I wanted to start a new discussion, maybe daily if this goes well we can "Let it all Out" as i call it. A question will be asked, in order for it to be easier for us to get out our thoughts. I find solace in writing. I feel much better once it flows out of my body through writing. Hopefully it will help you too.
Here is today's question - Who has been an inspiration to you since you were diagnosed with Lupus? Why?
Well I will start it first, my inspiration is my children, although they weren’t born when I first got sick, they are what keeps me going nowadays. If it wasn’t for my family, I don’t know what I would do… Probably crawl in a hole & wither away. I guess I could have worded it differently, the question could also mean who helps you get through the darkest of days, going thorugh the pain, fatigue, etc etc etc… I really never thought after getting sick that my “sick” body would be able to produce 3 beautiful sons! They are my blessing, my inspiration, my EVERYTHING!!! And I thank GOD for them every minute of my life… I try to be the best Mom I could be, but I am far from perfect, but I take everyday as a new beginning and hope that everyday I become a better person and role model for them…This disease has made me angry and bitter, and i let out my frustrations in the wrong way, but I do notice since coming here to this site, i see an improvement, because I have all of you to listen. Love, Suzie :0)
I feel the same way my children and I also feel without them I would’ve given up a long tome ago. I don’t have much support and understanding from friends family or even my husband (he’s just not good in any type of situation that is very serious or difficult) that’s why I came here to find people who understand. I hate the u look fine or Yur sick I think you look great! Yea that passes me off. LOL
Well since i was not diagnosed it was my daughter… she is my inspiration a 9 year old living with this i can’t say much
wow you know my daughter doesn’t look sick right now either but i try to tell others that is what is the curse of this disease… you don’t need to look sick… she did in the past have her moments and iam sure in the future will but right now she looks sooo healthy but like you said her blood results and dr.'s say a different thing… S
Rachel Simpkins said:
I lost 4 babies before I had my son who is 16 now. Doctor told me recently because Lupus causes Miscarriages.
My son is Autistic, but very very smart-he is now in Law Enforcement Classes to be Police Officer then work
his way up to swat team. And YES he told me if I drive fast he would give his Mother a ticket :( LOL
Married 25 years and completely happy because of the work I put into my little family. It was just 2 years
ago I got sick. I have lost a few close friends because of the "But you dont look sick" Im very pretty but
my inside and bloodwork says otherwise. I even lost my church of 4 years- I was IN hospital and they said
last week I looked fine. and that was that. Im starting new church this week :) My sick friends encouraged me. I do talk more to people like me though. Love Rachel
I hear ya Crystal, having a wonderful mom like you, who helps her be the strong little girl she is & helping her anyway you can, your daughter will stay strong & positive. Words cannot express how my heart goes out to you, you have to keep such a positive face and attitude for her. Which I am sure feels impossible to do. But you do it, for her. You & your family are in my prayers. And honestly you are truly inspirational for being there for your beautiful daughter! {{HUGS}} Suzie 
My youngest Daughter keeps me going. She is 17. She is a kind and careing person. I really wanted to die...
She sees my suffering and my pain. She comforts me. We talk, laugh, watch DVD's, or play board or card games. Sometimes she has to move all the pieces. Sometimes I cant shuffle the cards. Sometimes she has to make dinner because I just cant...
You are right, I think writing will help me. I just cant do it alone. Maybe this forum is just what I need to get my feelings and emotions in check.
Hi Kathleen, I am so happy to see that you find talking to us & letting out your frustrations & pain, help you. I myself find it so relieving & comforting. I feel much better after I “Let it all OUT” hence, the topic name. I understand just how u feel, I also have my son Nicky whom will be 10 this Saturday, who helps me with the smallest tasks that are so increasingly hard for me to do without his help. I feel bad at times, because he now offers and does them without me even asking because he sees how sick I am. I hate what Lupus is not only doing to me, but my family also. I HATE that I feel so sick and can’t enjoy the simplest things in life these days. I find it exhausting to even go outside anymore, and how I so love the fresh air & sunshine. I too am so sad, I am feeling the wrath of the mixed emotions that being chronically ill brings. I am here for you whenever you would like to chat. I am a mom too and I fully understand the position you are in. As many other wonderful women on here are too. You will find such wonderful friends here, cause I know I sure did. We are a lil’ family, I like to call it. And we will always will stick together! Hang In there my firend, Stay Strong! {{HUGS}} Suzie :0)
Kathleen O’Neill said:
My youngest Daughter keeps me going. She is 17. She is a kind and careing person. I really wanted to die...
She sees my suffering and my pain. She comforts me. We talk, laugh, watch DVD's, or play board or card games. Sometimes she has to move all the pieces. Sometimes I cant shuffle the cards. Sometimes she has to make dinner because I just cant...
You are right, I think writing will help me. I just cant do it alone. Maybe this forum is just what I need to get my feelings and emotions in check.