. It normally does run in families, so if you do have it all of your siblings should be tested. the main problem of it is your body has too much iron.
It does act like lupus in that it can effect organs plus it can destroy your joints..so joint pain is often the first sign many get with it. It is easy to control with regular blood test plus you just give blood till your levels are in normal range.
My husband has it and sadly did not go in to see doctors. He waited till his ankles are both extremely destroyed. He really needs to have ankle replacements but they just do not last very long so he tried fusing the bones...which he did say helped. I personally think it hardly helped him at all as he needs canes to walk with still.
Blood test is easy way to see if you do have it. Your liver enzymes will be elated and iron levels can be off the charts...and often they take biopsy of your liver which can be unpleasant.
I have had elevated liver enzymes while on some of drugs like methotrexate but it did drop back down once i went off. We just kept eye on them every few weeks...since methotrexate was helping is slowing down my Ra progression of destroying my joints.
One other time it was high....but i think i read something about those who got mono a lot do have liver enzymes going up ....and i was one of those that had mono 3 times at least when they thought you could only get it once.....than i was diagnosed with SLE few years later..but back than they still did not know that about normal now for people to get mono more than once.
So sometimes in bad flares....kind of like mono when I think about it, fevers (low grade ones) joints all hurt and extreme fatigue they have been off ....so it must be some what normal since non of doctors really freaked and started running lots of liver tests.
USA girl..you are in rock and hard place about Tylenol vs Motrin or other anti inflammatory drugs as one hurts liver and other the kidneys. I also got in that fix and now avoid both....use pain patch that is only pain medication not with anything else like Tylenol in it.
IT can be a pain....but go see pain specialist if you are in pain to find a pain medication like mine that works for you with out any of the other drugs to make your organs worse. Plus, sometimes after we let them rest things do get better on their own....so hopefully going to happen to both of us soon!
There is hemochromatosis support groups out there if you all like to get more information. I don't think there is on Ben's friends but possible...there is great group on Daily Strength and sure from actual non profit organization.
Hopefully it is just drugs and nothing else...but i never had heard about this disease until my husband got it and now i ran in to a lot of others who do it have it...so thought i put it out there in case anyone is having liver issues with a lot of joint pain..make sure your doctor's tests for this since so easy to fix and keep under control.
Yea when on methotrexate my liver enzymes went bonkers, so I stopped. Went back on plaquenil until a stomach virus hit our home at Christmas, I started a drink called jasuru. It has helped tremendously I still take hydrocodone in the evening, no more than 11/2 tablets a day, that is because of my busy life style. On down days I don’t need anything by jasuru daily. If interested in this please email me!
It seems that my liver enzymes be elevated at times..and then they get back right then they would do it again..reasoning is not known...however with lupus I have learned and realized anything is possible and accept new things when it come because we have no choice...meds. & flares could cause it....without even giving up warnings
I have liver pain quite frequently they tell me that it is called sphincter of odi. Something to do with the opening to the liver is malfunctioning. Quite painful! But the fix for it is very dangerous you can get chronic pancreatitis or I guess it can kill you so I’ve opted to live with the pain
Yes. I have inflammation of my liver capsule that went along with a multi organ serositis. I was in hospital for 10 days. Still having pain and problems. Saw my GP and even though my rheumie doesn’t think it necessary my GP says I need to see a hepatologist.