LFA- Lupus Living Newsletter

LFA-Funded Research Recognized at the 2011 American College of Rheumatology (ACR) Annual Scientific Meeting

Lupus Foundation of America was at the frontlines to report on the latest findings in lupus research during the 2011 ACR meeting. Many exciting announcements were made including updates on research studying neuropsychiatric lupus, male lupus, pediatric lupus, quality of life, lupus diagnostic criteria, and biomarkers, which are all areas of focus for the LFA's National Research Program.

Missed our reports? We will be launching a new podcast series from the ACR meeting with interviews from leading lupus researchers and other thought leaders in the field. These will be featured in the next research e-newsletter as well as our website. In the mean time, scroll through LFA’s Twitter feed for news and updates from the live research sessions at ACR.

Read the articles below to learn more from ACR 2011.

New Study Sheds Light on the Challenges of Developing Lupus Treatments

Lupus Foundation of America Funded Studies Focused on Advancing Research and Improving Quality of Life for People with Lupus

Research Study Finds Higher Numbers of People With Lupus

15 Questions with Jane Eshaghian – Dealing with the Stress of Being a Parent with Lupus

A parent with lupus adds challenges to the already heavy demands of being a parent. Small adjustments to your lifestyle can help minimize disruptions in your children’s daily schedule and activities. You will be able to devote more quality time to your children when you receive more rest and reduce stress. This month, Jane Eshaghian will respond to questions regarding ways to address the stress of being a parent with lupus.

Submit your questions to Ms. Eshaghian by December 7
. If you have a question about lupus that is not associated with this month’s topic, we invite you to submit your inquiry to our LFA Health Educators and your question will be answered as soon as possible.

Learn more about 15 questions

Review transcripts from our previous 15 Questions and Web Chats

Do Your Fingers Tell You It's Cold Before the Weatherman Does?

[object Object]As temperatures begin to fall, people with lupus may experience color changes, numbness, tingling, and pain in fingers and toes. These are symptoms of secondary Raynaud’s phenomenon. Read more for tips on how to keep your blood flowing, whether or not the weather is cold.

Staying Active During the Winter

Though your body may be layered under sweatshirts and coats, staying active and healthy is important. Winter is a unique time of year, and there are lots of ways to get out, get some exercise, and have a good time. Read Out of Hibernation from the latest issue of Lupus Now magazine.

New Fact Sheets Available: Pregnancy, Depression, Children and Teens, and Men.

The LFA’s Education and Research Department created five new titles to address the growing need for information on all aspects of living with lupus. The new fact sheets now available include lupus and pregnancy, lupus and depression, lupus in children and teens, and lupus in men. Call the LFA health educators for a free single copy at 800-558-0121. Packets of 100 fact sheets or more can be purchased at www.shoplupus.org.

Transitioning from Pediatric to Adult Care

For a young people with lupus, transitioning from their pediatrician’s care to an adult care setting can be an especially challenging experience. This month, Dr. Emily von Scheven answered questions submitted by young adults and their parents, and offered strategies on ways to maintain continuity of care during the transitional period.

Dear sanfra ramond thank you very much for the generous grant from the lupus foundation in turn will help me get treatment. I am 44 a mother of 4 and have a grandson. I now live in sebring florida 48 miles south of orlando and would like to start a chapter here. My telephone number is 4073090327 thanks deborah